Background: The Measure of Processes of Care (MPOC) questionnaires evaluate Family-Centered Practice (FCP) in services for children with developmental disorders. The MPOC-20 and MPOC-SP are completed by parents and by rehabilitation professionals, respectively, and are widely used in several countries. Objectives: To translate and cross-culturally adapt the MPOC-20 and MPOC-SP to Brazilian Portuguese and evaluate their reliability and internal consistency. Methods: this study included translation, back-translation, cognitive interviews, testing of the pre-final versions, analysis of reliability and of internal consistency of the final versions. Respondents included parents and rehabilitation professionals from rehabilitation centers in four capital cities in Brazil. Results: Translation and cultural-adaptation procedures ensured the Brazilian versions were understandable and semantically equivalent to the original MPOC-20 and MPOC-SP. Pre-final and final versions were analyzed and vetted by the original authors. The MPOC-20 internal consistency Cronbach's alpha varied between 0.61 and 0.91 (n = 107), the test-retest reliability ICC varied between 0.44 and 0.83 and the standard error of measurement varied between 0.66 and 0.85 (n = 50). The MPOC-SP internal consistency Cronbach's alpha varied between 0.52 and 0.83 (n = 92), the test-retest reliability ICC between 0.83 and 0.90, and the standard error of measure between 0.34 and 0.46 (n = 62).

Este é um artigo publicado em acesso aberto (Open Access) sob a licença Creative Commons Attribution, que permite uso, distribuição e reprodução em qualquer meio, sem restrições desde que o trabalho original seja corretamente citado.Resumo: Este artigo é um ensaio sobre a literatura do campo disability studies. São analisadas críticas feitas por este campo às ideologias e práticas da reabilitação por sua contribuição para a opressão sistemática de pessoas com deficiência. As críticas evidenciam conflitos entre as necessidades das profissões de reabilitação e das pessoas com deficiência, a disparidade de poder entre profissionais e clientes na decisão clínica, o viés capacitista na assistência e a invisibilização da deficiência na formação profissional. Para que o ímpeto de superação destas ideologias e práticas, estimulado pela ampla adoção da Classificação Internacional de Funcionalidade, Incapacidade e Saúde, não fique restrito ao nível discursivo, são analisadas possibilidades concretas de mudança para a prática profissional e educação na fisioterapia e terapia ocupacional em particular. A primeira é garantir o acesso de pessoas com deficiência à formação universitária. A pesquisa acadêmica sobre mas sobretudo por pessoas com deficiência é necessária. Intervenções educativas para mudanças atitudinais de docentes e discentes também podem ser positivas, assim como o treinamento em prática centrada na pessoa e com foco na participação. A crítica dos estudos da deficiência às práticas da reabilitação demanda a ampliação da ação para o combate à opressão. A reabilitação precisa alcançar uma prática de promoção e defesa dos direitos humanos e da justiça social junto às pessoas com deficiência. Palavras-chave: Reabilitação, ClassificaçãoAbstract: This is an essay about the literature from the field of disability studies. It analyses rehabilitation ideologies and practices that contribute to the systematic oppression of people with disabilities. The criticism coming from disability studies points to conflicts of interest between rehabilitation professionals and people with disabilities, power disparities in clinical decision-making, ableist biases in care processes, and the invisibility of these issues in professional training. Although there is great interest among professionals in moving on from outdated models of functioning and adopting the International Classification of Functioning, Disability and Health, its uncritical use may result in empty discourse with limited practical improvement. To avoid that, some concrete options for change in practice and education of physical and occupational therapy are analyzed. The first step is guaranteeing access of people with disabilities to university education. Academic research not only about but by people with disabilities will bring great advances. Educational interventions to improve attitudes and behaviors of students and professors towards people with disabilities can also produce sensible change. Additionally, client centered practice directed to increasing particip...

A Prática Centrada na Família (PCF), considerada como best practice na assistência à criança, é um conjunto de atitudes e valores que reconhece a família como centro do cuidado. A MPOC-20 e MPOC-SP são questionários que avaliam a percepção dos cuidadores e dos profissionais de saúde, acerca da PCF. Este trabalho descreve o processo de tradução e adaptação transcultural dos instrumentos para o português brasileiro. A tradução deve garantir total compreensão das questões pelos entrevistados, assim, para avaliar essa compreensão utilizamos como ferramenta a entrevista cognitiva. Foram identificados problemas de compreensão em ambos os questionários, e foram feitos ajustes para solucioná-los. O uso da entrevista cognitiva foi fundamental para o processo de tradução e adaptação transcultural dos questionários.

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Objective To systematically review evidence on the coverage, content validity and internal structure of self-report measures capturing subjective aspects of participation for adults with disabilities. Data sources EMBASE, MEDLINE and reference lists were searched until July 10th, 2022 for articles on measurement properties of instruments measuring participation as defined in the International Classification of Functioning, Disability and Health, from a subjective perspective. Method Each instrument was assessed for its coverage of subjective aspects of participation. The Consensus-based Standards for the Selection of Health Measurement Instruments were used to assess the quality of each study. Content validity and internal structure (structural validity, internal consistency and cross-cultural validity) were rated against published standards and qualified by the adapted Grading of Recommendations Assessment, Development and Evaluation. Results Thirty-eight studies regarding 10 instruments were analysed. Most instruments mix activity and participation items. Only the Measure of Experiential Aspects of Participation (with high-quality evidence of sufficient structural validity and generally sufficient internal consistency), the Participation Enfranchisement and the Community Integration Measure showed adequate coverage. For all instruments, evidence of content validity is of low- to very low quality. There is high-quality evidence that the Participation Scale is not unidimensional. Conclusion In general, the coverage and the evidence for content validity and internal structure of measures capturing experiential aspects of participation are limited. The Measure of Experiential Aspects of Participation has the best level of evidence in support of its use. The score of the Participation Scale cannot be considered an adequate reflection of participation.