BSTRACT BSTRACT Objectives: to identify the profile of the caregivers of terminally ill patient, to inquire the activities, changes and difficulties. The researchers applied a questionnaire. From all the 53 caregivers, 48 were female. 92% of the caregivers were relative to the patient. Despite of the financial problems, their relationship between caregiver and patient improved. The hygiene cares, feeding, medication were responsibility of the caregiver. The activities developed increased their amount of job, negative physical and psychical repercussions appeared. 60% of the caregivers answered that the most convenient place of the patient's death was the hospital, 40% chose home. There is a distinction between the routine of care and the death of the patient; the caregivers in fact take care of life. Descriptors Descriptors Descriptors Descriptors Descriptors: Bioethics; Terminally ill; Quality of life; Hospice care; Caregivers. RESUMEN RESUMEN RESUMEN RESUMEN RESUMEN Objetivos: identificar el perfil de los cuidadores del enfermo terminal, investigar las actividades, los cambios y las dificultades que ocurrieron. Los investigadores aplicaran un cuestionario. De los 53 cuidadores, 48 eran mujeres. 92% tenían algún grado de parentesco con el paciente. A pesar de los problemas financieros, los cuidadores afirmaron que su relación ha mejorado. Los cuidados de higiene, alimentación, medicación son de responsabilidad de los cuidadores. Aumentaron la sobrecarga y, surgieron repercusiones negativas de naturaleza física y psíquica. 60% de los cuidadores dijeron que el lugar más conveniente de la muerte era el hospital y 40% eligieron hogar. Existe una distinción entre los cuidados con el paciente y el proceso de muerte, los cuidadores cuidan de facto de la vida. 9 9 jan-fev jan-fev jan-fev jan-fev jan-fev; 6

In Brazilian medical education and in the general teaching of bioethics in Brazil, there is a recurrent debate about the best way to teach ethics and/or bioethics, and even about whether it is possible to do so. In part this is due to the growing concern in society about the necessity of physicians to be both technically and morally competent. The teaching of bioethics is distinguished from medical ethics in that it focuses on the rights and duties of the doctor and also by its multi-and inter-disciplinary characteristics. The aim of the present study was to identify whether bioethics as a specific discipline is included in the curriculum of Brazilian undergraduate medical courses, and if so, how it is taught and what are its contents. The study found that the number of dedicated bioethics classes in medical courses has increased, and that the most frequently addressed issues are: an introduction to bioethics and principles of bioethics, the physician-patient relationship, abortion and euthanasia. Keywords: Medical education. Bioethics. Higher education. Moral development. ResumoEnsino de bioética nas faculdades de medicina no Brasil É recorrente, no âmbito da educação médica brasileira e no ensino da bioética de modo geral, o debate sobre a melhor maneira de ensinar ética e/ou bioética. Parte disso decorre da crescente preocupação na sociedade de contar com médicos técnica e moralmente competentes. O ensino de bioética distingue-se do ensino de ética médica, já que esse último está centrado nos direitos e deveres do médico, enquanto o primeiro tem seu foco na multi, inter e transdisciplinaridade. O objetivo deste trabalho é identificar se a disciplina de bioética encontra-se na matriz curricular, como é ministrada e quais são os conteúdos trabalhados nos cursos de medicina do Brasil. Observou-se aumento do número de oferta de disciplinas autônomas de bioética nos cursos médicos e que os temas mais abordados pelas disciplinas são introdução à bioética e princípios da bioética, relação médico-paciente, aborto e eutanásia. Palavras-chave: Educação médica. Bioética. Educação superior. Desenvolvimento moral. Resumen La enseñanza de la bioética en las escuelas de medicina en BrasilEs muy común en el ámbito de la educación médica brasilera y en la enseñanza de la bioética en general, el debate sobre la mejor manera de enseñar la ética y/o la bioética. Parte de esto se debe a la preocupación cada vez mayor en la sociedad para que tengamos médicos técnica y moralmente competentes. La enseñanza de la bioética se distingue de la ética médica; ésta última está centrada en los derechos y deberes del médico, mientras que la bioética se caracteriza por ser multi, inter y transdisciplinaridad. El objetivo de este estudio es identificar si la disciplina Bioética está en los planes de estudios, cómo se la enseña y cuáles son los contenidos trabajados en las carreras de Medicina de Brasil. En la investigación se observó que hubo un aumento en el número de asignaturas de Bioética autónomas en las carreras de Medicina y que...

The professed importance of ethical relations in the development of researches in human beings has been observed in many standards. This text approaches the complexity of procedures, guidelines, risk and benefit analyses, and innumerable contributions, given the significance of pertinent and up-to-date consideration on the matter.

Considering the results achieved, we conclude that in the study population, physicians are concerned about providing information according to the patient's profile. We could also notice that oncologists try to provide patients with the information they are entitled to - the truth, although they often resort to the family's assistance in providing that information.