Women with learning disability and uptake of screening: audit of screening uptake before and after one to one counselling

Biswas, Mira; Whalley, Helena; Foster, Julie; Friedman, Ellis; Deacon, Richard

doi:10.1093/pubmed/fdi055

Cited by 27 publications

(39 citation statements)

References 5 publications

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“…It was evident that participants often contributed to a cost-benefit analysis during which the benefits of carrying out screening were balanced against the potential for distress as part of best interest decisions and, consistent with previous research (e.g. Biswas et al, 2005), that decisions not to proceed with screening are appropriate in some circumstances.…”

Section: Discussionsupporting

confidence: 75%

“…Studies designed to improve the uptake of cervical screening by women with intellectual disabilities using learning disability nurse interventions have demonstrated some improvement; however this research also suggests that cervical screening may not be considered in the best interest of some women on the basis of their established lifestyle behaviours and low risk status (Wilkins, 2004;Biswas, Whalley, Foster et al, 2005). Watts (2008) in a review of the literature argued that there was 'a notable gap in the research literature of fully reported empirical studies investigating factors that prevent women with intellectual disabilities from accessing cervical screening' (p. 524).…”

Section: Introductionmentioning

confidence: 99%

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The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities

Lloyd¹,

Coulson

2014

J Intellect Disabil

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Access from the University of Nottingham repository:http://eprints.nottingham.ac.uk/41591/1/The%20role%20of%20learning%20disability %20nurses%20in%20promoting%20cervical%20screening%20uptake%20in%20women %20with%20intellectual%20disabilities-%20a%20qualitative%20study%20AAM.pdf Copyright and reuse:The Nottingham ePrints service makes this work by researchers of the University of Nottingham available open access under the following conditions. This article is made available under the University of Nottingham End User licence and may be reused according to the conditions of the licence. For more details see: http://eprints.nottingham.ac.uk/end_user_agreement.pdf A note on versions:The version presented here may differ from the published version or from the version of record. If you wish to cite this item you are advised to consult the publisher's version. Please see the repository url above for details on accessing the published version and note that access may require a subscription.For more information, please contact eprints@nottingham.ac.ukCitation : J Intellect Disabil. 2014 Jun;18(2):129-145. Epub 2014 Apr 3.The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities: A qualitative study. Original Article AbstractResearch suggests that the uptake of cervical screening by women with intellectual disabilities (commonly known as learning disabilities within UK policy frameworks, practice areas and health services) is poor compared to women without intellectual disabilities. The present study explored learning disability nurses' experiences of supporting women with intellectual disabilities to access cervical screening in order to examine their role in promoting attendance and elucidate potential barriers and facilitators to uptake. Ten participants recruited from a specialist learning disability service completed a semi-structured interview and data were analysed using experiential thematic analysis. Identified individual barriers included limited health literacy, negative attitudes and beliefs, and competing demands; barriers attributed to primary care professionals included time pressures, limited exposure to people with intellectual disabilities, and lack of appropriate knowledge, attitudes and skills. Attendance at cervical screening was facilitated by prolonged preparation work undertaken by learning disability nurses, helpful clinical behaviours in the primary care context, and effective joint-working.

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Section: Discussionsupporting

confidence: 75%

Section: Introductionmentioning

confidence: 99%

The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities

Lloyd¹,

Coulson

2014

J Intellect Disabil

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“…; Biswas et al . ; Gesualdi ; Lalor & Redmond ). This is an important limitation, as we can speculate that persons receiving IDD services are likely to be more frequently oriented towards appropriate health care than those unknown to IDD services.…”

Section: Introductionmentioning

confidence: 99%

Are cervical and breast cancer screening programmes equitable? The case of women with intellectual and developmental disabilities

Cobigo

Ouellette‐Kuntz

Balogh

et al. 2013

J intellect Disabil Res

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Background Effective cancer screening must be available for all eligible individuals without discrimination. Lower rates of cervical and breast cancer screening have been reported in certain groups compared with women from the general population, such as women with intellectual and developmental disabilities (IDD). Research on the factors explaining those observed differences is crucial to determine whether practices are unfair and could be improved. The aim of this population‐based study was to describe cancer screening utilisation by women with IDD in Ontario, Canada compared with other women in Ontario. The specific objectives were (1) to estimate the rates of cervical and breast cancer screening among eligible women with IDD in Ontario; (2) to compare the rates of cervical and breast cancer screening between eligible women with and without IDD; and (3) to examine if any observed differences between women with and without IDD persist after factors such as age, socio‐economic status, rurality and healthcare utilisation are accounted for. Method This study draws women with IDD from an entire population, and draws a randomly selected comparison group from the same population. It controls for important confounders in cancer screening within the limitations of the data sources. The study was conducted using health administrative databases and registries in Ontario, Canada. Two cohorts were created: a cohort of all women identified as having an IDD and a cohort consisting of a random sample of 20% of the women without IDD. Results The proportion of women with IDD who are not screened for cervical cancer is nearly twice what it is in the women without IDD, and 1.5 times what it is for mammography. Conclusions Findings suggest that women with IDD experience inequities in their access to cancer screening. Public health interventions targeting this population should be implemented.

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“…In this group, 48 were eligible for breast screening and 37 (77%) had attended. Although the figures for breast screening were high, mammography up-take accounted only for those in contact with learning disability services (28).…”

Section: Up-take Of Mammography Screening In Women With Ds and Other mentioning

confidence: 98%

“…Another British study undertook an audit of women with moderate to severe learning disabilities aged 20-64 years in contact with NHS learning disability services (28). Among 235 eligible women known to the service, only 160 were traceable.…”

Section: Up-take Of Mammography Screening In Women With Ds and Other mentioning

confidence: 99%

Breast cancer surveillance in women with intellectual disabilities

Willis¹,

Kennedy²,

Kilbride³

et al. 2008

International Journal on Disability and Human Development

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Breast cancer is the most frequent malignant neoplasm observed among women. For the subgroup of women with learning/intellectual disability, it is unclear whether their risk for breast cancer is as high as it is for the general population. Objective: Evaluation of breast cancer frequency and breast cancer screening in women with learning disability, focusing on Down syndrome. Method: Review of the literature. Results: The rather scant literature on the topic suggests women with learning disability may have the same or lower risk of breast cancer. The subgroup of women with Down syndrome has a lower risk of breast cancer. The absence of adequate, good-quality epidemiological data on this topic makes it difficult to evaluate any trend of increasing or decreasing risk for these women. However, given that medical achievements have seen significant gains in life expectancy for this group, it is likely that the number of women presenting with symptomatic breast cancer is increasing, even if the rate is unchanged. Evaluation of the literature on the use of mammography screening services suggests that women with learning disability may be either deliberately or passively excluded from screening programs. Uptake among those who are invited for mammography appears to be poor, and alternatives, such as clinical breast examination, appear to be underutilized. Conclusion: We suggest that women with learning disability should not be excluded from breast cancer screening services. Increased awareness of the risks of breast cancer among general practitioners and other health personnel is needed, as is the evaluation and development of appropriate screening methods for this special-needs population

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Women with learning disability and uptake of screening: audit of screening uptake before and after one to one counselling

Cited by 27 publications

References 5 publications

The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities

The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities

Are cervical and breast cancer screening programmes equitable? The case of women with intellectual and developmental disabilities

Breast cancer surveillance in women with intellectual disabilities

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