Resumo O artigo discute a questão da proteção social frente às demandas apresentadas no tratamento oncológico infanto/juvenil no Brasil. Tem como objetivo problematizar os avanços e os limites do sistema de proteção social brasileiro frente às demandas sociais decorrentes do tratamento oncológico infanto/juvenil que ultrapassam os limites específicos da atenção à saúde. Trata-se de estudo qualitativo que foi estruturado com base na análise de documentos oficiais, Leis, Decretos, Portarias e Políticas e da literatura destinados às crianças e adolescentes em tratamento de câncer cujas consequências incapacitantes produzem demandas sociais que impactam, sobretudo, a vida familiar. O trabalho apresenta as políticas sociais como um recurso fundamental ao tratamento, considerando a demanda por renda e deslocamento, de modo a possibilitar uma efetiva atenção à saúde. Entretanto, as reflexões apontam haver na atualidade uma retração das políticas sociais pelo Estado que se exprimi na focalização e no repasse de suas responsabilidades a outros setores da sociedade civil.
Introduction: Cervical cancer is part of the group of non-communicable chronic diseases, which are characterized by long duration and the need for continuous treatment. Because it is a disease that keeps the person in their usual life, it occupies the center of all social relationships and its repercussions are felt in all aspects of life. This type of cancer mainly affects women of low socioeconomic status and in the productive phase of their lives. In this sense, work, whether professional or domestic, understood as a constitutive part of women's social identity, undergoes profound changes due to illness. Objective: To understand the health-disease-work relationship of women with cervical cancer, from a narrative approach. Methods: The research is a qualitative study, aimed at a better understanding of the meanings attributed by the subjects involved, women with cervical cancer treated in a public hospital unit specialized in the care of cervical cancer, the regarding the repercussions of chronic illness in their lives, with emphasis on the world of work. The main data collection instrument used in the research will be the interview guide with open questions. The interviews will have a narrative focus and narrative analysis will be used to deal with the material produced. Results: Data collection is in progress, after approval by the ethics committees involved. Conclusions: This research may provide greater visibility of this issue to society, reinforcing and recognizing the importance of thinking about the guarantee of rights related to work for women affected by chronic diseases.
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