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We conducted an online survey and remote usability study to explore user needs related to advertising controls on Facebook and determine how well existing controls align with these needs. Our survey results highlight a range of user objectives related to controlling Facebook ads, including being able to select what ad topics are shown or what personal information is used in ad targeting. Some objectives are achievable with Facebook's existing controls, but participants seemed to be unaware of them, suggesting issues of discoverability. In our remote usability study, participants noted areas in which the usability of Facebook's advertising controls could be improved, including the location, layout, and explanation of controls. Additionally, we found that users could be categorized into four groups based on their privacy concerns related to Facebook's data collection practices, objectives for controlling their ad experience, and willingness to engage with advertising controls. Our findings provide a set of user requirements for advertising controls, applicable to Facebook as well as other platforms, that would better align such controls with users' needs and expectations.

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In this paper we describe the iterative evaluation and refinement of a consent flow for a chatbot being developed by a large U.S. health insurance company. This chatbot’s use of a cloud service provider triggers a requirement for users to agree to a HIPAA authorization. We highlight remote usability study and online survey findings indicating that simplifying the interface and language of the consent flow can improve the user experience and help users who read the content understand how their data may be used. However, we observe that most users in our studies, even those using our improved consent flows, missed important information in the authorization until we asked them to review it again. We also show that many people are overconfident about the privacy and security of healthcare data and that many people believe HIPAA protects in far more contexts than it actually does. Given that our redesigns following best practices did not produce many meaningful improvements in informed consent, we argue for the need for research on alternate approaches to health data disclosures such as standardized disclosures; methods borrowed from clinical research contexts such as multimedia formats, quizzes, and conversational approaches; and automated privacy assistants.

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