The physical, social and emotional aspects are the most affected in the quality of life of the patients with cervical dystonia

Werle, Roberta Weber; Takeda, Sibele Yoko Mattozo; Zonta, Marise Bueno; Guimarães, Ana Tereza Bittencourt; Teive, Hélio Afonso Ghizoni

doi:10.1590/0004-282x20140044

Cited by 45 publications

(35 citation statements)

References 24 publications

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“…Stigma in the MOG was an important social factor that adversely affected quality of life in the individuals assessed. Werle et al 25 investigated quality of life in individuals with cervical dystonia, a chronic disease that is also associated with stigma. They found that the need to hide the disease, insecurity in the presence of new people, problems with friends and family members, fear about the disease and sadness and irritation were factors that reduced their quality of life.…”

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confidence: 99%

Quality of life in Parkinson’s disease patients: progression markers of mild to moderate stages

Moreira

Zonta

Araújo

et al. 2017

Arq. Neuro-Psiquiatr.

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Parkinson's disease (PD) is a chronic degenerative disease of the central nervous system that evolves slowly and progressively and is characterized by bradykinesia, muscle rigidity and resting tremor among other motor signs and symptoms 1,2 . Quality of life is significantly impaired not only by motor symptoms, but also by non-motor symptoms such as depression, anxiety, pain, constipation, hyposmia and sleep disturbances 3,4 . There are few studies on the incidence and prevalence of PD in Brazil; however, the most recent study shows that the disease affects 3.3% of Brazilians over the age of 60 years 4 . One of the concerns when treating PD patients is to improve their quality of life. This includes their physical, functional and emotional well-being, their degree of independence and their family relationships, as well as social, economic and political aspects of their lives 5,6 . A decline in quality of life in individuals with PD has been associated with worsening motor symptoms and the combination of neurodegenerative phenomena, psychological suffering and stigma associated with the disease

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confidence: 99%

Quality of life in Parkinson’s disease patients: progression markers of mild to moderate stages

Moreira

Zonta

Araújo

et al. 2017

Arq. Neuro-Psiquiatr.

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“…32 Such findings can be attributed to different underlying constructs: perceived quality of life is only partially determined by motor symptom severity as has been shown in numerous studies in different movement disorders. 33 Specifically in the case of dystonia, the perceived stigma, 34 affective symptoms, 35 and pain 28,32,36 have an impact in addition to the perceived effect of treatment and other sociodemographic factors. 35,37 Consequently, current guidelines recommend consideration of these nonmotor aspects in the setting of treatment goals and the use of hrQoL instruments as secondary outcome measures to assess treatment efficacy.…”

Section: Discussionmentioning

confidence: 99%

Ranking of Dystonia Severity by Pairwise Video Comparison

Ellermeyer

Otte

Heinrich

et al. 2016

Movement Disord Clin Pract

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Background: Reviewers of dystonia rating scales agree on the need to assess symptoms more comprehensively. During the development of a quantitative dystonia assessment by video-perceptive computing, we devised a video-based severity ranking as a procedure to create a validation standard without the use of clinical scales. Methods: Thirty-four patients with dystonia (17 with dystonic tremor) and 2 controls were assessed with clinical scales and video-recordings of 24 short movement tasks. Two to 4 raters compared multiple permutations of videos from 22 subjects, including 2 healthy controls, until a complete rank order was achieved. Inter-rater agreement was expressed as normalized Kendall tau distance. Spearman correlations of video rank order with clinical scales and self-rating were repeated for tremor/nontremor subgroups. Results: Normalized Kendall tau distances were <0.3 for 15 items. The video rank order for sitting and head movements correlated with clinical scales for the whole group (rho 0.52-0.87) and in the subgroup without tremor. In the tremor subgroup such correlation was perceived in the 2 items involving sitting. Video rank order correlated with quality of life self-rating only in 1 item (arms held in front, palm down). Conclusions: The agreement of video rankings between raters is remarkable. The lack of correlation in the tremor subgroup in several items may be interpreted as tremor being considered in video comparisons but not in clinical scales. This supports video-based ranking as a more comprehensive rating of dystonia and as a possible validation instrument applicable in situations in which no reference standard is available Dystonia is a movement disorder characterized by motor symptoms such as sustained or intermittent involuntary muscle contractions.

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“…• Neurologist -Neck deformity or change in posture [25][26][27][28][29][30] -Tremor or jerking (head/limbs) 32 -Neck weakness 25 -Autonomic symptoms 25 • Rheumatologist -Early morning stiffness 10 -Associated limb girdle pain/entire back involvement/joint pains or deformity/ tendonitis 10…”

Section: Infectionmentioning

confidence: 99%

Neck pain: What if it is not musculoskeletal?

2018

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NECK PAIN is a leading cause of disability in adults, 1 reported in up to 20% of adults, 2,3 with many presenting for assessment. 3 One study estimated that general practitioners (GPs) were consulted seven times per week for neck pain. 4 While the majority of cases are attributable to benign musculoskeletal conditions, neurological and orthopaedic pathology may present similarly. Identifying patients who require investigation and referral involves an understanding of possibilities and clues. These clues need to be elicited in a timely manner owing to the nature of general practice. We outline an approach to alert clinicians regarding potentially serious conditions in adult patients.

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The physical, social and emotional aspects are the most affected in the quality of life of the patients with cervical dystonia

Abstract: The physical, social and emotional aspects are the most affected in the quality of life of the patients with cervical dystonia Os aspectos físicos, sociais e emocionais são os mais afetados na qualidade de vida dos pacientes com distonia cervical

Cited by 45 publications

References 24 publications

Quality of life in Parkinson’s disease patients: progression markers of mild to moderate stages

Quality of life in Parkinson’s disease patients: progression markers of mild to moderate stages

Ranking of Dystonia Severity by Pairwise Video Comparison

Neck pain: What if it is not musculoskeletal?

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