RESUMENObjetivos: Los objetivos de este estudio son: 1) Comprender las razones y los motivos que impulsan a las personas con problemas de salud de baja complejidad (PSBC) para acudir, por cuenta propia y sin ser remitidos por su médico de cabecera (MC), al servicio de urgencias de un hospital general (SUH). 2) Conocer la percepción sobre el grado de gravedad y preocupación atribuidos por las personas a su problema de salud. 3) Determinar los factores que influyen en la decisión de acudir por cuenta propia al SUH. Metodología. Diseño: Estudio transversal a través de entrevista personal con cuestionario estructurado, mediante muestreo no probabilístico por cuotas. Contexto: SUH del Hospital Infanta Cristina de Parla, Madrid, España. Participantes: Se entrevistaron a pacientes seleccionados por los niveles IV y V de la Escala Española de Triaje, que acudieron por cuenta propia al SUH, de lunes a domingo, entre las 10:00
Evaluation of clinical genetic services is challenging due to the nature of their interventions. The Genetic Counseling Outcome Scale (GCOS-24), a patient-reported outcome measure, was developed to measure empowerment, an important patientreported outcome from genetic counseling. Previously, we translated and adapted GCOS-24 for use in Spain, but neither test-retest reliability nor structural and construct validity were assessed at that time. In the present study, we set out to test the reliability and validity of the Spanish adaptation of the GCOS-24 against already validated Spanish language measures of satisfaction with life, anxiety, and health locus of control. 880 patients/families who attended the genetics clinic were invited to participate in a online survey. 201 participants (23%) completed the four questionnaires at the first timepoint, and 59 of these (29%) completed GCOS-24 again the second timepoint, 2-4 weeks later. Test-retest reliability was confirmed, with no significant differences between responses to GCOS-24 at the first and second timepoints and good internal consistency. Convergent validity was confirmed between GCOS-24 and measures of satisfaction with life and anxiety but not with measures of health locus of control. For the structural and construct validation, an exploratory factor analysis was performed. The resulting factorial structure of GCOS-24 consists of 6 factors that accumulate 68% of the variance shared by the 21 items that remained in the model. We applied the factor structure of the three validated measures to the available data and analyzed the correlation between factors of GCOS-24 and the other scales. The results showed significant and consistent correlation with factors of the satisfaction with life and anxiety scales but no significant correlation with internal health locus of control. The use of the Spanish adaptation of GCOS-24 in other genetic clinics in Spain will help to validate it further. This study contributes to the international validation of GCOS-24 to evaluate the quality of genetic counseling in Europe.
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