A participatory film-making study carried out in long-term social care with 10 people with Alzheimer-type dementia found that places the participants had known early in life were spontaneously foregrounded. Participants' memories of such places were well-preserved, particularly when photo-elicitation techniques, using visual images as prompts, were employed. Consistent with previous work on the 'reminiscence bump' in dementia, the foregrounded memories belonged in all cases to the period of life between approximately 5 and 30 years. Frequently the remembered places were connected with major life events which continued to have a strong emotional component. The continuing significance of place in the context of long-term dementia care is considered from a psychogeographical perspective.
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Overview
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Discipline: D4 [please do not alter]
Dementia Studies
Sub-discipline
General Health and Social Care [SD-Hlth-1]
Academic Level
Postgraduate
Contributor BiographiesKatherine Ludwin is a researcher in Dementia Studies at the University of Bradford. She has a PhD in Sociology and Politics from Birkbeck College, University of London, which was located in gender studies and explored expectations related to family norms. She has worked on several dementia research projects and is interested in creative methods and the significance of identity and difference in the livedexperience of dementia.
2Andrea Capstick is a Senior Lecturer in Dementia Studies at the University of Bradford. She holds a Doctorate in Education (EdD) for her work on the use of film and narrative biography in teaching dementia studies, and has published on a variety of subjects including service user involvement in dementia care education; arts based approaches to teaching and learning, and the ethics of visual research. In 2012 -together with Dr John Chatwin -she was awarded funding by the National Institute for Health Research's School for Social Care Research to study the impact of participatory film-making on social participation and well-being for people with dementia living in long-term care.
Published Articles
AbstractThis case outlines the rationale and methods used when carrying out ethnographic fieldwork in a care home environment with research participants who were living with a dementia diagnosis. Although concerns had been raised at ethics approval about the use of such methods -visual ethnography in particular -we found that there were ethical benefits for the participants whose capacity for research participation, and for social participation generally, was, in every case, higher than anticipated at the outset. By comparison we found that formal methods for assessing ability to give informed consent often appeared to create excess disability, and to exacerbate ill-being for people with dementia. The case draws on specific examples to show how issues related to methods and to ethical conduct of research are frequently intertwined, and should be considered together rather than in isolation.
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Learning OutcomesBy the end of the case, students should:
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