Worse patient–physician relationship is associated with more fear of cancer recurrence (Deimos Study): A study of the Palliative Care Working Committee of the Turkish Oncology Group (TOG)

Alkan, Ali; Yaşar, Arzu; Güç, Zeynep Gülsüm; Gürbüz, Mustafa; Başoğlu, Tuğba; Göksu, Sema Sezgin; Başal, Fatma Buğdaycı; Türk, Hacı Mehmet; Özdemır, Özlem; Çınkır, Havva Yeşil; Güven, Deniz Can; Kuş, Tülay; Türker, Sema; Koral, Lokman; Karakaş, Yusuf; Ak, Naziye; Paydaş, Semra; Karcı, Ebru; Demıray, Atıke Gokçen; Demir, Atakan; Alan, Özkan; Keskin, Özge; Nayır, Erdinç; Tanrıverdi, Özgür; Yavuzşen, Tuğba; Yumuk, Perran Fulden; Ateş, Öztürk; Çoşkun, Hasan Şenol; Turhal, Serdar; Şenler, Filiz Çay

doi:10.1111/ecc.13296

Cited by 4 publications

(1 citation statement)

References 36 publications

(41 reference statements)

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“…Similarly, adherence to medication was reported to be low in cases of poor patient-physician relationships [12]. Moreover, poor patientphysician relationships are associated with greater fear of cancer recurrence [22]. A vicious cycle is created in which a poor patient-physician relationship further decreases PRO adherence due to increased fear of cancer recurrence.…”

Section: Barriersmentioning

confidence: 99%

Facilitators of and barriers to continued recording of patient-reported outcomes based on qualitative interviews of patients with gynecological cancer

Higashiyama,

Yamaguchi,

Wakabayashi

et al. 2024

Preprint

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Backgroud: The systematic monitoring of patients based on patient-reported outcomes (PROs) has positive effects on patient–physician communication, symptom management, and quality of life; however, a major problem with PRO recording is the lack of adherence. The factors that affect patient adherence with PRO recording remain unclear. This study aimed to provide qualitative insights by identifying facilitators of and barriers to PRO adherence in patients with gynecological cancer. Methods Data were collected from nine patients diagnosed with gynecological cancer and admitted for treatment at the Kyoto University Hospital via semistructured interviews. Interviews were audiotaped and transcribed verbatim. Coding and qualitative content analysis of the transcripts were completed by two independent researchers. Results Eight categories, including five facilitators and five barriers to PRO adherence, were identified. The five facilitators were “adopting a healthier lifestyle,” “perceiving the benefits of PRO recording,” “desiring communication with the physician,” “having a trustful relationship with the physician,” and “understanding functions and benefits of PRO recording.” The five barriers were “cumbersome nature,” “unnecessary exercise,” “fear of cancer recurrence,” “lack of suitable format,” and “poor relationship with the physician.” Conclusions Suitable interventions to improve adherence to PROs may enable patient-centered care by enhancing facilitators of and eliminating barriers to such adherence.

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Section: Barriersmentioning

confidence: 99%

Facilitators of and barriers to continued recording of patient-reported outcomes based on qualitative interviews of patients with gynecological cancer

Higashiyama,

Yamaguchi,

Wakabayashi

et al. 2024

Preprint

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Development and reliability and validity test of the Fear of Cancer Scale (FOCS)

Feng

et al. 2022

Annals of Medicine

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Objective To develop a Fear of Cancer Scale (FOCS) for non-cancer populations. Methods FOCS was developed by classical measurement theory. A total of 15 college students were invited to conduct semi-structured interviews. Seven experts were invited for expert consultation. A total of 2012 Chinese college students who had completed the electronic questionnaire on WJX.cn platform was included. The reliability and validity of FOCS were verified. Multiple linear regression analysis was adopted to explore the influencing factors of cancer fear among college students and further verify the validity of FOCS. Results There were 17 items in the FOCS, including two subscales – direct fear (8 items), and indirect fear (9 items). FOCS had good validity and reliability. Multiple linear regression showed that GAD-7 score, CSDS score, negative coping score, positive coping score, guardian’s highest education, gender, life satisfaction, nationality and major were the influencing factors of cancer fear ( p < .05). Conclusions The 17-item FOCS was a reliable and valid measure to examine the level of cancer fear in non-cancer populations.

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Partnering With Patients and Caregivers in Cancer Care: Lessons From Experiences With Transgender, Hispanic, and Pediatric Populations

Katz

Alpert

Aristizabal

et al. 2023

American Society of Clinical Oncology Educational Book

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A cancer diagnosis thrusts patients and caregivers into a foreign world of health care with systems, protocols, and norms that can leave little room for individual needs and circumstances. Quality and efficacious oncology care requires clinicians to partner with patients and caregivers to understand and incorporate their needs, values, and priorities into information sharing, decision making, and care provision. This partnership is necessary for effective patient- and family-centered care and access to individualized and equitable information, treatment, and research participation. Partnering with patients and families also requires oncology clinicians to see that our personal values, preconceived ideas, and established systems exclude certain populations and potentially lead to poorer care for all patients. Furthermore, inequitable access to participation in research and clinical trials can contribute to an unequal burden of cancer morbidity and mortality. Leveraging the expertise of the authorship team with transgender, Hispanic, and pediatric populations, this chapter provides insights and suggestions for oncology care that are applicable across patient populations to mitigate stigma and discrimination and improve the quality of care for all patients.

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Worse patient–physician relationship is associated with more fear of cancer recurrence (Deimos Study): A study of the Palliative Care Working Committee of the Turkish Oncology Group (TOG)

Cited by 4 publications

References 36 publications

Facilitators of and barriers to continued recording of patient-reported outcomes based on qualitative interviews of patients with gynecological cancer

Facilitators of and barriers to continued recording of patient-reported outcomes based on qualitative interviews of patients with gynecological cancer

Development and reliability and validity test of the Fear of Cancer Scale (FOCS)

Partnering With Patients and Caregivers in Cancer Care: Lessons From Experiences With Transgender, Hispanic, and Pediatric Populations

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