Background: Sickle Cell Anemia (SCA) is a chronic hematologic disease associated with many physical, psychological, and social problems that can affect on quality of life. Self-learning guidelines has a great effect in improving quality of life and health status of adolescent with Sickle Cell Anemia. Aim of the study was to evaluate the effect of self-learning guidelines on quality of life and self-reported practice of adolescents with sickle cell anemia. Design: A quasi-experimental study. Settings: Inpatient and outpatient of pediatric hematology departments at Benha University and Benha Specialized Pediatric Hospitals. Study subjects: A purposive sample of 50 adolescents diagnosed with sickle cell anemia in the previously mentioned settings was included in the study throughout a period of six months. Data collection tools: A Structured interviewing questionnaire sheet, self-care reported practices and pediatric quality of life scale. Results: There was a statistical significant difference between total knowledge and total self-reported practices of the studied adolescents regarding to sickle cell anemia post and follow up self-learning guidelines as compared to pre self-learning guidelines implementation. There was a statistical significant difference between the total score of quality of life for the studied adolescents regarding to sickle cell anemia at post and follow up compared to pre selflearning guidelines implementation. Conclusion: Self-learning guidelines implementation was effective in improving the quality of life of adolescents with sickle cell anemia through improving their knowledge and self-care reported practices. Recommendations: In service training program for adolescents with the sickle cell anemia to enhance their quality of life.Conducting premarital screening programs for raising awareness of children and adolescents regarding the nature hereditary of SCA& associated complication.
Background: Nurses in Neonatal Intensive Care Unit operate in a challenging environment with the demands of care of the infant and providing family-centered care. Aim of the Study: The present study aimed to assess nurses' knowledge and practice regarding to fever management of neonates. Study Design: A descriptive exploratory study design was utilized. Setting: The study was carried out at the neonatal intensive care units in Benisuef General Hospital, Benisuef Health Insurance Hospital affiliated to Ministry of Health and Ain Shams (Children's Hospital) affiliated to Ain shams University Hospitals. Subjects: A convenient sample of 50 nurses providing care for neonates at the previously mentioned settings were selected in the current study, regardless their age, years of experiences or qualifications. Tools of the Study: Involved nurses' structured interview questionnaire to assess the study sample's demographic characteristics and their knowledge regarding management of fever in neonates and nurses' observational checklist to assess nurses' practice toward fever management in neonates. Results: It was clear that the majority of the studied nurses had unsatisfactory knowledge level and nearly two thirds of them, were incompetent in practice regarding fever management of neonates. Also, there was a statistically significant difference between total nurses' knowledge and their total practice. Conclusion: It can be concluded that there was unsatisfactory level of nurses' knowledge and practice regarding fever management of neonates. Recommendations: Raising awareness of nurses regarding fever management of neonates and improving their knowledge and practices through continuous training programs.
Chemotherapy-induced nausea and vomiting (CINV) is one of the most common and feared side effects that occur in pediatric patients undergoing chemotherapy. CINV is an issue that impacts the daily activities, treatment compliance, and overall health care costs for many children. Despite the development and administration of multiple antiemetic medications, CINV affects up to 40% of pediatric patients. Thus, there is an urgent need to develop effective and safe alternative therapies for treating CINV in children (Gupta et al., 2021).
Contents: Families of children with congenital heart disease face frequent healthcare encounters due to their child's care trajectory. With an emphasis on assuring caring in healthcare, it is necessary to understand parents’ perceptions of healthcare providers’ actions when their child undergoes heart surgery. Aim: This study aimed to evaluate the effect of family-centered care intervention on maternal coping and participation in care for their children with congenital heart diseases. Methods: A quasi-experimental design was used. The study was carried out at the pediatric inpatient department in Cardiovascular Hospital, affiliated to Ain Shams University Hospitals. A purposive sample of 50 children undergoing heart surgery and their accompanying mothers. The study was used a structured interview questionnaire, the family-centered care scale, the index of mothers' participation, mothers’ practice observational checklists, and the coping process scale to collect the study’s data. Results: The study reveals a statistically significant difference in the mothers' total coping pattern after family-centered care intervention compared to before intervention at p=0.000. A statistically significant difference was also revealed regarding the total mothers' participation in the care of their children with congenital heart disease at p=0.000. There was a strong positive correlation between total mothers' coping patterns, participation, and mothers' total actual practices regarding their children's care suffering from congenital heart diseases after the intervention. Conclusion: The family-centered care intervention effectively improved mothers' coping patterns and participation in care for their children with congenital heart diseases. Emphasizing the importance of family (usually the mother) participation in care for their children with congenital heart diseases during hospitalization for heart surgery. Designing and carrying out educational programs for pediatric nurses to promote family-centered care in clinical practice.
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