Picture naming is a widely used technique in psycholinguistic studies. Here, we describe new online resources that our project has compiled and made available to researchers on the world wide web at http://crl.ucsd.edu/~aszekely/ipnp/. The website provides access to a wide range of picture stimuli and related norms in seven languages. Picture naming norms, including indices of name agreement and latency, for 520 black-and-white drawings of common objects and 275 concrete transitive and intransitive actions are presented. Norms for age-of-acquisition, word-frequency, familiarity, goodness-of-depiction, and visual complexity are included. An on-line database query system can be used to select a specific range of stimuli, based on parameters of interest for a wide range of studies on healthy and clinical populations, as well as studies of language development.
People with an intellectual disability have experienced increased life expectancy (Emerson, Glover, Hatton, & Wolstenholme, 2014), resulting in changing healthcare needs, including age-related mental health conditions, such as dementia (Whitehouse, Chamberlain, & Tunna, 2000). Dementia is an umbrella term used to describe a group of symptoms and includes a wide range of diseases and disorders of the brain. Although with differing fundamental causes, they all result in progressively deteriorating intellectual functioning and loss of daily skills (Prasher, 2005). Nevertheless, how the dementia is experienced is informed by a combination of neurological impairment, psychological factors such as health and individual psychology and socio-environmental factors (Kitwood, 1997). In almost all aspects, dementia presents in a similar fashion for people with an intellectual disability as for those without; however, two striking differences are that people with an intellectual disability, particularly people with Down syndrome, are at an increased risk of dementia, which is likely to have an earlier onset (Strydom,
Relationship breakdowns are undoubtedly difficult. Access to and use of technology can exacerbate the situation. In our networked society, shared lives generate vast amounts of shared digital data which can be difficult to untangle, whilst social media can provide an outlet to emotions that can take a public and often persistent form. In this paper, we report on a qualitative study that considered the role of technology in the process of a relationship breaking down. Four main themes emerged in our findings: communicating about the separation, change in social status, shared digital assets, and moving on. Opportunities for design are identified in reducing misunderstandings via CMCs, enhancing social media, supporting intimacy in distributed families, and refining service provision.
Purpose -It is widely acknowledged that people with intellectual disabilities are highly likely to experience mental health problems, but that support workers' knowledge and skill in this area is sometimes lacking. There is little research explicitly exploring knowledge about the mental health of older people with intellectual disabilities and the purpose of this paper is to attempt to fill this gap.Design/methodology/approach -In total, 14 support workers completed a questionnaire in which three vignettes presented progressively worsening indicators of dementia in an older person with intellectual disabilities. Participants explained what they thought was happening and what action they would take. Data were analysed using Braun and Clarke's framework.Findings -Few participants had undertaken any mental health training, and only one in relation to older people. They were generally poor at judging early and intermediate indicators of dementia, but were able to identify more overt later signs. However, they believed these advanced indicators to be the onset of dementia. Nonetheless, they would generally take appropriate action, such as observation and referral. Abuse was often considered as a causal factor.Practical implications -The most significant implication is the need for training in the mental health needs of older people and in particular, the general and specific indicators and expected trajectory of dementia in this population.Originality/value -The study adds to the limited research on staff knowledge about older people with intellectual disabilities and dementia, using a novel methodology.
Accessible summary This paper is about working with people with learning disabilities to develop a research (or ‘finding out’) study. We worked with people from Reach, a group–advocacy project, which is part of Assist in Staffordshire, to write clear and simple information sheets and consent forms to help people with learning disabilities and dementia to participate in a research study. We also worked with members of Reach to create appropriate, clear and simple interview questions to ask people with learning disabilities and dementia about their experiences Working alongside people with learning disabilities helps to ensure the work is fit for purpose. Abstract Background: There has been an increase in inclusive research in the learning disability field; however, this has not been reflected within learning disability and dementia research, where little is known from the perspective of people with learning disabilities. This paper will define inclusive research, explore reasons for the dearth of inclusive dementia research, and identify the challenges of conducting dementia research involving people with learning disabilities. Materials and Methods: Examples of working with people with learning disabilities to develop elements of a PhD research study will be detailed and critically discussed. Results: These experiences aided the creation of accessible material about dementia for a PhD research study. Subsequently, this helped to overcome challenges of communication within the research study and helped to promote the participation of people with learning disabilities and dementia. Conclusion: Sharing these ideas about how we worked together will help others who are seeking to engage and achieve more inclusive research practices with marginalised populations.
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