Our patients with early PD have a frequent and severe olfactory deficit that correlates with disease severity, symptom duration and DaTSCAN but not EGM. The sensitivities of UPSIT and DaTSCAN are high at 86% and 92%, respectively. Although DaTSCAN is superior for 'localization', UPSIT is considerably 'cheaper', and neither is disease specific. EGM threshold impairment in PD is independent of the smell deficit, and probably signifies advanced disease.
2Constructing and re-constructing masculinity following radical prostatectomy for prostate cancer.
AbstractProstate cancer is common in older men. Surgical treatment involving removal of the prostate can result in temporary or permanent erectile dysfunction and incontinence and have a major impact on men's masculine identity. Seven men were interviewed about their experiences and concerns following prostatectomy and the transcripts were analysed employing Foucauldian Discourse Analysis in order to identify the ways in which they constructed their masculinity. Participants drew upon four main discourses when discussing the impact of surgical treatment on their sense of masculinity: masculine identity and sexual activity, erectile dysfunction as a normative experience, mental resilience and vulnerability. Penetrative sex was constructed as central to a masculine identity but inability to achieve this was normalised in terms of the ageing process. Stereotypically masculine qualities of emotional control and rationality were drawn on in describing their reaction to the diagnosis and treatment of cancer but they also experienced a new-found sense of physical vulnerability. The findings are discussed in terms of their implications for the clinical management of erectile dysfunction post-surgery and helping men adjust to life following treatment.3
Great Ormond Street Hospital for ChildrenLondon UK Word Count: 5988 (not including Abstract)
Experiences of Epidermolysis Bullosa 2 2
AcknowledgementsWe would like to thank the participants and their families, whose contributions made this study possible.
Bio-bibliographical notes
E. Felicity Williams has recently completed the Professional Doctorate in CLinicalPsychology at the University of East London.
Kenneth Gannon is Research Director for the Professional Doctorate in CLinicalPsychology at the University of East London.Kristina Soon is a clinical psychologist at Great Ormond Street Hospital for Children.She has a special interest in dermatological conditions.
Experiences of Epidermolysis Bullosa 3 3
AbstractObjective: To explore the experiences of young people with Epidermolysis Bullosa
Simplex (EBS).Method: 11 participants aged 10 -14 years were interviewed. Interpretative Phenomenological Analysis was employed.Results: A key theme was 'self as different'. This related to experiences of negative treatment and exclusion from peers; a lack of understanding of others about the condition; and a sense of the self as 'wrong'.
Conclusions:Findings indicate the importance of providing appropriate psychological and peer support, as well as wider community education and intervention, as part of the holistic treatment of young people with this chronic, painful and visible skin condition.
In order to determine how men react to and manage chronic conditions 16 men with Lower Urinary Tract Symptoms (LUTS) were interviewed to examine the relationship between detecting symptoms and seeking medical help, perceptions of symptoms and the impact of symptoms on daily life. Transcripts were analysed employing IPA and four major themes identified: Uncertainty/Trying to understand, Implications, Ways of coping and Self-concept/Identity. Uncertainty about the nature and origins of their condition and its gradual onset contributed to the delay in seeking medical advice. Men adopted a range of coping strategies to manage their symptoms. Implications for primary health care consultations are considered.
symptoms, bother, mood and perceptions about LUTS.
RESULTSMost participants scored within the normal range for anxiety and depression, and expressed a moderate level of distress. They were to some extent bothered by their symptoms. Most men perceived LUTS as a long-term problem but felt unable to control their symptoms. The results suggest that bother reflects men's overall distress with having LUTS. Bother appears to be related to symptom severity, self perception, social limitation and the impact of LUTS. Embarrassment and social anxiety relate strongly to bother.
CONCLUSIONSeveral psychological factors relate to bother; it may be possible to reduce bother using a brief psychological intervention.
Findings suggest barriers to accessing IAPT largely remain unaddressed where people with ID are concerned. Services may need to reconsider what constitutes appropriate reasonable adjustments to ensure equitable access.
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