As evolving passive sensing technology presents new possibilities for health and wellbeing, additional research must address methodological, clinical integration, and privacy issues. Doing so depends on interdisciplinary collaboration between informatics and clinical experts.
Human factors and ergonomics (HFE) and related approaches can be used to
enhance research and development of consumer-facing health IT systems, including
technologies supporting the needs of people with chronic disease. We describe a
multiphase HFE study of health IT supporting self-care of chronic heart failure
by older adults. The study was based on HFE frameworks of “patient
work” and incorporated the three broad phases of user-centered design:
study or analysis; design; and evaluation. In the study phase, data from
observations, interviews, surveys, and other methods were analyzed to identify
gaps in and requirements for supporting heart failure self-care. The design
phase applied findings from the study phase throughout an iterative process,
culminating in the design of the Engage application, a product intended for
continuous use over 30 days to stimulate self-care engagement, behavior, and
knowledge. During the evaluation phase, we identified a variety of usability
issues through expert heuristic evaluation and laboratory-based usability
testing. We discuss the implications of our findings regarding heart failure
self-care in older adults and the methodological challenges of rapid
translational field research and development in this domain.
Background
User-centered design (UCD) is a powerful framework for creating useful, easy-to-use, and satisfying mobile health (mHealth) apps. However, the literature seldom reports the practical challenges of implementing UCD, particularly in the field of mHealth.
Objective
This study aims to characterize the practical challenges encountered and propose strategies when implementing UCD for mHealth.
Methods
Our multidisciplinary team implemented a UCD process to design and evaluate a mobile app for older adults with heart failure. During and after this process, we documented the challenges the team encountered and the strategies they used or considered using to address those challenges.
Results
We identified 12 challenges, 3 about UCD as a whole and 9 across the UCD stages of formative research, design, and evaluation. Challenges included the timing of stakeholder involvement, overcoming designers’ assumptions, adapting methods to end users, and managing heterogeneity among stakeholders. To address these challenges, practical recommendations are provided to UCD researchers and practitioners.
Conclusions
UCD is a gold standard approach that is increasingly adopted for mHealth projects. Although UCD methods are well-described and easily accessible, practical challenges and strategies for implementing them are underreported. To improve the implementation of UCD for mHealth, we must tell and learn from these traditionally untold stories.
Background: Every day, older adults living with heart failure make decisions regarding their health that may ultimately affect their disease trajectory. Experts describe these decisions as instances of naturalistic decision making influenced by the surrounding social and physical environment and involving shifting goals, high stakes, and the involvement of others. Objective: This study applied a naturalistic decision-making approach to better understand everyday decision making by older adults with heart failure. Methods: We present a cross-sectional qualitative field research study using a naturalistic decision-making conceptual model and critical incident technique to study health-related decision making. The study recruited 24 older adults with heart failure and 14 of their accompanying support persons from an ambulatory cardiology center. Critical incident interviews were performed and qualitatively analyzed to understand in depth how individuals made everyday health-related decisions. Results: White, male (66.7%), older adults' decision making accorded with a preliminary conceptual model of naturalistic decision making occurring in phases of monitoring, interpreting, and acting, both independently and in sequence, for various decisions. Analyses also uncovered that there are barriers and strategies affecting the performance of these phases, other actors can play important roles, and health decisions are made in the context of personal priorities, values, and emotions. Conclusions: Study findings lead to an expanded conceptual model of naturalistic decision making by older adults with heart failure. In turn, the model bears implications for future research and the design of interventions grounded in the realities of everyday decision making.
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