The SDQ or an adapted version could contribute to the early identification of mental health problems in children with ID. Further research is needed to confirm the validity of the SDQ when used in a sample of children with ID.
The SDQ is a valid tool for the identification of psychosocial problems in preschool-aged children by PCH. However, the low reliability of some SDQ subscales does not justify use of these subscales for decisions about further treatment.
The aim of this study was to evaluate the agreement between children and proxies as well as the agreement between methods of administration in assessing Health-Related Quality of Life (HRQoL) using the TNO AZL Children's Quality Of Life (TACQOL) questionnaire. A random sample from a Dutch cohort of 14-year-old very low birth weight children and their parents were invited to participate in a face-to-face (n = 150) or telephone interview (n = 150). Participants were also sent a questionnaire by mail. The response rate was 83%. Inter-rater and intermethod agreement were generally good in observable HRQoL domains, and moderate in less readily observable, and possibly less stable, domains such as moods, pain and physical symptoms, and social functioning. In measuring children's HRQoL using the TACQOL, the results and their interpretation are dependent on the source of information and the method of administration.
In paediatric research, Health-Related Quality-of-Life (HRQoL) has received increasing recognition as an important health outcome. This study aimed to investigate the nature and prevalence of HRQoL problems in children with different chronic diseases. Data were available on 318 children aged 8-11 years with different diseases: congenital heart disease (n ¼ 50); coeliac disease (n ¼ 105); asthma (n ¼ 32); cancer (n ¼ 23); juvenile chronic arthritis (n ¼ 45); children with capillary haemangioma (n ¼ 25) and severe meningococcal disease (n ¼ 38). They all answered a validated generic instrument [TNO-AZL Children's Quality of life questionnaire] (TACQoL), in the outpatient clinic or at home. Analyses of variance were performed to investigate differences in mean scores for children with chronic conditions in comparison to healthy children. Prevalence of children at risk for substantial HRQoL problems was based on the 25th percentile in the norm population. In comparison to healthy children, only a small number of differences were found in mean scores of children studied. In contrast, prevalence of HRQoL problems in children with chronic diseases was higher in several domains. It is concluded that using an indicator variable of the norm 25th percentile seems important in identifying at-risk children with chronic disease.Keywords: Chronic disease, childhood, health-related quality-of-life, at-risk, consequencesEn la investigació n pediátrica, la Health-Related Quality-of-Life (HRQoL) ha recibido un creciente reconocimiento como una forma importante de evaluació n de resultados en aspectos de salud. Este estudio tenía como objeto investigar la naturaleza y prevalencia de los problemas HRQoL en niñ os con diferentes enfermedades cró nicas. Los datos estuvieron disponibles en 318 niñ os con edades entre los 8 y 11 añ os, con diferentes enfermedades: enfermedad cardiaca congénita (n ¼ 50), enfermedad celíaca (n ¼ 105), asma (n ¼ 32), cancer (n ¼ 23), artritis juvenil cró nica (n ¼ 45), niñ os con hemangioma capilar (n ¼ 25) y enfermedad meningocó ccica severa (n ¼ 38). Todos contestaron un instrumento genérico validado [TNO-AZL Children's Quality of Life Questionnaire] (TACQoL) en la clínica de consulta externa o en casa. Se realizó un análisis de variació n para investigar las diferencias en las calificaciones promedio en los niñ os con afecciones cró nicas en cornparació n a los niñ os sanos. La prevalencia de niñ os en riesgo para tener problemas substánciales HRQoL se basó en la percentila 25 de la norma poblacional. En comparació n a los niñ os sanos se encontró solamente un nú mero pequeñ o de diferencias en las calificaciones de los niñ os estudiados. En contraste la prevalencia de los problemas del HRQoL en los niñ os con enfermedades cró nicas fue más alta en varias áreas. Concluimos que el uso de un indicador variable de la norma de la percentila 25 parece ser importante en la identificació n de niñ os en riesgo que cursan con una enfermedad cró nica.Palabras clave: Enfermedad crónica, infancia, calidad d...
BackgroundValidated questionnaires can support the identification of psychosocial problems by the Preventive Child Health Care (PCH) system. This study assesses the validity and added value of four scoring methods used with the Strengths and Difficulties Questionnaire (SDQ) for the identification of psychosocial problems among children aged 7–12 by the PCH.MethodsWe included 711 (of 814) children (response: 87%) aged 7–12 undergoing routine health assessments in nine PCH services across the Netherlands. Child health professionals interviewed and examined children and parents. Prior to the interview, parents completed the SDQ and the Child Behaviour Checklist (CBCL), which were not shown to the professionals. The CBCL and data about the child's current treatment status were used as criteria for the validity of the SDQ. We used four SDQ scoring approaches: an elevated SDQ Total Difficulties Score (TDS), parent-defined difficulties, an elevated score for emotional symptoms, conduct problems or hyperactivity in combination with a high impairment score, and a combined score: an elevated score for any of these three methods.ResultsThe Cohen's Kappa ranged from 0.33 to 0.64 for the four scoring methods with the CBCL scores and treatment status, generally indicating a moderate to good agreement. All four methods added significantly to the identification of problems by the PCH. Classification based on the TDS yielded results similar to more complicated methods.ConclusionThe SDQ is a valid tool for the identification of psychosocial problems by PCH. As a first step, the use of a simple classification based on the SDQ TDS is recommended.
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