Child's limitations in terms of communication and gross motor functions must be taken into consideration when planning services for families with preschool children with CP.
Abstract. Background: Effective assessment of outcomes in children with chronic health conditions is important to monitor their progress, evaluate interventions, and guide health policy. There is a limitation of the measures currently available for evaluating activities and participation in children with cerebral palsy according to Classification of Functioning, Disability and Health -Children & Youth Version (ICF-CY). The aim: On the ground of an available scientific literature, to identify and to analyze measures of activities and participation for paediatric patients with cerebral palsy. Materials and methods: A systematic search was performed in data basis EBSCO (Medline), Science Direct and Cochrane Library. On the ground of the previously conducted scientific research work publications, the identified evaluative measures were reviewed for their characteristics, psychometric properties of reliability and/or validity and analyzed for their utility. Their accordance to the activities and participation domains of the ICF-CY was identified and the practical use of the evaluative measures was proposed. Results and conclusion: 28 measures were identified; 15 were systematically reviewed and analyzed. Measures that assess only activities are found to be seven, only participation -two, and both activities and participation are assessed by six measures. When relating the measures to the domains of ICF-CY, the most appropriate for measuring activities is ASKp, participation -Life-H for Children, whereas for activities and participation -PEDI and COPM. The identified and analyzed measures reflect different activities and participation domains of ICF-CY; therefore, the choice and the practical use of the certain measure depend on the aim of the assessment.
Abstract. An understanding of predictors of family needs for the families of preschool children with cerebral palsy (CP) is important for provision of efficient and cost-effective services. The aim of this study was to identify the characteristics of children, families and services that are risk factors to meeting family needs for community and financial resources. 234 parents of pre-school children with CP completed a modified version of the Family Needs Survey (FNS), the Measure of Processes of Care (MPOC-20), and a demographic questionnaire. The gross motor function level and communication function level of children were classified on the basis of the Gross Motor Function Classification System (GMFCS) and the Communication Function Classification System (CFCS) respectively. Two hierarchical multiple regression models were generated to determine the predictors of unmet family needs. The socialisation and communication skills of children, as well as caregiver employment and family income levels were significant predictors of family needs for community resources (adjusted R2=0.44). Significant risk factors in terms of family needs for financial resources included the child's gross motor limitations, caregiver employment, low levels of family income and no ability to receive services on the basis of enabling and partnership principles (adjusted R2=0.51). A child's limitations in terms of communication, gross motor functions and socialisation, as well as the socioeconomic status of the child's family, must be taken into account when planning services for families with preschool children with CP.
In Latvia, a new curriculum is introduced to provide the opportunity to acquire skills in multidisciplinary context. To achieve that, schools need to implement projects. In this paper, one example of a multidisciplinary project where fieldwork is involved is described. The aim of the research was to create support materials for teachers and students based on practice to experience multidisciplinary fieldwork to develop competencies. In the end, thirteen different support materials for teachers and students were piloted. Keywords: multidisciplinary fieldwork, fieldwork project, school practice.
physical and psychological disability and loss of workers in society. The problem might excel before we have the efforts and resources needed to treat.Funding acknowledgement: The work was unfunded.
Cerebral palsy is the most common cause of physical disability among children with a potentially negative impact on the quality of life and involvement in the community not only for the child but also for the whole family. In order to provide comprehensive support to families who are raising children with developmental disorders, it is important to study the family needs and understand circumstances that may affect them. The aim of the present study is to identify the needs of the families with preschool children with cerebral palsy, and study how these needs relate with the factors associated with families, children and rehabilitation services.The theoretical part of the present paper lists the types of needs and identifies the factors affecting the family needs. During the process of obtaining data, information about overall family needs, as well as needs for information, services, support and financial needs was collected.Results of the study reveal that families living in Latvia most often need different information, support and coordination of services, they also need financial support to cover costs of child care and treatment.Results of the data analysis support the hypothesis that factors characterising families, children with cerebral palsy and rehabilitation services affect the needs of the families with preschool children with cerebral palsy living in Latvia, and the unique impact of these factors depend on the type of the needs.Overall family needs are best explained by the support received from other family members. The next most important factors are family's income level, employment of the child's primary caretaker, the perceived stress level and support from professionals, as well as provision of services based on cooperation principles, and the number of comorbidities to the child, while the level of limitation of mobility for the child had a somewhat lower impact.Family needs for services are best explained by the child's socialization, level of communication limitations and perceived stress level of the child's primary caretaker, while they were slightly less explained by the family's income level, employment of the child's caretaker and support from other family members, as well as provision of services based on cooperation principles.Financial needs of families were fully explained by family income and limitations of the child's mobility, while they were slightly less explained by employment of the child's primary caretaker, provision of services based on cooperation principles and support from other family members, as well as the number of comorbidities the child had.
In order to provide targeted support to families who are raising children with developmental disorders, it is important to study the family needs and to understand circumstances that may affect them. The aim of this study was to identify the needs of the families with preschool children with cerebral palsy, and study how these needs relate to factors associated with families, children and rehabilitation services. Descriptive analysis showed that families living in Latvia most often need information, social and financial support and coordination of services, and they also need financial support to cover the costs of child care and treatment. The results of the data analysis support the hypothesis that factors characterising families, children with cerebral palsy and rehabilitation services affect the needs of the families with preschool children with cerebral palsy living in Latvia, and the unique impact of these factors depends on the type of needs. Regression analysis revealed that the most important factors affecting the needs of families were related with the socio-economic situation, as well as the support of peers and professionals. The availability and regularity of rehabilitation services, limitations to the child’s functions and health impairments were factors that affected family needs to a lesser extent.
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