Objective: To describe then experience of implementing routine teleconsultations in respiratory physiotherapy at a reference center for Cystic Fibrosis (CF) in Rio de Janeiro / Brazil, during the COVID-19 pandemic. Methods: Cross-sectional, descriptive, study with children and adolescents with CF. The sample was divided between participants and those who did not participate in the teleconsultations. The teleconsultations were multidisciplinary and carried out by videoconference or telephone, depending on the patient’s availability. The sequence of care provided by the team was organized together with the professionals, so that everyone could carry out individual and sequential teleconsultations. Physiotherapy appointments were divided into two segments: teleconsultation and telemonitoring. Demographic and clinical data were collected. Results: Among the 184 patients assisted in the center, 153 (83.2%) participated in the teleservices and, of these, 33 (21.6%) required telemonitoring; 31 (16.8%) patients did not participate in the teleconsultations for not answering the calls. There was no statistical difference between the group that participated or not in teleservices, nor among those who participated in teleconsultations and telemonitoring. The mean age of the studied population was 7.0±0.4 years. Regarding the CFTR gene mutation, 64.7% had at least one F508del allele and 30.9% of the sample had no pathogens in the sputum test. Conclusions: Most participants with CF participated in teleconsultations, highlighting the importance of remote assistance activities during the COVID-19 pandemic period. This strategy was considered as positive, and it may become permanent in the care of patients with CF.
Background: Respiratory therapy is a part of the treatment of patients with cystic fibrosis (CF). However, there is no information about the main factors influencing the recommendation of the use of different techniques or devices by physical therapists from different specialized centers.
ABSTRACT Objective: To verify the association between quality of life, functional capacity and clinical and nutritional status in children and adolescents with cystic fibrosis (CF). Methods: Cross-sectional study, including patients from eight to 18 years old with CF. Quality of life, functional capacity, nutritional status and clinical status were evaluated with the Cystic Fibrosis Questionnaire; the 6-minute walk test (6MWT) and manual gripping force (MGF); the height percentiles for age and body mass index for age and respiratory function test, respectively. Pearson and Spearman correlation tests and logistic regression were used to analyze the data. Results: A total of 45 patients, 13.4±0.5 years old, 60% female, 60% colonized by Pseudomonas aeruginosa and 57.8% with at least one F508del mutation participated in the study. When assessing the perception of quality of life, the weight domain reached the lowest values, and the digestive domain, the highest. In the pulmonary function test, the forced expiratory volume of the first second was 77.3±3.3% and the 6MWT and MGF presented values within the normal range. There was an association between quality of life and functional capacity, nutritional status and clinical status of CF patients. Conclusions: The study participants had good clinical conditions and satisfactory values of functional capacity and quality of life. The findings reinforce that the assessment of quality of life may be important for clinical practice in the management of treatment.
OBJETIVO: Verificar a associação entre as características clínicas, nutricionais e funcionais e a qualidade de vida, longitudinalmente, em crianças e adolescentes com fibrose cística.MÉTODOS: Observou-se medidas relacionadas às características demográficas (sexo e idade), clínicas (prova de função pulmonar e tipo de mutação genética), nutricionais (peso, estatura, índice de massa corporal para a idade e estatura para a idade), capacidade funcional (distância percorrida no teste de caminhada dos 6 minutos e força de preensão manual obtida na dinamometria) e de qualidade de vida através do questionário de qualidade de vida em fibrose cística. Realizou-se um modelo de regressão linear para avaliar os fatores associados com as variações percentuais dos domínios do questionário de qualidade de vida em fibrose cística comuns a todas as faixas etárias, considerando a variação percentual destes domínios no período de 2017 a 2019.RESULTADOS: A capacidade funcional relacionou-se com os domínios físico, social, alimentação e tratamento apresentando uma relação diretamente proporcional. Além disso, a presença de colonização bacteriana influenciou negativamente o domínio respiratório.CONCLUSÕES: As alterações nas características clínicas e funcionais associaram-se às mudanças nos domínios da qualidade de vida de crianças e de adolescentes com fibrose cística ao longo de dois anos.
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