Women Warriors

Hale, Sondra; Baker, Alison

doi:10.2307/4023220

Cited by 3 publications

(5 citation statements)

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“…Certainly further inquiry is needed that explores the experiences of less articulate verbal and nonverbal men and women with autism as well as exploring the experiences of individuals with autism from various socioeconomic backgrounds. There is sufficient information in the first-hand accounts of autism to suggest that such inquiry would be a contribution to our understanding of all people with the autism label (Barron and Barron, 1992; Grandin, 1992, 1995; Williams, 1992, 1994; McKean, 1994; Blackman, 1999; Hale and Hale, 1999; Mukhopadhyay, 2000; Biklen, 2005; Goddard and Goddard, 2012). …”

Section: Discussionmentioning

confidence: 99%

“…First-hand accounts of autism also revealed challenges with controlling, executing, and combining action or movements (Volkmar and Cohen, 1985; Cesaroni, 1990; Grandin, 1992; Williams, 1992, 1994; McKean, 1994; Hale and Hale, 1999; Mukhopadhyay, 2000; Frugone, in Biklen, 2005; Mukhopadhyay, in Biklen, 2005; Goddard and Goddard, 2012). Alberto Frugone described his challenges with action and movements: “Right from the beginning of an action, I was conscious of my inability to access motor planning and I was lost in an unacceptable motor silence” (Frugone, in Biklen, 2005, p. 190).…”

Section: Introductionmentioning

confidence: 99%

“…This causes me a great deal of pain and makes me look as though I am not comprehending when, in fact, I am crying to respond in an appropriate manner. (Hale and Hale, 1999, p.32)…”

Section: Introductionmentioning

confidence: 99%

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An exploration of sensory and movement differences from the perspective of individuals with autism

Robledo¹,

Donnellan²,

Strandt-Conroy³

2012

Front. Integr. Neurosci.

118

121

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Parents, teachers, and people who themselves experience sensory and movement differences have consistently reported disturbances of sensation and movement associated with autism. Our review of the literature has revealed both historical and recent references to and research about sensory and movement difference characteristics and symptoms for individuals with autism. What is notably infrequent in this literature, however, is research that highlights the perspective of the individual with autism. If we wish to truly understand the experience of sensory and movement differences for individuals with autism, we must explore their experiences and perspectives. This study presents a qualitative analysis of more than 40 h in-depth inquiry into the lives of five individuals with the autism label. Data were sorted into six categories: perception, action, posture, emotion, communication, and cognition. The insights into sensory and movement differences and autism offered by these individuals was illuminating. We found that the data strongly supported the presence of disruption of organization and regulation of sensory and movement differences in the lived experience of these participants with autism. The present data suggests that in autism this disruption of organization and regulation is amplified in terms of quantity, quality, intensity, and may affect everyday life. These data contribute to a more expansive view of autism that incorporates the possibility that autism is a disorder that affects motor planning, behavior, communication, the sensory motor system, and the dynamic interaction of all of these.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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An exploration of sensory and movement differences from the perspective of individuals with autism

Robledo¹,

Donnellan²,

Strandt-Conroy³

2012

Front. Integr. Neurosci.

118

121

View full text Add to dashboard Cite

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“…In addition, the autism literature suggests that sensory differences are implicated in a wide array of social difficulties in autism ( Woynaroski et al, 2013 ; Dakopolos and Jahromi, 2019 ; Kuno-Fujita et al, 2020 ; Lin, 2020 ). Autistic self-reports have highlighted the importance of subtle and pervasive sensory differences for understanding social difficulties ( Cesaroni and Garber, 1991 ; Williams, 1992 ; Hale and Hale, 1999 ; Biklen, 2005 ; Grandin, 2006 ). For example, a 13-year-old boy, “Albert,” describes being overstimulated by touch, reporting that “it hurts” and “it’s too much,” causing him to stiffen up in situations involving physical contact ( Cesaroni and Garber, 1991 , p: 306–307).…”

Section: Introductionmentioning

confidence: 99%

Autism and the Sensory Disruption of Social Experience

Boldsen

2022

Front. Psychol.

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Autism research has recently witnessed an embodied turn. In response to the cognitivist approaches dominating the field, phenomenological scholars have suggested a reconceptualization of autism as a disorder of embodied intersubjectivity. Part of this interest in autistic embodiment concerns the role of sensory differences, which have recently been added to the diagnostic criteria of autism. While research suggests that sensory differences are implicated in a wide array of autistic social difficulties, it has not yet been explored how sensory and social experience in autism relate on a phenomenological level. Given the importance of the sensory dimension of social encounters in phenomenological analyses of autism, this question must be considered crucial. This article investigates the role played by sensory differences in autistic social experience. Through a phenomenological analysis informed primarily by the philosophy of Maurice Merleau-Ponty with particular emphasis on the relation between intersubjectivity and perception, I argue that sensory differences affect the way other people appear in autistic experience on a pre-reflective level. By drawing on autistic young adults’ experiential descriptions of social encounters, this article identifies three aspects of how sensory differences affect social experiences in autism. First, social encounters manifested as sensorially disturbing, chaotic, and unpredictable events. Second, the embodied expressions of others appeared unfamiliar, threatening, and promoted a sense of detachment from the social world. Third, deliberate practices were employed to actively seek perceptual and social meaning in these disorienting social encounters. This analysis stresses the importance of understanding embodied intersubjectivity through its sensory dimensions. In addition, it indicates an important avenue for future research in exploring the potential role of practice in maintaining an intuitive grip on social meaning. By approaching social encounters as sensory and perceptual events, I emphasize how social difficulties in autism are inherently world-involving phenomena rather than a cognitive deficit reducible to the autistic person.

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“…In the last 20 years there has been an explosion of published first-hand accounts from individuals with the ASD label that begin to provide a description of how these social challenges affect their day-to-day lives [5,6,7,8,9,10,11,12,13] and first-hand accounts used in research studies [14,15,16,17]. Although it is possible that these individuals with ASD are a select and non-representative group, it is undeniable that they have much to teach us about the world of ASD.…”

Section: Introductionmentioning

confidence: 99%

Supportive Relationships in Autism Spectrum Disorder: Perspectives of Individuals with ASD and Supporters

Robledo

Donnellan

2016

Behavioral Sciences

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This study explored 17 dyads of academically successful people with Autism Spectrum Disorder (ASD) and individuals who they identified as supportive. Qualitative methods, including in-depth interviews, participant observations, and document analysis, were used to study these supportive relationships. The purpose of the study was to develop a substantive grounded theory regarding supportive relationships within the lives of individuals with ASD. A dynamic model of supportive relationships emerged, with trust, unity, and support as the three core categories of these relationships. The data suggest that the quality of the relationship between an individual with ASD and the support provider can be a critical factor within effective support. These findings suggest that there is much yet to be learned about the social world of individuals with ASD.

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Women Warriors

Cited by 3 publications

References 0 publications

An exploration of sensory and movement differences from the perspective of individuals with autism

An exploration of sensory and movement differences from the perspective of individuals with autism

Autism and the Sensory Disruption of Social Experience

Supportive Relationships in Autism Spectrum Disorder: Perspectives of Individuals with ASD and Supporters

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