PurposeTo determine whether patients distinguish between biospecimens and electronic health records (EHRs) when considering research participation to inform research protections.MethodsWe conducted 20 focus groups with individuals who identified as African American, Hispanic, Chinese, South Asian and non-Hispanic White on the collection of biospecimens and EHR data for research.ResultsOur study found that many participants did not distinguish between biospecimens and EHR data. However, some participants identified specific concerns about biospecimens. These included the need for special care and respect for biospecimens due to enduring connections between the body and identity; the potential for unacceptable future research, specifically the prospect of human cloning; heightened privacy risks; and the potential for unjust corporate profiteering. Among those who distinguished biospecimens from EHR data, many supported separate consent processes and would limit their own participation to EHR data.ConclusionConsidering that the potential misuse of EHR data is as great, if not greater than for biospecimens, more research is needed to understand how attitudes differ between biospecimens and EHR data across diverse populations. Such research should explore mechanisms beyond consent that can address diverse values, perspectives and misconceptions about sources of patient information to build trust in research relationships.
This systematic literature review aims at understanding the influence of the university's environment and support system (ESS) in shaping the social entrepreneurial intention (SEI) of post-secondary education students. Social entrepreneurs play an important role in the economic and social developments of the communities in which they operate, thus many post-secondary institutions are starting to encourage more students to engage in social entrepreneurial behaviour. Consequently, there is a need for systematic approaches to evaluate the impact of various motivational factors related to the university's entrepreneurial ecosystem that could affect the SEI of students. Based on a systematic literature review and narrative synthesis of the antecedents of the SEI of post-secondary education students, the authors proposed a customized SEI model that modifies and extend the one proposed by Hockerts (Entrepreneurship: Theory and Practice, 2017) and Mair and Noboa (Social entrepreneurship, 2006). This study fills a gap in the literature by providing a methodology grounded in theory that can help universities to design their educational and other interventions aimed at encouraging more students to consider social entrepreneurship as a viable career choice after graduation.
Undocumented immigrant women who are abused and living in the United States are isolated in a foreign country, in constant fear of deportation, and feel at the mercy of their spouse to gain legal status. To ensure that immigration law does not trap women in abusive relationships, the Violence Against Women Act (VAWA, 1994) enabled immigrant women to self-petition for legal status. Qualitative research methods were used in this participatory action research to investigate the experiences of Mexican immigrant women filing VAWA self-petitions. Emotional, financial, and logistic barriers in applying are identified, and recommendations for practice research and policy are provided.
PurposeThe study aims to test the applicability of a variant of the model proposed by Hockerts (2017) for assessing the social entrepreneurial intention (SEI) of male and female students. It extends the model by incorporating the university's environment and support system (ESS) as an additional more distal construct. The university's ESS, coupled with the experience with social, cultural and environmental issues can affect SEI by influencing the more proximal precursors of empathy towards others, perceived self-efficacy, perceived community support and social, cultural and environmental responsibility.Design/methodology/approachA structured non-disguised questionnaire was administered to students at a Canadian university. A sample of 485 usable responses was analysed by means of second-order structural equation modelling.FindingsThe results provide confirmation that the proposed model is a multi-group invariant and appropriate for analysing the SEI of male and female students. They also show that the university's ESS helps predict SEI indirectly through the complete mediation of the more proximal antecedents.Research limitations/implicationsThe questionnaire is limited to universities with social innovation and entrepreneurship initiatives.Practical implicationsOutcomes of the study can help universities assess the efficacy of their social innovation and entrepreneurship initiatives for instilling a social entrepreneurial mind-set in students. Consequently, universities will be better equipped to raise the perceptions of venture feasibility and desirability, thus increasing students' perceptions of opportunity.Originality/valueThe study advances the social entrepreneurial knowledge of the university's effect on the precursors of SEI.
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