A growing number of people with dementia, a simultaneous decline of professional caregivers, and changing family structures clearly illustrate the societal relevance of the question of how dementia care can be arranged and delivered in the future. The demand for innovative solutions especially to support family carers requires a deeper insight into their life situation and a focused perception of their needs. This article presents the main hypothesis that specific forms of social integration and participation based on an equal dialogue between family caregivers, the public, and policymakers is needed to achieve that. Therefore, the main point here is to give family caregivers of people with dementia a voice to learn how to better support them in caring as well as self-care. A learning process triggered by a dialogue might result in a higher level of community readiness to implement new forms of support or social innovations. The hypothesis will be supported by John Dewey’s theory of political and democratic learning and the model of transformative learning according to Jack Mezirow indicating that learning particularly succeeds in interpersonal communication. In this context, the Town-Hall Meeting method and its potential to promote interpersonal communication and reflexive learning is discussed. The article addresses an important debate, namely that of how dementia care and support of family carers can succeed. It also sets the direction for future empirical research as the Town-Hall Meeting method might be applicable for gerontological action and participatory research.
This study aimed to investigate factors affecting (1) women’s media use regarding health-related behaviors during pregnancy and lactation, (2) women’s preferences for media format, and (3) the content of media-based interventions on lifestyle-related risk factors during pregnancy and lactation. A cross-sectional observational multi-center study of pregnant and lactating women and women of childbearing age was carried out in 14 randomly selected obstetric and gynecologic care settings in the 12 most populated cities in Baden-Wuerttemberg, South-West Germany. Data from 219 surveyed women showed that older women, pregnant women, and lactating women have a higher probability of using media during pregnancy and lactation, respectively. The majority of women preferred a combination of analog and digital media-based interventions in gynecological (46.9%) and obstetric (47.1%) care settings and at home (73.0%). Women would like to see information brochures and flyers on health-related behaviors during pregnancy and lactation for use in gynecological and obstetric care settings, and for media use at home, they would like to have books. The probability of preferring the favored media formats in gynecological and obstetric care settings and at home were associated with pregnancy status, relationship status, socioeconomic status (SES), ethnicity, and health insurance status. About 80% of the surveyed women preferred media content regarding recommendations for a healthy lifestyle and healthy behavior during pregnancy and lactation. All of the independent variables were associated with the probability of preferring a specific media content. The SES was found to play a major role in the probability of preferring a specific media content, followed by pregnancy status, ethnicity, and health insurance status. The results from our study provide a basis for tailored preventive interventions in gynecological and obstetric care settings and for use at home. The results imply that a woman can be reached before conception, during pregnancy, or during lactation with preventive measures tailored to their requirements; however, acceptance may vary across personal attributes, such as SES, ethnicity, and others.
Zusammenfassung. Hintergrund: Die Verfügbarkeit von Unterstützungsangeboten für pflegende Angehörige von Menschen mit Demenz in der Kommune weist durch die Corona-Pandemie Defizite auf und birgt somit eine veränderte Versorgung der Pflegenden. Fragestellung: Es stellen sich die Fragen, welche Veränderungen der Versorgung pflegender Angehöriger von Menschen mit Demenz Pflegende wahrnehmen, wie Akteur_innen aus der Kommune diese Versorgungssituation während der Pandemie erleben und inwiefern die Wahrnehmung der Gruppen übereinstimmt bzw. sich unterscheidet. Methode: Die Datengrundlage bilden Rathausgespräche und Fokusgruppen aus 13 Kommunen Deutschlands. Hieran nahmen pflegende Angehörige von Menschen mit Demenz sowie Akteur_innen aus der Kommune teil. Die Datenanalyse erfolgte mittels qualitativer Inhaltsanalyse. Ergebnis: Nachteilige Veränderungen der Versorgung Pflegender zeigen sich z.B. durch den Wegfall von Betreuungsangeboten oder Angehörigengruppen. V.a. Akteur_innen nehmen vorteilhafte Veränderungen wahr, wie eine voranschreitende Digitalisierung oder verstärkte Nachbarschaftshilfe. Die Wahrnehmung der Veränderungen der Versorgungssituation unterscheidet sich in mehreren Subkategorien zwischen Pflegenden und Akteur_innen. Schlussfolgerung: Obwohl durch die Pandemie große Versorgungslücken entstanden sind, ergeben sich durch aufkommende Herausforderungen neue Möglichkeiten der Unterstützung wie digitale Angehörigengruppen. Zukünftig müssen Möglichkeiten geschaffen werden, um bereits entwickelte Interventionen so zu implementieren, dass die Zielgruppe diese in Anspruch nehmen kann.
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