The representation of getting ill in adolescents with systemic lupus erythematosus

Resende, Ondina Lúcia Ceppas; Barbosa, Maria Tereza Serrano; Simões, Bruno Francisco Teixeira; Velasque, Luciane de Souza

doi:10.1016/j.rbre.2016.03.016

Cited by 5 publications

(2 citation statements)

References 26 publications

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“…Systemic lupus erythematosus (SLE) atau disebut lupus merupakan penyakit autoimun kronis yang dapat memengaruhi berbagai sistem organ termasuk sistem saraf pusat serta dapat menyebabkan kerusakan (Prasetyo & Kustanti, 2015;Raafat, El Refai, Alrasheed, & El Din, 2015;Resende, Barbosa, Simões, & Velasque, 2016). Pada tahun 2013, terdapat sekitar 13.300 penderita lupus di Indonesia (Mardiani, 2013).…”

Section: Pendahuluanunclassified

Dukungan sosial bagi penderita lupus: Dapatkah menjadi moderator bagi efek penerimaan diri terhadap rasa syukur?

Dienillah

Chotidjah

2021

JPS

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Social support contributes to Lupus patients in the process of treating their diseases. The condition of lupus sufferers who experience various physical changes can affect their psychological state. Social support sometimes does not have a positive influence, but it can also have a negative effect. This study aims to see whether social support can moderate self-acceptance and gratitude for lupus sufferers. Participants in this study were 206 lupus sufferers. The results showed that social support can moderate self-acceptance and gratitude. The results were then discussed.

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Section: Pendahuluanunclassified

Dukungan sosial bagi penderita lupus: Dapatkah menjadi moderator bagi efek penerimaan diri terhadap rasa syukur?

Dienillah

Chotidjah

2021

JPS

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“…To that end, there is a need for a better understanding of the emotional aspects involved in SLE illness, especially among women, so that professionals can serve this clientele holistically, minimizing suffering and ensuring adherence to treatment (10)(11) .…”

Section: Introductionmentioning

confidence: 99%

Patients who experience systemic lupus erythematosus and leg ulcer: phenomenological approach

et al. 2022

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Objective: To understand the experience of a woman with systemic lupus erythematosus and leg ulcers with cutaneous calcinosis. Methods: An experience report based on the social phenomenology of Alfred Schutz, conducted with a young woman undergoing treatment in an outpatient service. Results: The disease manifested itself in adolescence and brought emotional instability associated with body image concern and social isolation. The discontinuation of the studies triggered financial limitations with implications for treatment. The presence of ulcers aggravated by skin calcification makes the process of getting sick tiring and painful. Interpersonal relationships are resources for coping with situations experienced. Final considerations: Patients with lupus may have social, affective, and family life, even in the face of the limitations imposed by the disease. However, the emergence of leg ulcer with calcinosis changes this situation.

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Lupus, «un cáncer pero más chiquito». Percepciones del lupus eritematoso sistémico en adolescentes próximos a la transición

Hernández-Zapata

Vanegas

Eraso

et al. 2018

Revista Colombiana de Reumatología

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The representation of getting ill in adolescents with systemic lupus erythematosus

Abstract: Considering as subjective and dynamic the experience of getting ill, knowing the representations can contribute to the orientation of conduct and type of psychotherapeutic intervention needed.

Cited by 5 publications

References 26 publications

Dukungan sosial bagi penderita lupus: Dapatkah menjadi moderator bagi efek penerimaan diri terhadap rasa syukur?

Dukungan sosial bagi penderita lupus: Dapatkah menjadi moderator bagi efek penerimaan diri terhadap rasa syukur?

Patients who experience systemic lupus erythematosus and leg ulcer: phenomenological approach

Lupus, «un cáncer pero más chiquito». Percepciones del lupus eritematoso sistémico en adolescentes próximos a la transición

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