This paper reviews and discusses existing barriers to diagnosis and treatment for patients with dementia in Europe as well as approaches to overcome these barriers. The barriers to care are manifold, being present at all levels in each society and between countries in Europe. Multilevel and multifaceted strategies are needed to improve diagnosis and treatments for all patients with cognitive complaints. A multidisciplinary approach based on close collaboration between GPs and specialised memory clinics may be the ideal model for early accurate diagnosis and subsequently early pharmacological and psychosocial interventions. For all healthcare professionals, there should be specialised training in dementia and frequently updated practice guidelines to provide the framework for standards of care. Culture-sensitive strategies to promote public knowledge and destigmatize dementia are essential. Policy makers and authorities should be made aware of the benefits of early access to diagnosis and treatment.
In this article, the authors describe how the European Dementia Consensus Network developed a consensus on research ethics in dementia, taking into account the questions posed by the era of genetic research and its new research methods. The consensus process started with a Delphi procedure to analyze relevant stakeholders' positions by describing their statements on the possibilities and limitations of research into genetic determinants of Alzheimer disease and to describe and analyze the moral desirability of genetic research on Alzheimer disease. The conclusions drawn from the Delphi procedure fuelled the development of the consensus statement, which is presented in this paper. The consensus statement aims to stimulate ethically acceptable research in the field of dementia and the protection of vulnerable elderly patients with dementia from application of inadequate research methods or designs.
Purpose-The purpose of this paper is to analyse the needs of people with Alzheimer's disease and their caregivers in terms of information and communications technology (ICT) and home automation, and how to foster the use of smart devices in their homes and also, to determine whether the use of ICT can extend people with Alzheimer's disease stay at home in the first stages of the illness, while facilitating their caregivers' tasks. Design/methodology/approach-Groups of caregivers, ICT researchers and Alzheimer's disease experts were gathered to discuss the utility of several solutions. Sessions were grouped into four topics: safety, leisure, activities of daily living and friendly atmosphere. In total, 23 ICT-based solutions to improve life at home of people with Alzheimer's disease were analysed and grouped under "no interest', "some interest" and "very interesting". Caregivers rated these solutions and suggested improvements to them. Findings-In total, 18 out of 23 proposals were considered "very interesting", meaning that caregivers considered that they could truly improve the lives of people with Alzheimer's disease. Caregivers also suggested how to progressively introduce these technical solutions into their homes. Originality/value-ICT and home automation advances could be very useful if used conveniently. Caregivers consider that smart homes can help people with Alzheimer's disease in the security, leisure and daily tasks fields, increasing the time they can live alone in their own homes. Alzheimer's disease is the most common form of dementia and possibly contributes to 60-70 per cent of cases (Alzheimer's Association, 2014). This paper will focus on people with Alzheimer's disease and their caregivers. Caring for people with Alzheimer's disease living at home could take many hours a day (up to nine hours in Greece (Rodrigues ef al., 2012)). This task is often performed by family members who have to balance their personal and work activities with taking care of their family members. However, caring for people with Alzheimer's disease can be facilitated by new technologies such as home automation and ICT that have emerged in recent years.
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