Food insecurity and social support in families of children with sickle-cell disease

Santos, Isabel Nascimento dos; Damião, Jorginete de Jesus; Fonseca, Maria de Jesus Mendes da; Cople‐Rodrigues, Cláudia dos Santos; Aguiar, Odaléia Barbosa de

doi:10.1016/j.jped.2018.01.005

Cited by 14 publications

(13 citation statements)

References 19 publications

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“…Another indirect pathway that links perceived social support to fear of COVID-19 is through its positive impact on food security. This finding is consistent with studies by Ashe ( 46 ) and Nascimento Dos Santos ( 47 ). People with higher social support are more likely to be wealthy, and less likely to experience food insecurity ( 48 ).…”

Section: Discussionsupporting

confidence: 93%

Fear of COVID-19 Higher among Food-Insecure Households: A Model-Based Study, Mediated by Perceived Stress among Iranian Populations

Ezzeddin¹,

Eini‐Zinab²,

Kalantari³

et al. 2022

IJPS

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Objective: The COVID-19 pandemic is a crisis accompanied by multiple psychological consequences (including fear of COVID-19) and threatens the food security status of millions of people. This study aimed to examine the association between fear of COVID-19 and food insecurity, mediated by perceived stress. Method: This cross-sectional study was conducted among 2871 Iranian participants (18-80 years), recruited through the Social Media during the COVID-19 epidemic. The demographic and socio-economic information questionnaire, Household Food Insecurity Access Scale (HFIAS), COVID-19 fear scale (FCV-19S), Cohen's Perceived Stress Scale (PSS-14) and Perceived Social Support Questionnaire (MSPSS) were used in data gathering. Descriptive and analytical analyses were done using SPSS 22.0 and Amos 22.0 was used for structural equation modeling (SES). Results: Food insecurity has significant positive direct and indirect (mediated by perceived stress) correlations with fear of COVID-19 (P < 0.05). It was also shown that perceived social support could negatively relate to fear of COVID-19 through the pathways of food security status or perceived stress (P < 0.05). Among women, the presence of a child under 5 had a significant direct association with fear of COVID-19 (P < 0.05). Conclusion: Food insecurity was associated with more perceived fear of COVID-19 among the studied population. The crisis caused by COVID-19 highlights the need to increase social resilience through developing and implementing appropriate strategies to prevent and mitigate social costs (whether physical, psychological, or nutritional).

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Section: Discussionsupporting

confidence: 93%

Fear of COVID-19 Higher among Food-Insecure Households: A Model-Based Study, Mediated by Perceived Stress among Iranian Populations

Ezzeddin¹,

Eini‐Zinab²,

Kalantari³

et al. 2022

IJPS

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“…In our study, most patients had selenium deficiency and adequate nutritional status of the other analyzed antioxidants. Selenium deficiency may possibly be attributed to a selenium-poor diet, since the food sources of selenium are expensive and, in Brazil, the population is more vulnerable to food insecurity [24]. In addition, selenium deficiency may also be attributed to the increased renal excretion of SCD patients.…”

Section: Discussionmentioning

confidence: 99%

Selenium Status and Hemolysis in Sickle Cell Disease Patients

et al. 2019

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Sickle cell disease (SCD) is a genetic hemoglobinopathy characterized by chronic hemolysis. Chronic hemolysis is promoted by increased oxidative stress. Our hypothesis was that some antioxidant micronutrients (retinol, tocopherol, selenium, and zinc) would be determinant factors of the degree of hemolysis in SCD patients. We aimed to investigate the nutritional adequacy of these antioxidants and their relationships to hemolysis. The study included 51 adult SCD patients regularly assisted in two reference centers for hematology in the State of Rio de Janeiro, Brazil. Serum concentrations of retinol, alpha-tocopherol, selenium, and zinc were determined by high-performance liquid chromatography or atomic absorption spectrometry. Hematological parameters (complete blood count, reticulocyte count, hemoglobin, direct and indirect bilirubin, total bilirubin, lactate dehydrogenase) and inflammation markers (leukocytes and ultra-sensitive C-reactive protein) were analyzed. A linear regression model was used to test the associations between the variables. Most patients presented selenium deficiency and low selenium consumption. Linear regression analysis showed that selenium is the main determinant of hemolysis among the antioxidant nutrients analyzed. Thus, data from this study suggest that the nutritional care protocols for patients with SCD should include dietary sources of selenium in order to reduce the risk of hemolysis.

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“…In this sense, both the child and the adolescent affected by the disease, as well as their family caregivers, are faced with a situation marked by a chronic stress linked to the disease, which extends throughout the treatment and permeates their daily lives (Figueiró & Ribeiro, 2017;Gomes et al, 2019;Jesus, Konstantyner, Lobo, & Braga, 2018;Rodrigues, Araújo, & Melo, 2010;Santos, Damião, Fonseca, Rodrigues, & Aguiar, 2019); being indicated that intervention proposals are directed both to the child (Campelo et al, 2018;Oliveira, Enumo, & Paula, 2017) and to the family (Caprini, 2019;Figueiredo, Moreira, Mota, Oliveira, & Gomes, 2019).…”

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confidence: 99%

The psychological impact on family caregivers of children and adolescents with sickle cell anemia

Caprini

Motta

2021

Estud. psicol. (Campinas)

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Sickle cell anemia represents an aversive context, placing the family in a situation of vulnerability. This study investigated the psychological impact of sickle cell anemia on family caregivers of children and adolescents with this disease. A research with a quantitative approach followed by a survey was carried out, with a non-probabilistic sample of 100 caregivers who answered the instruments for measuring family functioning, disease-related stress, coping, anxiety, and depression. Clinical and sociodemographic characteristics were obtained from medical records and specific protocols. Caregivers of children with late diagnosis presented high disengaged coping scores, and minimum depression; early diagnosis was associated with mild depression. Family functioning domain scores were lower in families with younger children. Regression analyses showed that primary control coping indicates lower depression scores, and involuntaryengagement is a predictor of depression/anxiety. This study contributes to the understanding of the relationship between psychological, clinical, and sociodemographic variables in the context of sickle cell anemia.

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Food insecurity and social support in families of children with sickle-cell disease

Abstract: Considering the positive effects of social support on IA, public policies should be encouraged to assure food and nutritional security and social assistance for care for people with DF. Also, social support groups for people with DF should be strengthened.

Cited by 14 publications

References 19 publications

Fear of COVID-19 Higher among Food-Insecure Households: A Model-Based Study, Mediated by Perceived Stress among Iranian Populations

Fear of COVID-19 Higher among Food-Insecure Households: A Model-Based Study, Mediated by Perceived Stress among Iranian Populations

Selenium Status and Hemolysis in Sickle Cell Disease Patients

The psychological impact on family caregivers of children and adolescents with sickle cell anemia

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