Aims and objectives: To explore and describe the caregiving experiences of Chinese stroke caregivers.Background: Previous research has indicated that culture can have a significant impact on the stroke caregiving experience. Moreover, scant research exists on stroke caregivers' experience within the Chinese culture.Design: A qualitative descriptive design was used.Methods: In-depth, semistructured interviews were conducted with 25 family caregivers of stroke survivors. The interviews were audiotaped, transcribed and analysed. Content analysis was also performed. Cultural and religious backgrounds were found to influence Chinese stroke caregivers' experience, coping strategies and self-sacrifice behaviour in idiosyncratic ways.Relevance to clinical practice: Research on the practice of culture can serve as a basis for the formulation of specific policies and effective interventions for supporting stroke caregivers of different cultural backgrounds.
(1) Background: Although the research on benefit finding (BF) in China has increased in recent years, it remains in its infancy. Few previous studies have focused on early-stage cancer patients. Therefore, this research study aimed to explore BF and its influencing factors for early-stage cancer patients in China. (2) Methods: From April to August 2019, 319 patients with early-stage cancer in the treatment period were selected by the convenience sampling method and evaluated using the Benefit Finding of Cancer Patients Scale-Chinese (BFS-C), Perceived Social Support Scale (PSSS), and Medical Coping Modes Questionnaire (MCMQ). (3) Results: The mean BF score was 47.57 (SD = 12.26). The results of the correlation analysis show that benefit finding was positively correlated with social support, but negatively correlated with acceptance-resignation. In addition, social support was negatively correlated with avoidance and acceptance-resignation. The results of the multiple linear regression indicate that the variables of self-assessment of disease severity, exercise time, coping mode (acceptance-resignation), and social support, affect BF. Finally, social support was shown to exert an intermediary effect on acceptance-resignation and BF. (4) Conclusions: In this study, the score of BF of patients with early-stage cancer was low. Medical staff should be more aware of the health behavior of patients with early-stage cancer, guide them to actively face the disease, and fully mobilize the social support of patients’ friends and family, so as to help patients increase their disease BF.
Despite the promising results, there is still a need to improve the support for patients affected by VCIND requiring rehabilitation.
IntroductionEvidence has shown that stroke exercise rehabilitation is the most effective way to improve disease prognosis, but home exercise adherence in elderly patients with stroke is low due to they are more likely to have movement disorders, cognitive disorders, mental disorders, etc. Currently, most studies on exercise adherence in elderly patients with stroke are quantitative, and there is a lack of qualitative studies from the perspective of patients, caregivers, and medical staff. Considering the importance of home exercise adherence in elderly patients with stroke, the present study aimed to explore the influencing factors of home exercise adherence in them and summarize the potential ways to improve it.MethodsFrom October to December 2022, 9 medical staff, 12 elderly patients with stroke and 7 caregivers from a level A tertiary hospital and community health service center in Nanjing, Jiangsu Province were selected by the purposive sampling and were interviewed in a face-to-face semi-structured way. The data were analyzed and summarized by the phenomenological analysis of Colaizzi’s method.ResultsThe influencing factors of home exercise adherence in elderly patients with stroke can be summarized into 3 themes and 8 subthemes. These were individual factors (physical impairment, exercise self-efficacy, and depression), family factors (caregiving ability and emotional support); and stroke rehabilitation environment (exercise prescription, monitoring and feedback, and organizational policy).ConclusionHome exercise adherence in elderly patients with stroke was influenced by many factors. Medical staff should assess the patient’s physical function and depression, establish a multi-support system, formulate personalized exercise prescription, pay attention to the monitoring and feedback of home-based exercise rehabilitation, and improve the home-based rehabilitation model for stroke, so as to improve the home exercise adherence in elderly patients with stroke and promote the best rehabilitation effect.
Introduction: In China, the estimated number of stroke survivors is 22.5 million, of which 78% need home care. It has been indicated that culture could play a major role on the stroke caregiving experiences. Understanding stroke caregivers’ coping and adaptation within Chinese culture is needed. Objective: To explore how Chinese culture influences the coping and adaptation to stroke caregiving among stroke caregivers. Methods: In this qualitative descriptive study, 25 stroke caregivers (age 52±15.6, 60% female, 58% children-caregivers, 40% spouse-caregivers) were recruited from an 1800-bed regional hospital in China. Data were collected through individual, semi-structured interviews. Qualitative content analysis was performed. Member checking, triangulation of the data and peer debriefing were used to achieve trustworthiness. Results: Three themes emerged from the interviews reflecting the influence of Chinese culture on stroke caregiving: (1) Caregiving role adaptation. Confucianism, which emphasizes duties and responsibilities profoundly influences Chinese world views. Chinese caregivers accepted caregiving for the sick family member as an expected part of life and caregiving is a culturally prescribed obligation. (2) Emotional coping strategies. The emotional coping strategies adopted by caregivers including relying on religion and discussing their feeling with families. Fatalistic appraisal has been described as an emotional coping strategy and Chinese caregivers reported cognitive appraisal of belief system involving ‘ Ming ’ (fate) to help them adapt the caregiving reality. (3) Passive help seeking attitude and behaviors. Chinese caregivers identified self-tolerance and traditional belief of ‘ Ren ’(tolerance)as a negative coping. Chinese caregivers did not actively seek professional/ community help and reluctant to turn to their families and friends for support even though they felt very helpless and isolated. Conclusions: An underlying coping and adaptation of undertaking stroke caregiving within Chinese culture is highlighted in our findings. Researchers and health care professionals who plan to develop a support intervention for Chinese stroke caregivers need to put culture in context.
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