Predictors of needs for community and financial resources for families of pre-school children with cerebral palsy

Objective: Family-centered services are collections for children with special needs and their families. These services consider families as expert about children's needs. The essence of this approach is involvement of family in decision making, cooperation, and mutual communication (family and therapist), mutual respect, acceptance of family choice, family support, flexibility of service, and effort to empower families. These services have become a basic foundation of many early intervention programs and are especially useful in rehabilitation services. MPOC-20 is one of the questionnaires used to evaluate these services. This questionnaire consists 20 questions divided into 5 areas, the areas include the following: 1) enabling and partnership, 2) providing general information, 3) providing specific information about the child, 4) coordinated and comprehensive care for child and family, and 5) respectful and supportive care. This tool has been translated and validated in several countries and specifically in several diseases. In this study, the validity and reliability of this tool have been investigated. Materials & Methods: This study was a descriptive-analytical and in order to measure the validity and reliability of MPOC-20, content validity, correlation coefficient and reliability of the test-retest were done. To determine the content validity, 14 occupational therapists were asked and the result was calculated by measuring the content validity index and content validity Ratio. Then, an MPOC-20 questionnaire along with a form of demographic information and a consent form were given to 340 parents of children (children under 18 years and with different diagnosis) in clinics of Tehran. The articipants consisted of 142 girls patients (42%) and 198 boys (58%) randomly selected from public and private rehabilitation centers in different regions of Tehran. A large percentage of respondents were mothers (314 people were 92.4%). After 2 weeks, the questionnaire was again distributed among 30 of them, and the ICC coefficients were calculated. In order to determine the internal consistency, Cronbach's alpha was calculated. Results: The content validity index and content validity Ratio for all items were acceptable and no items were deleted. Cronbach's alpha was 0.81 which indicates a high correlation between items in the questionnaire. The highest Cronbach's alpha coefficient is related to the field of providing general information about the child (α=0.77). Also, in this section, the p-value was significant for all fields at the level of 0.001. In the reliability of the test-retest, the scores of the Intra-class correlation coefficient of all domains were higher than 0/6 which indicates a medium to good reliability of the questionnaire. Reliability in the field of supportive care had a high coefficient and good reliability. In other areas, the reliability was moderate. Conclusion: Considering the importance of evaluation in improvement of family-centered services provision, a strong tool is needed and MPOC-20 is well known in this regard. The results of this study showed that the Persian version of "MPOC-20" questionnaire has a good validity and reliability in children under the age of 18, and it can be used to assess family-centered services in both research studies and as clinical tool.

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“…Coordinated and comprehensive care for the child and family; and 5. Respectful and supportive care [20,21].…”

Section: Mpoc-20mentioning

confidence: 99%

The Measure of Processes of Care 20-item (MPOC-20): Validity and Reliability of the Persian Version

Broujeni

Rezaee

Azar

et al. 2021

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Parental Stress and Bringing up a Child with Cerebral Palsy: A Foreign Studies Review

Kim

Kadyrov

2022

Клиническая И Специальная Психология

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<p style="text-align: justify;">Raising a child with cerebral palsy contains difficult stress, which negatively affects everyone who is involved in this process. In native psychology, this problem is described by I.U. Levchenko, V.V. Tkacheva, V.A. Vishnevsky, T.N. Volkovskaya. However, there is a lack of research on stress for people, who are raising a child with cerebral palsy. The purpose of this review is to learn about foreign studies on stress for people, who are raising children with cerebral palsy. The article describes R. Abidin's current leading model for parental stress. The connection between raising a child with cerebral palsy and parental stress is considered based on R. Abidin's model. Particularly, the results of studies describe specific aspects of parental stress: lack of knowledge on special child care, not an equal assignment for parental responsibilities, separation anxiety, parent's health problems, social isolation, and guilt. Based on the analysis, we can conclude that raising a child with cerebral palsy is associated with a higher level of stress than raising children without disabilities. This information can be used both in similar studies for a domestic sample and in active programs to reduce parental stress.</p>

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Predictors of needs for community and financial resources for families of pre-school children with cerebral palsy

Cited by 2 publications

References 21 publications

The Measure of Processes of Care 20-item (MPOC-20): Validity and Reliability of the Persian Version

The Measure of Processes of Care 20-item (MPOC-20): Validity and Reliability of the Persian Version

Parental Stress and Bringing up a Child with Cerebral Palsy: A Foreign Studies Review

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