By combining a relationship- and strengths-based approach, the article suggests that, with the onset of progressive cognitive impairment, verbal, nonverbal, and embodied exchanges can function as meaning-making processes for life-partner co-carers. These exchanges can sustain a sense of relatedness, which has been shown to increase wellbeing. The article identifies gaps in knowledge and practice limitations that result from the deficit approach to dementia research and care that currently dominates the field. Suggestions for future research and the development of interventions are included. In addition, the article challenges theoretical assumptions about meaning-making, arguing for a reexamination of dementia-affected couplehood processes.
Although research documenting the experience of lesbian, gay, bisexual, transgendered (LGBT) aging in general is gaining traction, and literature on dementia continues to proliferate, few articles attend to how dementia affects members of the aging LGBT community. This article reviews the current state of knowledge on the experience of dementia for LGBT older adults, and suggests areas for further research. In addition, it aims to promote social work's engagement with related disciplines and global dementia care. The article's ultimate goal is to encourage development of care practices tailored to the experiences, expectations and needs of older LGBT individuals affected by dementia.
This article first argues that quality of life is possible despite the onset of dementia in late life. It also demonstrates how core concepts of social work practice, such as family systems theory, the strengths perspective, and use of self, can be applied to practice with dementia-affected persons. In addition, it provides practical suggestions for supporting care partners in nurturing "we-ness", focusing on what remains rather than was is lost, and remaining authentic. When strengths-based social work practice is integrated into dementia care protocols, wellbeing can increase. As a result, the more than 40 million persons worldwide who are affected by dementia do not have to resign themselves to the despair, devastation and inevitable demise of quality of life that dominate perception of the illness.
In this article, the author reports on a study exploring the impact of an urban setting on the lived experience of dementia for older couples where one member of each couple was diagnosed with the illness over age 64, the other was the primary care partner, and both were residing together in the greater New York metropolitan area at the time of the research. Certain features of city living, such as accessible medical care, public transportation, and social services, are known to provide substantial instrumental and affective support during challenging times However, how dementia care partnerships transform other aspects of urban environments to their own individual and unpredictable advantage is less documented. By describing how older dementia-affected couples make use of informal features of place to meet complex needs, such as affirming couplehood and sustaining autonomy, the study uncovers links between place and quality of life with dementia. There are implications for dementia care and research. These include deepening understanding of the role of place in dementia, establishing knowledge of place as a component of cultural competence, and implementing policies that support place-based care. Moreover, findings propose pathways to greater inclusivity in knowledge building by promoting creative approaches to data collecting supported by naturalistic inquiry. By adopting a strength perspective and a person-inenvironment approach to service provision, social work practice, and research stand to make a difference in the lives of persons affected by dementia and those who care for them.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
hi@scite.ai
10624 S. Eastern Ave., Ste. A-614
Henderson, NV 89052, USA
Copyright © 2024 scite LLC. All rights reserved.
Made with 💙 for researchers
Part of the Research Solutions Family.