Aims To evaluate the quality of life (QoL) and burden of primary caregivers of children and young adults (PCCYAs) with and without disabilities. Methods A cross‐sectional study was carried out with sample composed of 336 PCCYAs with cerebral palsy (CP; n = 84), Down syndrome (DS; n = 84), autism spectrum disorder (ASD; n = 84), and without disabilities (control group: CG n = 84), matched by gender and age. The burden of caregivers was assessed with the Zarit Burden Interview (ZBI), whereas QoL was assessed using the WHOQOL‐BREF instrument. Results QoL and burden of CG presented better results compared to groups with disabilities, with the lowest environmental domain of all study groups (P <.001). The prevalence of burden was moderate for PCCAs of groups with disabilities. There was association between all WHOQOL‐BREF and ZBI domains and variables age, schooling, occupation and per capita income (Spearman's correlation coefficient, P <.05). There is a negative impact on WHOQOL‐BREF, with an increase in the level of burden of PCCAs with disabilities. Conclusion The majority of PCCYAs were unemployed married mothers, with low schooling and health problems. Older caregivers experience even higher burden and greater impact on QoL.
Children without cervical motor control presented a more pronounced oral inflammatory status that was characterized by higher levels of cytokines.
O freio labial superior é uma estrutura anatômica triangular que sofre alterações de forma, função e posição durante o desenvolvimento da criança. Um deslocamento para a porção mais apical cerca de 3 a 4 mm acima da gengiva marginal é esperado. Quando este não ocorre, ficando o freio inserido na papila incisiva, caracteriza-se uma anomalia de desenvolvimento chamada freio teto labial persistente. O momento e o tipo de intervenção nestas situações geram muita controvérsia; a avaliação de fatores como inserção baixa no rebordo alveolar, presença ou não de isquemia da papila palatina quando o freio é tracionado, presença de diastema interincisivos, dificuldade de higienização e/ou alimentação e retração gengival auxiliam na decisão de tratamento. Sendo assim, o objetivo deste trabalho foi apresentar 8 casos clínicos sobre abordagens de freio labial superior, discutindo diferentes momentos. Crianças de distintas idades foram avaliadas e submetidas às seguintes condutas: frenectomia, reposicionamento pela técnica de Chelotti ou acompanhamento clínico para posterior reavaliação. Concluiu-se que, apesar de existir uma indicação frequente de intervenção apenas após a erupção dos caninos superiores permanentes, existem outras situações em que uma abordagem precoce pode trazer mais benefícios ao paciente.
Objective: To evaluate the barriers for accessing dental care for people with physical disabilities. Material and Methods: A cross-sectional study with 191 caregivers of individuals with physical disabilities attending a rehabilitation center in São Paulo, who responded to a questionnaire about information related to barriers (user, caregiver, government and professional) found in dental treatment, visit to the dentist and age of the first dental appointment. Data were collected from medical records regarding age, sex, family income and medical diagnosis of patients. Statistical analysis was performed using the MedCalc for Windows software version 12.3.0. The Chi-square test was applied for heterogeneity, with significance level of 5%. Results: The main barriers identified by caregivers (p<0.0001) were patient fear/anxiety (66.8%), patient requiring accompaniment to access treatment (87.4%), treatment costs (82.7%), lack of treatment at primary health care units (73.3%) and professionals not specialized in dental care for people with physical disabilities (67.0%). It was observed that caregivers of individuals with cerebral palsy reported greater physical barriers for accessing dental treatment compared to caregivers of other diagnoses (p=0.0307). Conclusion: Individuals with physical disabilities face financial constraints, fear of dental treatment, lack of treatment options in public services and, perhaps most importantly, lack of qualified professionals interested in treating such individuals.
Cerebral palsy (CP) is the most common motor disability in childhood, and as far as we know, there are no biometric studies that have evaluated CP and oral health (OH) on a global level. The aim of this study was to present the worldwide research trends in studies of OH in persons with CP, using bibliometric analysis. Through bibliographic information on publications about OH and CP was obtained in the PubMed database, from 1956 to 2021. The extracted data included periodical, title, year of publication, authors, citations, impact factor, key words, country, most cited publications, and study design. A total of 567 articles were published and indexed in PubMed up until 6/28/2021. The data showed a constant growth and an exponential increase in the number of publications. The articles were written in 17 different languages, and 232 (90.63%) articles were in English. Among the 111 Periodicals, Special Care in Dentistry contributed the most to scientific research with 30 articles (17.3%). Brazil (25%) and the United States (17.24%) were the countries with the highest number of publications. Observational studies were the most frequent types of articles (76.29%), followed by case reports (13.36%). It was concluded that this current network analysis indicates that although there is a significant growth in the number of publications about OH in persons with CP, it is important to increase the number of interventional randomized clinical trial studies, to include this population in high-impact oral health investigations around the world.
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