The high incidence of Type 1 Diabetes Mellitus (DM1) increases the likelihood of teachers having students with this illness in their classrooms. The objective of this study is to investigate the needs of students with DM1 during the school day from the perspective of both teachers and parents. A mixed methods study was designed and a questionnaire was administered to practicing teachers in Pre-primary Education, Primary Education, Compulsory Secondary Education, and Further Education, as well as Vocational Education within both the province and the city of Burgos (Castile and Leon, Spain) who may have students with DM1. Semi-structured interviews were also conducted with mothers and fathers, members of the Burgos Diabetics Association (ASDIBUR). In the questionnaires administered to the teaching staff, 54.8% affirmed that they knew of students with DM1 at their centers. Of those questioned, 51.2% affirmed that they knew of the existence of action protocols on DM, and 45.2% declared that they had received specialized information on the illness; 92.8% believed that there was no discrimination at their center towards students with DM, and 82.8% thought that the educational center raised no objections to students with DM departing on trips during the school year. In their interviews, both family and teachers assessed the material and human resources as insufficient and called for the presence of school nurses at the educational centers. It is important to raise the awareness of the educational community about the needs of students with DM1 and to provide guidelines on emergency situations to teachers and staff at the centers.
El síndrome de Mayer-Rokitansky-Küster-Hauser (MRKH), comúnmente denominado síndrome de Rokitansky, es una rara anomalía congénita del tracto genital caracterizada por la ausencia de útero y vagina en mujeres fenotípicamente normales. Se considera probable que responda a una etiología poligénica multifactorial que produce una inadecuada fusión de los conductos de Müller durante el desarrollo embrionario. Se puede distinguir entre síndrome MRKH tipo I, con una aplasia únicamente vaginal y tipo II, asociado a otras malformaciones del sistema renal y esquelético. Esta anomalía anatómica implica dificultades en las relaciones sexuales, infertilidad, carga emocional, cuestiones de identidad, confusión en los roles sociales y sexuales y creencias negativas sobre sí misma. El impacto psicosocial que el diagnóstico del síndrome conlleva, requiere de apoyo psicológico, farmacológico y de sistemas de orientación tanto para la mujer como para su familia debido a las repercusiones en múltiples dimensiones de la vida de las afectadas. Se presenta una investigación utilizando como referente metodológico la historia de vida, con el objetivo de comprender la vivencia de una mujer con MRKH tipo II integrando aquellos elementos del pasado que se valoraron relevantes para describir, entender o representar su situación actual en relación a sus expectativas vitales futuras. Se consideró el método biográfico-narrativo como el más adecuado para llevar a cabo el estudio. Para la redacción de la narrativa se realizaron entrevistas semiestructuradas y se analizaron relatos autobiográficos e informes médicos y escolares. El análisis siguió la ordenación y clasificación de la información por unidades de significado para proceder a su interpretación. Los resultados confirman el impacto en la mujer con una fuerte repercusión en el desarrollo sexual, lo que implica seguir investigando en la inacabada tarea de la educación sexual para el acceso universal a una educación integral de la sexualidad.
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