This study is the largest population-based study to date to explore survival from pancreatic cancer among all age groups in a racially diverse population. Median survival was shorter than that reported from other series. Race/ethnicity did not have a significant effect on survival. However patients residing in poor neighborhoods were less likely to undergo resection and somewhat less likely to survive this disease.
This paper focuses on the notion of environmental citizenship in examining how black and minority ethnic groups (BME) in Britain talk about environmental “rights” alongside environmental responsibilities. This broader discursive context leads us to engage with two interpretations of sustainability promoting different policy and planning agendas—the environmental sustainability and just sustainability policy agendas—in understanding the multiple spaces of identity, power and agency in which BME communities respond to environmental issues in institutional and daily life. We conducted ten semi‐structured interviews with community key informants and ten focus groups with African‐Caribbean or Indian communities. We identified four environmental responsibility discourses in the participants’ talk, that were variously defined by issues of trust, social equity, off‐loading of responsibility and government intervention and that served to shift environmental responsibility away from the individual onto “institutional others”. We conclude by suggesting policy implications for the environmental and sustainability policy and planning community.
We centred the research gaze on the cultural and ethnic interpretations of environmental dis/ engagement among black and minority ethnic groups, which has been under-explored in the UK literature on public participation. We conducted focus groups with black and minority ethnic communities and in-depth interviews with community representatives and key actors facilitating sustainability policy. We identified from our analysis the sub-themes of a 'different mindset' and 'self-empowering spaces' that demonstrated the contextual, diverse and contested perceptions and experiences of agency, empowerment and disempowerment in environmental behaviours and initiatives. Our conclusions draw on the implications of our findings for the environmental and sustainability policy and planning community.a rea_970 88..95Is there more to environmental participation than meets the eye? 95
Background
Accurate information regarding race, ethnicity, and national origins is critical for identifying disparities in the cancer burden.
Objectives
To examine the use of a Spanish surname list to improve the quality of race-related information obtained from rapid case ascertainment (RCA) and to estimate the accuracy of race-related information obtained from cancer registry records collected by routine reporting.
Subjects
. Self-reported survey responses of 3,954 participants from California enrolled in the Cancer Care Outcomes Research and Surveillance Consortium (CanCORS).
Measures
Sensitivity, specificity, positive predictive value (PPV), and percent agreement. We employed logistic regression to identify predictors of under-reporting and over-reporting of a race/ethnicity.
Results
Use of the Spanish surname list increased the sensitivity of RCA for Latino ethnicity from 37% to 83%. Sensitivity for cancer registry records collected by routine reporting was ≥95% for Whites, Blacks, and Asians, and specificity was high for all groups (86–100%). However, patterns of misclassification by race/ethnicity were found that could lead to biased cancer statistics for specific race/ethnicities. Discordance between self- and registry-reported race/ethnicity was more likely for women, Latinos, and Asians.
Conclusion
Methods to improve race and ethnicity data, such as using Spanish surnames in RCA and instituting data collection guidelines for hospitals, are needed to ensure minorities are accurately represented in clinical and epidemiological research.
This article focuses on the results obtained from the quantitative surveys conducted for the independent review into creating an open and honest report culture in the NHS. It examines the management of whistleblowing and discusses the research findings in the light of the recommendations made by Sir Robert Francis QC in his 'Freedom to Speak Up' report published in February 2015. The authors believe that the principles and actions set out in this report and the detailed Annexe describing various aspects of good practice are generally applicable in both the public and private sectors. In so far as it provides evidence that those who follow their employer's procedure when raising a concern have better outcomes than others, the authors conclude that the quantitative research for Francis is consistent with other findings that power resources and institutional arrangements can be critical to the whistleblowing process.
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