Online health communities offer the promise of support benefits to users, in particular because these communities enable users to find peers with similar experiences. Building mutually supportive connections between peers is a key motivation for using online health communities. However, a user's role in a community may influence the formation of peer connections. In this work, we study patterns of peer connections between two structural health roles: patient and non-professional caregiver. We examine user behavior in an online health community---CaringBridge.org---where finding peers is not explicitly supported. This context lets us use social network analysis methods to explore the growth of such connections in the wild and identify users' peer communication preferences. We investigated how connections between peers were initiated, finding that initiations are more likely between two authors who have the same role and who are close within the broader communication network. Relationships---patterns of repeated interactions---are also more likely to form and be more interactive when authors have the same role. Our results have implications for the design of systems supporting peer communication, e.g. peer-to-peer recommendation systems.
Researchers construct models of social media users to understand human behavior and deliver improved digital services. Such models use conceptual categories arranged in a taxonomy to classify unstructured user text data. In many contexts, useful taxonomies can be defined via the incorporation of qualitative findings, a mixed-methods approach that offers the ability to create qualitatively-informed user models. But operationalizing taxonomies from the themes described in qualitative work is non-trivial and has received little explicit focus. We propose a process and explore challenges bridging qualitative themes to user models, for both operationalization of themes to taxonomies and the use of these taxonomies in constructing classification models. For classification of new data, we compare common keyword-based approaches to machine learning models. We demonstrate our process through an example in the health domain, constructing two user models tracing cancer patient experience over time in an online health community. We identify patterns in the model outputs for describing the longitudinal experience of cancer patients and reflect on the use of this process in future research.
Online health communities offer the promise of support benefits to users, in particular because these communities enable users to find peers with similar experiences. Building mutually supportive connections between peers is a key motivation for using online health communities. However, a user's role in a community may influence the formation of peer connections. In this work, we study patterns of peer connections between two structural health roles: patient and non-professional caregiver. We examine user behavior in an online health community-CaringBridge.org-where finding peers is not explicitly supported. This context lets us use social network analysis methods to explore the growth of such connections in the wild and identify users' peer communication preferences. We investigated how connections between peers were initiated, finding that initiations are more likely between two authors who have the same role and who are close within the broader communication network. Relationships-patterns of repeated interactions-are also more likely to form and be more interactive when authors have the same role. Our results have implications for the design of systems supporting peer communication, e.g. peer-to-peer recommendation systems.CCS Concepts: • Human-centered computing → Empirical studies in collaborative and social computing; Empirical studies in HCI.
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