Background: Family caregivers of aged stroke survivors face challenging difficulties such as the lack of support and the knowledge and skills to practice home care. These aspects negatively influence the caregivers' burden and quality of life, the use of health services, and hospital readmissions of the stroke survivor. The aim of this research is to describe an educational intervention focused on family caregivers of stroke survivors for the development of home care in the south of Brazil.
Objective: To analyze the association between filial responsibility and the overload of the children when caring for their older parents. Method: Cross-sectional study with 100 caregiver children of older adults. Filial liability was assessed by the attitudes of the responsible child (scale of expectation and filial duty) and by care behaviors (assistance in activities of daily living, emotional and financial support, and keeping company). The overload was assessed by the Caregiver Burden Inventory. To assess the associations, the correlation coefficients of Pearson and Spearman, Kruskal-Wallis Test, and Mann-Whitney were employed. Variables that presented p-value<0.20 in the bivariate analysis were inserted in a multivariate linear regression model. Results: The factors associated with overload were: formal employment (p=0.002), feelings regarding family life (p<0.001), financial support (p=0.027), and assistance with Activities of Daily Living (ADLs) (p<0.001). Conclusion: Children who were more involved with the ADLs and provided financial support showed higher levels of overload.
The purpose of this study is to evaluate the effect of home-care nursing intervention on the burden of family caregivers for older adults surviving a stroke. A randomised clinical trial blinded for outcome evaluation. Forty-eight family caregivers of older adults surviving a stroke took part in the study. The intervention group (IG) received three home visits by nurses in 1 month after hospital discharge for guidance on the disease and care activities for the elderly people. The control group (CG) relied on the service network that had access. The Caregiver Burden Scale was applied to assess the burden outcome 1 week, 60 days and 1 year after hospital discharge. The caregivers of the intervention and CGs had no difference regarding baseline data. There was an interaction effect between the CG and the IG in the isolation domain (p = 0.037) and in the emotional involvement domain (p = 0.003) over time. These findings provide support for strengthening a care line for the elderly people after a stroke, with adequate discharge planning, indicating the importance of integrating care network services such as primary care, home care and hospital care with a view to achieving an effective care transition. It is also necessary to construct a specific instrument to evaluate other outcomes, such as the knowledge and learning of caregivers in relation to the care activities taught. This study is registered in the Clinical Trials with name Nursing Home Care Intervention Post Stroke (SHARE) and under number NCT02807012.
Aim: To analyze sociodemographic factors and aspects of care related to the burden of informal caregivers of dependent elderlies in the community. Methods: A cross-sectional study with 125 caregivers. Data collection was carried out in municipalities of the Northwest of Rio Grande do Sul through a structured interview in 2017 and 2018. The Caregiver Burden Inventory was used. The Pearson or Spearman correlation coefficients and t-student test or Analysis of Variance (ANOVA) were done. For the multivariate analysis, Linear Regression was used. Results: Most caregivers were female (73.6%), married (55.2%) and daughters (68.0%). The variables that showed a statistically significant relationship with burden were: caregiver age (p = 0.039), education (p = 0.001), time devoted to care (p = <0.001), kinship degree (p = 0.001), living with the elder (p <0.001), using their income (p = 0.001) and female gender (p = 0.017). Conclusion: Women caregivers, with less education, who spend more time in weekly care and lived with the elder presented higher burden.
Approval: 01-27-2017 ABSTRACT Objective: To carry out a cross-cultural adaptation of the Filial Responsibility protocol for use in Brazil with adult child caregivers for elderly parents. Method: A methodological study that included the steps of initial translation, synthesis of translations, back-translation, committee of experts, pre-test, evaluation of psychometric measures and submission to authors. The protocol comprises a qualitative step, closed questions and seven scales: Filial Expectation, Subsidiary Compassion, Caregiver burden, Life Satisfaction, Personal Well-being and Quality of Relationships. Results: The final version in Portuguese was applied, through a pre-test, to a sample of 30 caregivers for elderly parents. In order to verify internal consistency, we used Cronbach's alpha coefficient: Filial Expectation (α = 0.64), Filial Duty (α = 0.65), Satisfaction with Life (α = 0.75), Personal Wellbeing (α = 0.87). Final considerations: The Brazilian version presented good conceptual and face equivalence. The results demonstrate that the concepts used in the Canadian protocol are applicable in the Brazilian context. Descriptors: Validation Studies; Aging; Caregivers; Elderly; Geriatric Nursing. RESUMOObjetivo: Realizar a adaptação transcultural do protocolo Filial Responsibility para uso no Brasil com filhos cuidadores de idosos. Método: Estudo metodológico que compreendeu as etapas de tradução inicial, síntese das traduções, retrotradução, comitê de especialistas, pré-teste, avaliação das medidas psicométricas e submissão aos autores. O protocolo é composto por uma etapa qualitativa, questões fechadas e sete escalas, entre elas: Expectativa Filial, Piedade Filial, Sobrecarga do Cuidador, Satisfação com a Vida, Bem-Estar Pessoal e Qualidade dos Relacionamentos. Resultados: A versão final em português foi aplicada, por meio de pré-teste, a uma amostra de 30 filhos cuidadores de idosos. Para verificar a consistência interna, utilizouse o coeficiente alfa de Cronbach: Expectativa Filial (α=0,64), Dever Filial (α=0,65), Satisfação com a Vida (α=0,75), Índice de Bem-Estar Pessoal (α=0,87). Considerações finais: A versão brasileira apresentou boa equivalência conceitual e semântica. Os resultados demonstram que os conceitos utilizados no protocolo canadense são aplicáveis ao contexto brasileiro. Descritores: Estudos de Validação; Envelhecimento; Cuidadores; Idoso; Enfermagem Geriátrica. RESUMEN Objetivo: Realizar la adaptación transcultural del protocolo Filial Responsibilitypara uso en Brasil con hijos cuidadores de ancianos. Método: Estudio metodológico que comprendió las etapas de traducción inicial, síntesis de las traducciones, retrotraducción, comité de especialistas, pre test, evaluación de las medidas psicométricas y sumisión a los autores. El protocolo está compuesto por una etapa cualitativa, cuestiones cerradas y siete escalas, entre ellas: Expectativa Filial, Piedad Filial, Sobrecarga del Cuidador, Satisfacción con la Vida, Bien-Estar Personal y Cualidad de las Relaciones. Resultados: La versión f...
Aim: To verify the relation of a nursing home care educational intervention in the use of health services by elderly people post-stroke. Methods: A randomized controlled trial conducted with 44 family caregivers of elderly people post-stroke. Data was collected between May/2016 and July/2018 in a hospital in the South of Brazil and at the participants’ homes. The intervention group (IG=21) received home visits by nurses after hospital discharge. The control group (CG=23) had a conventional follow-up in a conventional health services. The Pearson’s Chi-Square Test or the Fisher’s Exact Test was performed for assessment of the outcome at 60 days and 1 year after discharge. Clinical Trial registration NCT02807012. Results: There was a significant difference regarding the use of hospital outpatient service (IG=100%, CG=78.3%, p<0.050) 60 days after discharge. Conclusion: The great use of outpatient service by the IG demonstrates the effectiveness of nursing educational intervention focused on health care network after discharge.
Resumo Objetivo: Examinar a relação entre atitudes de responsabilidade filial e comportamentos de cuidado dos filhos cuidadores. Métodos: Estudo de métodos misto com triangulação concomitante de dados com 100 filhos cuidadores de idosos vinculados a serviços de atenção primária. Na etapa quantitativa, para avaliação das atitudes de responsabilidade filial, foram aplicadas as Escalas de Expectativa Filial e Dever Filial. Os comportamentos de cuidado foram avaliados por meio do apoio instrumental, emocional e financeiro, companhia e visita. Na etapa qualitativa utilizou-se questões abertas sobre atitudes e comportamentos de cuidado. Foram feitas análises inferencial e temática e triangulação dos dados. Resultados: Apoio financeiro e emocional apresentaram associação com Dever Filial (p=0,050; p=0,001) e Expectativa Filial (p=0,013; p=0,023), respectivamente. Na etapa qualitativa estes comportamentos filiais emergiram como sobrecarga financeira e ensinamentos para seus próprios filhos também os cuidarem na velhice. Companhia e visita foram associadas apenas com Dever Filial (p=0,015), de forma semelhante ao encontrado nos depoimentos relativos a ser um dever natural e satisfação de estar presente na vida dos pais. Não houve associação entre atitudes de responsabilidade filial e ajuda nas atividades de vida diária, divergente dos achados da categoria “Dificuldades em ser filho cuidador”. Conclusão: Compreender atitudes e comportamentos de cuidado contribui para melhoria da qualidade da atenção dos profissionais que assistem essa população.
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