By combining a relationship- and strengths-based approach, the article suggests that, with the onset of progressive cognitive impairment, verbal, nonverbal, and embodied exchanges can function as meaning-making processes for life-partner co-carers. These exchanges can sustain a sense of relatedness, which has been shown to increase wellbeing. The article identifies gaps in knowledge and practice limitations that result from the deficit approach to dementia research and care that currently dominates the field. Suggestions for future research and the development of interventions are included. In addition, the article challenges theoretical assumptions about meaning-making, arguing for a reexamination of dementia-affected couplehood processes.
Although research documenting the experience of lesbian, gay, bisexual, transgendered (LGBT) aging in general is gaining traction, and literature on dementia continues to proliferate, few articles attend to how dementia affects members of the aging LGBT community. This article reviews the current state of knowledge on the experience of dementia for LGBT older adults, and suggests areas for further research. In addition, it aims to promote social work's engagement with related disciplines and global dementia care. The article's ultimate goal is to encourage development of care practices tailored to the experiences, expectations and needs of older LGBT individuals affected by dementia.
This article first argues that quality of life is possible despite the onset of dementia in late life. It also demonstrates how core concepts of social work practice, such as family systems theory, the strengths perspective, and use of self, can be applied to practice with dementia-affected persons. In addition, it provides practical suggestions for supporting care partners in nurturing "we-ness", focusing on what remains rather than was is lost, and remaining authentic. When strengths-based social work practice is integrated into dementia care protocols, wellbeing can increase. As a result, the more than 40 million persons worldwide who are affected by dementia do not have to resign themselves to the despair, devastation and inevitable demise of quality of life that dominate perception of the illness.
In this article, the author reports on a study exploring the impact of an urban setting on the lived experience of dementia for older couples where one member of each couple was diagnosed with the illness over age 64, the other was the primary care partner, and both were residing together in the greater New York metropolitan area at the time of the research. Certain features of city living, such as accessible medical care, public transportation, and social services, are known to provide substantial instrumental and affective support during challenging times However, how dementia care partnerships transform other aspects of urban environments to their own individual and unpredictable advantage is less documented. By describing how older dementia-affected couples make use of informal features of place to meet complex needs, such as affirming couplehood and sustaining autonomy, the study uncovers links between place and quality of life with dementia. There are implications for dementia care and research. These include deepening understanding of the role of place in dementia, establishing knowledge of place as a component of cultural competence, and implementing policies that support place-based care. Moreover, findings propose pathways to greater inclusivity in knowledge building by promoting creative approaches to data collecting supported by naturalistic inquiry. By adopting a strength perspective and a person-inenvironment approach to service provision, social work practice, and research stand to make a difference in the lives of persons affected by dementia and those who care for them.
Building on a student-led digital storytelling project, the author suggests that expanding definitions of two core constructs of social work education and practice, experiential learning and cultural competence, can improve outcomes for diverse older clients by increasing competence in multicultural gerontology practice. Using a variety of media, digital storytelling focuses on stories that are not often heard, like those of diverse older adults. Student-led projects provide opportunities for students to engage with experiential learning, a high-impact pedagogy. Beyond describing a one-semester digital storytelling project that occurred in an undergraduate gerontology practice course, the article shares findings from the project's evaluation. The evaluation yielded recommendations, such as encouraging social work faculty to provide opportunities for experiential learning across the curriculum, and improving competence in multicultural gerontology practice through creative pedagogies. Ultimately, the author suggests that fresh pedagogical approaches that expand core social work constructs can improve outcomes for diverse older adults by promoting multicultural gerontology practice competence.
This article describes an interdisciplinary pilot study exploring the impact of LGBTQ senior centers on the lives of center members. Many LGBTQ adults face the future having experienced stigma and bias, restricted rights, and rejection from family of origin, and are now growing older without the support of a partner and adult children. As a result, older LGBTQ adults experience higher rates of depression, loneliness and isolation, and shortened life expectancy as compared to non-LGBTQ peers. Findings from focus group and key informant interviews highlight features of LGBTQ senior center experiences that can significantly improve members' quality of life. These include providing family, acceptance and a home, which can have an impact on outlook and outcomes. Moreover, findings suggest the need for re-thinking hetero-normative definitions of "community" in the context of LGBTQ aging. Beyond sharing findings from the study, suggesting a conceptual framework for deepening understanding about LGBTQ aging, and identifying lines of future inquiry, the article articulates implications for social work research, practice and education. Ultimately, the article argues that social work is well positioned to improve quality of life for this under-served population when it adopts a cultural humility stance in research, practice and education.
This article reports on an exploratory study examining end-of-life planning among members of a lesbian, gay, bisexual, and transgender (LGBT) senior center in the Bronx, New York, that provided social work students hands-on qualitative research experience in an urban setting. Despite health disparities such as increased rates of depression and isolation and shortened life expectancy as compared to non–LGBT-identified peers, older members of LGBT communities demonstrate resilience as they face their own aging and mortality without traditional family caregivers. Findings suggest that previous experiences providing care for dying adult loved ones can improve well-being by clarifying personal care wishes, promoting planning for end of life, and diminishing anxiety about death. Implications extend beyond LGBT older adults to persons facing late life without care partners for a variety of reasons.
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