Accessible Summary
Support staff play an important role in helping people with learning disabilities to meet a partner and have a relationship.
Not getting good support can make it difficult for people to have a relationship.
Many support staff want to help people to have a relationship, but are worried about people being abused. This is especially true for those who do not have a lot of staff support.
Support staff do not always get good support themselves to help people with learning disabilities to have relationships, such as training and a policy to follow. This makes it hard for them to know what they are allowed to help with.
Abstract
BackgroundPeople with intellectual and developmental disabilities face challenges in developing and maintaining intimate relationships, frequently requiring support from staff.
MethodFocus groups were conducted with 26 social care staff members to explore the support they provided to people with intellectual and developmental disabilities to find a potential partner and/or develop an existing relationship.
ResultsStaff reported that many people with intellectual and developmental disabilities wanted to be in a relationship and that they did what they could to facilitate this, sometimes providing substantial support. Some staff had to address complex issues relating to sexuality, often with no training and with a lack of clear organisational policies.
ConclusionThe need for external inspection and regulatory bodies to prioritise relationship support is emphasised.
People with intellectual and developmental disabilities often need support to develop and maintain intimate relationships; however, little is known regarding the role of family carers in this area. Focus groups were conducted with 19 family members to explore the support they provide to people with intellectual and developmental disabilities to find a potential partner and any support they may have to provide to support/develop an existing relationship. Family members provided similar support in this area as support staff, including both practical and emotional support. More needs to be done to support the family members providing this support, such as access to specialist resources and advice, as well as facilitated opportunities to discuss concerns.
Dating agencies are a small, but growing sector of social care provision for people with intellectual disabilities. The research reported here is the first to explore, with 10 specialist agencies in the UK, why they were set up, how they operate, the barriers and problems they encounter and their success or otherwise in facilitating relationships for people with intellectual disabilities. A strong case is made for the proliferation of such services.
More training is needed for both the Police and health and social care professionals specifically in domestic violence as it affects women with intellectual disabilities.
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