This study tested the feasibility and safety of a computer-based application designed to facilitate the healthy coping of children and their families who must contend with significant congenital heart disease (CHD). The application, called the Experience Journal (EJ), is a psychoeducational intervention based upon a narrative model involving the sharing of personal stories about an illness. Testing was conducted in two phases. In Phase 1, 9 parents of children with CHD and 1 adult with CHD were asked to use the EJ. After utilization, semistructured interviews assessed EJ usability and safety. In Phase 2, 40 mothers of children with CHD used the EJ during a hospitalization. Assessment of feasibility and safety was measured through the use of semistructured interviews prior to EJ utilization and 2-4 weeks after hospital discharge. Results revealed that the EJ was safe and useful for decreasing social isolation, increasing understanding of familial feelings about cardiac illness, and fostering positive reactions in mothers. Computerbased interventions that present psychoeducational and medical information closely connected toöneś own storymay open up new possibilities for families facing pediatric illnesses. Journal of the American Academy of Child and Adolescent Psychiatry 39:6This work may not be copied or reproduced in whole or in part for any commercial purpose. Permission to copy in whole or in part without payment of fee is granted for nonprofit educational and research purposes provided that all such whole or partial copies include the following: a notice that such copying is by permission of Mitsubishi Electric Research Laboratories, Inc.; an acknowledgment of the authors and individual contributions to the work; and all applicable portions of the copyright notice. Copying, reproduction, or republishing for any other purpose shall require a license with payment of fee to Mitsubishi Electric Research Laboratories, Inc. All rights reserved. AbstractThis study tested the feasibility and safety of a computer-based application designed to facilitate the healthy coping of children and their families who must contend with significant congenital heart disease (CHD). The application, called the Experience Journal (EJ), is a psychoeducational intervention based upon a narrative model involving the sharing of personal stories about an illness. Testing was conducted in two phases. In Phase 1, 9 parents of children with CHD and 1 adult with CHD were asked to use the EJ. After utilization, semistructured interviews assessed EJ usability and safety. In Phase 2, 40 mothers of children with CHD used the EJ during a hospitalization. Assessment of feasibility and safety was measured through the use of semistructured interviews prior to EJ utilization and 2-4 weeks after hospital discharge. Results revealed that the EJ was safe and useful for decreasing social isolation, increasing understanding of familial feelings about cardiac illness, and fostering positive reactions in mothers. Computerbased interventions that pr...
With the acceleration and increasing complexity of macro-scale problems such as climate change, the need for scientists to ensure that their work is understood has become urgent. As citizens and recipients of public funds for research, scientists have an obligation to communicate their findings in ways many people can understand. However, developing translations that are broadly accessible without being "dumbed down" can be challenging. Fortunately, tenets of visual literacy, combined with narrative methods, can help to convey scientific knowledge with fidelity, while sustaining viewers' interest. Here we outline strategies for such translating, with an emphasis on visual approaches. Among the examples is an innovative, National Science Foundation-funded professional development initiative in which National Park rangers use scientists' imagery to create compelling explanations for the visiting public. Thoughtful visualizations based on interpretive images, motion pictures, 3D animations and augmented, immersive experiences complement the impact of the natural resource and enhance the role of the park ranger. The visualizations become scaffolds for participatory exchanges in which the ranger transcends the traditional roles of information-holder and presenter, to facilitate provocative conversations that provide members of the public with enjoyable experiences and well-founded bases for reflection and ultimately understanding. The process of generating the supporting visualizations benefits from partnerships with design professionals, who develop opportunities for engaging the public by translating important scientific findings and messages in compelling and memorable ways.
Since no embodied speaker can produce more than a partial account, and since the process of producing meaning is necessarily collective, everyone's account within a specified community needs to be encouraged. -Linda Alcoff, 1995 [1] ABSTRACT We present an approach and a tool for helping individuals express small story-like expressions of personal perspectives in the context of larger, collage-like incubators of public opinions. Our goal is to work with people to create technologically supported public discourse spheres in which they can both represent personal views and practise new ways of forming collective opinions. We present the design and use of one public sphere system, TexTales, a large-scale photographic installation to which people can send SMS text message captions. We review one community's experiences with TexTales, and discuss the insights we gained about how residents scale and ground their civic discourse and move between expressions of individual perspectives and public opinions.Keywords: public opinion, civic discourse, multimodal interfaces, intermodal literacies, SMS text, interactive community projection, citizen journalism. IntroductionCivic discourse is, in a sense, like storytelling. Public spheres -from kitchens to Internet chat rooms -are filled with people experimenting with ideas, practising arguments and learning from each other by trading perspectives through narrative. As these stories are constructed in -and, in turn help to construct -public spheres, they become both expressions of individual perspectives and the building blocks of public opinions. It is in these spaces that distinctions between good citizens, good storytellers and good learners blur as participants practise a kind of communicative dexterity, moving among a variety of views, roles and scales. Our principal contribution is a way for individuals and communities to form both new opinions and new ways of forming opinions. Our aim is to develop public spheres that explicitly support the development of multiple perspectives through a plurality of voices and expressive modalities.
The paper describes lessons learned about the design of a form for interactive narrative. The lessons are based on an initial prototype and have ramifications for both a next-step implementation and for broader understanding of the form. Key lessons pertain to pacing, narrative structure, giving feedback through the interface, and contexts for use.
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