Using Participatory Video to Understand Diversity Among People With Dementia in Long‐Term Care

Ludwin, Katherine; Capstick, Andrea

doi:10.1002/jpoc.21161

Cited by 12 publications

(8 citation statements)

References 8 publications

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“…However, it is important not to disregard group-based LSW, as almost one-third of participants with dementia indicated that they would prefer this over the individual option. In previous research, positive outcomes of digital LSW have been identified in both individual and group settings among community (Massimi et al, 2008;Stenhouse et al, 2013), and care home residents (Damianakis et al, 2010;Ludwin & Capstick, 2015;Subramaniam & Woods, 2016). Similarly, a previous qualitative study found that participants in a digital LSW group felt the social aspect of the groups was the main benefit, while those in individual settings discussed the benefits of LSW itself, and couldn't see how it would be feasible in a group setting (O' Philbin et al, 2017).…”

Section: Discussionmentioning

confidence: 95%

“…Some small studies have found promising evidence that digital LSW can benefit people with dementia in the areas of communication, self-identity, quality of life, mood, and enjoyment (Damianakis, Crete-Nishihata, Smith, Baecker & Marziali, 2010;Ludwin & Capstick, 2015;Massimi et al, 2008;Stenhouse, Tait, Hardy, & Sumner, 2013;Subramaniam & Woods, 2010Subramaniam & Woods, 2016. LSW is typically carried out by 'front-line' health and social care staff, through services/organisations, or within the realms of research.…”

Section: Advancements In Information and Communication Technology (Icmentioning

confidence: 99%

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People with dementia and caregiver preferences for digital life story work service interventions. A discrete choice experiment and digital survey

O’Philbin

Woods

Holmes

2018

Aging & Mental Health

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Objectives: Little is understood about the optimal way to implement digital life story work (LSW). The aim of this research was to explore the preferences of people with dementia and caregivers in relation to digital LSW, in an effort to improve future engagement. Methods: 67 caregivers responded to an online discrete choice experiment (DCE) survey containing 16 pairwise choices. The DCE was analysed using a random effects logit model. Willingness to pay and odds ratios were also calculated. 17 participants with dementia completed an online survey, in which they made choices about different aspects of digital LSW services. Results: Caregivers valued four out of five attributes [setting (p = 0.000), price (p = 0.000), elementary usability and accessibility (p = 0.001), and follow-up assistance (p=0.034)]. In data from participants with dementia, the most preferred setting was individual one-to-one (70.6%), and the most preferred use of digital life storybooks was to share memories with others (64.7%). Marginally more participants with dementia said they would pay for the service (53%) rather than only use it free of charge (47%). Those with advanced ICT skills preferred to learn how to use the digital life storybook (64.7%), while those with elementary/intermediate skills, preferred to have it created for them (35.3%). Conclusions: This exploratory study provides an insight into preferences of people with dementia and caregivers, of how digital LSW is implemented. Results can contribute to future planning and tailoring of these services.

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Section: Discussionmentioning

confidence: 95%

Section: Advancements In Information and Communication Technology (Icmentioning

confidence: 99%

People with dementia and caregiver preferences for digital life story work service interventions. A discrete choice experiment and digital survey

O’Philbin

Woods

Holmes

2018

Aging & Mental Health

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“…This orientation is compatible with the use of novel, community-oriented research methods. Capstick (2011) and Ludwin & Capstick (2015) used participatory visual methods, as part of service user initiatives at the School of Health Studies, University of Bradford, UK. The method of filmmaking used in these studies is similar to our approach in its objective of encouraging people living with dementia to create their own stories about an aspect of their lives and thus empowering them in communicating their memories in an attractive digital format.…”

Section: The Our Story App and Personalised Multimedia Storiesmentioning

confidence: 99%

‘It Brings it all Back, all those Good Times; it Makes Me Go Close to Tears’. Creating Digital Personalised Stories with People who have Dementia

Critten

Kucirkova

2017

Dementia

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'It brings it all back, all those good times; it makes me go close to tears.' Creating digital personalised stories with people who have dementia AbstractThe purpose of these three case studies was to analyse and theoretically explain the contribution of digital multimedia personalisation to stimulate and share long-term memories of people who live with mild to moderate dementia. We investigated how the use of a freely available iPad app can, in a supporting context, facilitate the creation of personalised multimedia stories, including the participants' audio recordings, texts and photos of items, places or people important to them. Three people who were recruited from a club for people living with dementia created personalised multimedia stories using their own photographs and/or pictures downloaded from the internet, with written captions and audio-recorded voiceovers. Our analysis focuses on the themes and symbols across the three final stories of the participants and the process of creating stories with the Our Story iPad app. The discussion concerns the theoretical value of multimedia and the practical value of storymaking apps for people with dementia. We conclude that the multimedia features available with the Our Story app offer a unique opportunity for people living with dementia to store, access and generate memories, capture them in writing and audio; and the ability to continue adding to the original stories.Key words: Dementia, multimedia, memories, touchscreens, personalised stories 2 In August 2016, the UK's Department of Health, and leading dementia charitiesAlzheimer's Research UK and Alzheimer's Society-launched a new platform "Dementia Citizens", which aims to 'help people with dementia and those who care for them, using apps on smartphones and tablets'. This objective builds on reminiscence therapy research and the activity of compiling personal pictures to capture and elicit memories in people with dementia, both of which have been part of sensitive dementia care services for many years.The upsurge of interest in the potential of apps to facilitate the creation of "books of life" or "personal stories", has led us to formally evaluate the role of the story-and book-making app Our Story for people living with dementia. In this article, we report a summary of three case studies of people living with dementia, who created or co-created their own digital personal books using the freely available iPad app called Our Story. We were interested in how the use of current, widely available and affordable digital technologies might facilitate the elicitation and sharing of special memories and the role of personalisation and multimedia in this process. Delimitation of termsSeveral terms are used in the literature to refer to the artefacts that contain personal stories and are created by, or with, people living with dementia, including books of life, personal stories or life history books. We use the word 'story' when referring to the digital version of participants' stories and 'book' when referring to ...

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“…Findings on the formal measures used for the study (wellbeing, social participation and occupational diversity) were all positive (Ludwin and Capstick 2015). The present paper is based, however, on a secondary analysis of the content of the films themselves, and here we aim to enhance understanding of the historical significance of place in emotional memory for people with dementia by exploring in depth some of the 'patterned regularities' (Wolcott 1994) in participants' choice of subject matter for their films.…”

Section: Key Themesmentioning

confidence: 94%

Place memory and dementia: Findings from participatory film-making in long-term social care

Capstick¹,

Ludwin²

2015

Health & Place

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A participatory film-making study carried out in long-term social care with 10 people with Alzheimer-type dementia found that places the participants had known early in life were spontaneously foregrounded. Participants' memories of such places were well-preserved, particularly when photo-elicitation techniques, using visual images as prompts, were employed. Consistent with previous work on the 'reminiscence bump' in dementia, the foregrounded memories belonged in all cases to the period of life between approximately 5 and 30 years. Frequently the remembered places were connected with major life events which continued to have a strong emotional component. The continuing significance of place in the context of long-term dementia care is considered from a psychogeographical perspective.

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Using Participatory Video to Understand Diversity Among People With Dementia in Long‐Term Care

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Cited by 12 publications

References 8 publications

People with dementia and caregiver preferences for digital life story work service interventions. A discrete choice experiment and digital survey

People with dementia and caregiver preferences for digital life story work service interventions. A discrete choice experiment and digital survey

‘It Brings it all Back, all those Good Times; it Makes Me Go Close to Tears’. Creating Digital Personalised Stories with People who have Dementia

Place memory and dementia: Findings from participatory film-making in long-term social care

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