Introduction: Music therapy offers an effective avenue for simultaneously addressing goals of upper limb function and wellbeing post stroke. However, there are currently no trials of therapeutic music-making interventions for stroke survivors with a very weak upper limb (Grade 0-3 level of strength). This randomised controlled trial will examine the effect of Functional Electrical Stimulation (FES) with iPad-based music therapy on upper limb recovery and wellbeing outcomes for stroke survivors.Method: This convergent mixed methods study will take place at seven participating hospitals in Sydney, Australia. Forty participants will be randomly allocated to usual care only or usual care plus daily FES+iPad-based music therapy for four weeks (20 sessions). Standardised assessments of the paretic upper limb and self-report wellbeing measures will be administered at three time points (pre-and postintervention, and at three months follow up) by a blinded assessor. All participants will be interviewed about their perceptions of the way the treatment they received (usual care only or usual care plus daily FES+iPad-based music therapy) supported their recovery.Results: Ethics approval has been granted and data collection has commenced.
I have always been passionate about my work and research in stroke rehabilitation but never truly understood where this stemmed from. Drawing upon accessible music making, my PhD research developed and trialed a novel approach for post-stroke rehabilitation: an intervention created to simultaneously address arm/hand function and well-being outcomes. The focus of the research was to empower stroke survivors with limited to no movement in their arm/hand, as this subset of survivors are generally overlooked by the medical system (due to a projected poor prognosis of recovery). In 2020, during my engagement with the PhD research, the Black Lives Matter movement was reignited in response to the death of George Floyd. As a Woman of Colour, this movement deeply impacted me and led to reflection about my personal experiences of adversity. Through deep reflection, I started to understand the impact of my adverse experiences on my passion for advocacy in stroke rehabilitation. This paper explores the impact of my complex identity on my current approach to music therapy research and advocacy in stroke rehabilitation. Positioning myself as an Australian of Indian origin, I share personal reflections about my journey to research with the intent of highlighting the importance of visibility and change in music therapy research and practice.
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