PurposeThe aim of this paper is to provide a brief overview of the evolution of a new e‐research paradigm and to outline key projects and developments in Europe, North America, Canada and Australia. The article also provides a detailed summary of the Dataset Acquisition, Accessibility and Annotation e‐Research Technology (DART) project.Design/methodology/approachA review of relevant government reports, documents and general literature was conducted.FindingsProjects currently being conducted in Europe, the USA, Canada and Australia are part of an international movement that aims to use modern ICTs to enhance e‐research. The DART project is a significant part of this movement as it has adopted a “whole process” approach to e‐research, and provides a platform for the examination of the technical, legal and policy issues that arise in the new e‐research environment.Originality/valueProvides an overview of current projects that concern the development of e‐research, with a particular focus on Australian research and the DART project.
An explicit distinction between shared electronic health records and those at the point of care is required when referring to electronic health records. The former raises particular privacy issues discussed in this paper in relation to Health Connect and the Draft Australian National Health Privacy Code. In addition to a number of revisions to the code, the analysis recommends that related legislation such as archival and freedom of information law should be reconciled as much as possible within the code, so that a long-term view of the uses, retention and preservation of the longitudinal electronic health record is balanced with privacy, confidentiality and public interest.
Background. In Australia most chronic disease management is funded by Medicare Australia through General Practitioner Management Plans (GPMPs) and Team Care Arrangements (TCAs). Identified barriers may be reduced effectively using a broadband-based network known as the Chronic Disease Management Service (CDMS).Aims. To measure the uptake and adherence to CDMS, test CDMS, and assess the adherence of health providers and patients to GPMPs and TCAs generated through CDMS.Methods. A single cohort before and after study.Results. GPMPs and TCAs increased. There was no change to prescribed medicines or psychological quality of life. Attendance at allied health professionals increased, but decreased at pharmacies. Overall satisfaction with CDMS was high among GPs, allied health professionals, and patients.Conclusion. This study demonstrates proof of concept, but replication or continuation of the study is desirable to enable the impact of CDMS on diabetes outcomes to be determined.
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