The influence of Chinese culture on family caregivers of stroke survivors: A qualitative study

Qiu, Xichenhui; Sit, Janet W H; Koo, Fung Kuen

doi:10.1111/jocn.13947

Cited by 107 publications

(136 citation statements)

References 47 publications

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“…Our findings indicate various levels and forms of family involvement in the process of body donation: some registered donors did not communicate with family members about their body donation at all, but some bereaved family members put a lot of effort into implementing the body donation decisions made by their deceased family members. Despite the variance, part of our findings suggest that their intention is still on valuing the importance of family relationships, which is consistent with the literature highlighting the importance of family obligations and self‐sacrifice for family members in the Chinese cultures (Qiu, Sit, & Koo, ; Shek, ). For example, in order to avoid conflicts with family members, registered donors did not disclose their decisions to their elderly parents, who are likely to object to their decisions.…”

Section: Discussionsupporting

confidence: 89%

Understanding family involvement in body donation in Hong Kong: A qualitative study of registered donors and bereaved family members

Chan

Wong

et al. 2019

Health Soc Care Community

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Encouraging the public to donate their bodies after death is crucial for anatomy teaching in medical education. In Hong Kong, success may be affected if family members override the registered donors' wish after death, and thus the role of family in body donation is worth more attention. This study aims to examine how family is involved in the process of body donation. A qualitative study was conducted in Hong Kong. Registered donors and bereaved family members were recruited from a body donation scheme organised by a medical school. In‐depth interviews were done and thematic analysis was conducted. Five themes were found: (a) decision‐making: individual versus family; (b) family conflicts: avoidance versus confrontation; (c) trust in family members: discuss versus do not discuss; (d) family members' struggles in implementation; (e) informed end‐of‐life planning. Findings revealed that donors may not necessarily discuss their decisions about body donation with family members directly. Instead, it was found that family was involved in the body donation process in different ways and to different extents. For example, donors considered family members' views about body donation, but they chose not to involve them in the discussions if they expected objections, in order to avoid conflicts. Bereaved family members considered understanding family members' body donation decisions prior to death important, and they shared the implications of body donation for funeral arrangements and the grieving process. Findings help to understand the role of the family in body donation, especially in the Hong Kong Chinese context, and may give insights into how the body donation scheme could be enhanced to facilitate better communication between registered donors and family members as well as to support bereaved family members in implementing the decision to donate.

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Section: Discussionsupporting

confidence: 89%

Understanding family involvement in body donation in Hong Kong: A qualitative study of registered donors and bereaved family members

Chan

Wong

et al. 2019

Health Soc Care Community

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“…This is consistent with findings from Hayashi et al (), who identified that 67.4% of caregivers of stroke survivors were women. In Japan and China, Kaneko and Kanekawa () and Qiu, Sit, and Koo () found that 74.5% and 76% of caregivers of stroke survivors were females. This could be explained by the social structure in many Asian countries, where the social and cultural expectation of caring roles require the women to be responsible for ill family members (Hoang, ; Qiu et al, ).…”

Section: Discussionmentioning

confidence: 99%

Factors predicting the health status of caregivers of stroke survivors: A cross‐sectional study

Long

Pinyopasakul

Pongthavornkamol

et al. 2019

Nursing & Health Sciences

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In this cross‐sectional study, we aimed to determine factors influencing the health status of caregivers of stroke survivors. A total of 126 caregivers of stroke survivors were recruited from three outpatient clinics in Thai Nguyen National General Hospital, Vietnam, from November 2016 to March 2017. Data were collected through six instruments: a demographic questionnaire, the Modified Barthel Index, the Zarit Burden Interview Scale, the Multidimensional Scale of Perceived Social Support, the Family Caregiver Conflict Scale, and the Short Form‐36 Health Survey. Stepwise multiple regression was employed to analyze the data. Caregiver burden, patient's functional status, caregiver's age, and social support together explained 80.3% of the variations in health status of caregivers of stroke survivors. Caregiver burden was the strongest predictor of health status of these caregivers. Based on the findings, nurses should take caregiver's age, functional status of stroke survivors, caregiver burden, and social support into consideration when preparing family caregivers to provide care for stroke survivors. To reduce perceived caregiver burden, family support interventions should be embraced to enhance health status of the caregivers of stroke survivors.

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“…Most patients' crucial need encompassed of feelings of being independent to lead a quality of life, reducing the severity and prevent recurrent stroke [13][14][15][16]. To be able to achieve these aim, the patient would utmostly require confidence and self-efficacy.…”

Section: Methodsmentioning

confidence: 99%

An Intervention to Promote Medication Understanding and Use Self-Efficacy: Design of Video Narratives for Aging Patients at Risk of Recurrent Stroke (Preprint)

Appalasamy¹,

Joseph²,

Ramaiah³

et al. 2018

Preprint

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Background and Objectives: The debilitating effects of recurrent stroke among aging patients have urged researchers to explore medication adherence among these patients. Video narratives built upon Health Belief Model (HBM) constructs have displayed potential impact on medication adherence adding a plus-point to patient education efforts. However, its effect on medication understanding and use self-efficacy have not been tested. The researchers believed that culturally sensitive video narratives which catered specific niche would reveal a personalized impact on medication adherence. This study aimed to develop and validate video narratives for this purpose.

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The influence of Chinese culture on family caregivers of stroke survivors: A qualitative study

Cited by 107 publications

References 47 publications

Understanding family involvement in body donation in Hong Kong: A qualitative study of registered donors and bereaved family members

Understanding family involvement in body donation in Hong Kong: A qualitative study of registered donors and bereaved family members

Factors predicting the health status of caregivers of stroke survivors: A cross‐sectional study

An Intervention to Promote Medication Understanding and Use Self-Efficacy: Design of Video Narratives for Aging Patients at Risk of Recurrent Stroke (Preprint)

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