This study examined disclosure strategies in cystic fibrosis (CF) and their psychosocial implications for adults. Disclosure styles were examined based on Corrigan and Lundin's (2001) model. In-depth qualitative interviews were conducted with 42 individuals diagnosed with CF from two CF clinics in Israel. Disclosure of CF is complex and involves multiple strategies. Two main themes regarding disclosure presented here are: (a) disclosure styles and their psychosocial implications, and (b) perceptions of the differences between previous and current disclosure styles. Of disclosure styles suggested by Corrigan and Lundin (2001), most participants were found to resort to secrecy, selective disclosure, and indiscriminate disclosure and very few resorted to avoidance or broadcasting. Disclosure was also dynamic, and individuals changed their disclosure styles during various stages of life and situations, in consideration of its benefits and costs. Decisions regarding whether and to what extent to disclose the illness were based on two processes: weighing the benefits and costs of disclosure and owning the decision to disclose. Professionals should partner with the patients to understand patients' disclosure decisions and support them. Formal and informal support may assist
The increasing scholarly interest in the absence of fathers from family-focused interventions by the social services tends to focus on the role of fathers, mothers, and social workers in this absence. The role of policymakers, however, has been neglected. This article examines the case study of policymakers in the Israeli social services to fill in this gap and examine the role of policy and policymakers in fathers’ absence. The findings reveal that policy is based on the ‘mother-based intervention’ assumption—the services are built around the assumption that interventions include only mothers, and therefore make engaging fathers an exception.
While it is widely accepted that social work interventions are more productive when they include fathers, fathers are largely left out of child and family social service interventions in Israel and most Western countries. Current research worldwide focuses on the role that fathers, mothers and social workers play in causing this phenomenon. In this article, we shed light on the importance of a fourth element: the policy-making process. In a case study of Israeli social services, we interviewed leading bureaucrats and policy makers regarding their position on engaging fathers and identified three main conflicts hindering policy makers’ ability and motivation to promote policy favouring father engagement: a gendered profession conflict, a political conflict, and an ethical conflict. We show how these conflicts, each emerging from a different sphere, together create a conflict-ridden environment that may explain policy makers’ lack of action. Finally, we provide our conclusion and discuss the limitations of the study.
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