Digital media provide novel tools for patient activists from disease-and conditionspecific communities. While those with debilitating conditions or disabilities have long recognised the value of collective action for advancing their interests, digital media offer activists unparalleled opportunities to fulfil their goals. This article explores the shifting politics of 'activism' in the increasingly digitally mediated, commercialised context of healthcare, asking: what role have digital media played in the repertoire of activists' strategies? And, to what extent and how has the use of such media impacted the very concept of activism? Building on sociological ideas on emergent forms of 'biological citizenship' and drawing on findings from an analysis of available media, including television and print news reportage, online communications, published histories and campaign material and other information produced by activists in HIV/ AIDS and breast cancer communities, we argue that digital media have profoundly shaped how 'activism' is enacted, both the goals pursued and the strategies adopted, which serve to broadly align contemporary patient communities' interests with those of science and business. This alignment, which we characterise as 'bio-digital citizenship', has involved a fundamental reorientation of 'activism' from less of a struggle for rights to more of a striving to achieve a public profile and attract funding. We conclude by calling for a reconceptualisation of 'activism' to more adequately reflect the workings of power in the digital age, whereby the agency and hopes of citizens are central to the workings of political rule.
Purpose Culturally familiar food is of great importance to migrants. The purpose of this paper is to examine the role of food in the lives of South African migrants to Australia. How food impacts on notions of identity and belonging for immigrants is framed and discussed within the context of nostalgia, sharing and Bourdieu’s “habitus”. Design/methodology/approach Through mixed qualitative methods, including participatory research, document analysis and in-depth interviews, this study examines the everyday experiences of South African-Australians. The study employs an interpretivist approach that aims for greater understanding of the subject through the perspectives of the research participants. Findings Culinary rituals and traditions feature large in personal narratives of adjustment that reveal the important role of food in contributing to identity translation in a destination society and, ultimately, the attainment of belonging for migrants. Research limitations/implications The study provides a “snapshot” of a topic that would benefit from further exploration. Practical implications The importance for migrants to have access to cultural traditions surrounding food is acknowledged in the contemporary world where increasingly mobile populations need to maintain a sense of identity and feel a sense of belonging while integrating into host societies. Social implications Traditional cuisines are an integral part of the mechanisms by which migrants can better integrate leading to overall greater social cohesion. Originality/value The study contributes a new dimension to the body of literature pertaining to food access and security for culturally diverse groups in multicultural societies.
Digital media offer the chronically ill, especially those who experience related isolation, unparalleled opportunities to connect with others. This article asks, how do these individuals ascribe meaning to and use these media to manage their condition and related isolation? Using the concepts of affordance and emotional community, and drawing on the findings from an Australian study on patients’ use of digital media, we examine individuals’ ambivalent ascriptions of media, which are both feared and distrusted for the risks they present and embraced as invaluable tools of social connection. We argue that this ambivalence is explicable in terms of the communities to which the chronically ill belong which are founded on strong emotional bonds. In a context in which individuals tend to feel isolated through pain and/or stigmatisation, digital media may offer powerful means for sharing and affirming their experiences, the subjective benefits of which may outweigh the perceived risks. The article discusses the functions and features of digital media that the chronically ill value and distrust and concludes by considering the implications of our analysis for strategies to address the needs of people who feel isolated as a consequence of their condition.
Purpose The purpose of this paper is to investigate the effect of encounters on police legitimacy and levels of trust in the police in the Monash Local Government Area in the state of Victoria, Australia. Monash was chosen as it had experienced declining results in the official National Survey of Community Satisfaction with Policing in relation to police legitimacy and trust. Design/methodology/approach A qualitative case study comprising 18 interviews and six focus groups with community representatives from Monash is employed in the paper. Findings When procedural justice approaches are applied during encounters between the police and the public, encounters contribute to securing legitimacy for the police. Contact between the police and the public in everyday situations also enhances trust in the police, depending on the way the police conduct themselves during such interactions. Research limitations/implications Findings from a qualitative case study are not able to be widely generalised but the conclusions are still useful for informing insights into processes impacting police legitimacy and trust. Practical implications Contributes to informing evidence-based police practice around the way police conduct themselves during community interactions; informs policy decisions around allocation of funding for law enforcement with more officers required to carry out community policing; emphasises the importance of prioritising partnerships with communities; demonstrates that positive police/community relations have wider social cohesion implications in a contemporary era of counter-terrorism priorities. Originality/value The majority of research in this field to date has been quantitative. A qualitative approach provides fresh insights into the mechanisms of police legitimacy, especially the role of encounters and procedural justice.
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