Women's experiences of <scp>T</scp>akotsubo cardiomyopathy in a short‐term perspective – a qualitative content analysis

Dahlviken, Rønnaug M.; Fridlund, Bengt; Mathisen, Lars

doi:10.1111/scs.12158

Cited by 19 publications

(36 citation statements)

References 30 publications

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“…Others have described symptoms before the acute onset, mainly various forms of pain, but respiratory difficulties and malaise were also mentioned. 23 Lassitude was not reported at all, and affected breathing and malaise only mentioned briefly, whereas all of these were among the most commonly reported symptoms before the acute onset in this study. Most of the acute symptoms have been previously reported, 10 11 16–19 but the interviewees in this study gave greater emphasis to symptoms that have been less frequently reported, such as malaise, nausea and particularly lassitude.…”

Section: Discussionmentioning

confidence: 57%

Symptoms in patients with takotsubo syndrome: a qualitative interview study

et al. 2016

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ObjectiveThe aim of the study was to investigate the meaning of narrated symptoms in connection to takotsubo syndrome.Design, method, participants and settingQualitative study consisting of 25 interviews, 23 women and 2 men aged 39–84 and living in Region Västra Götaland, Sweden. The transcribed text was analysed with phenomenological hermeneutics.ResultsThe interviewees reported a large number of symptoms before, during and after the acute onset of takotsubo syndrome, including pain, affected breathing, lassitude, malaise and nausea. Several of these have not been reported previously. Symptoms before the acute onset were, even if they had been prominent, ignored by the interviewees for various reasons. During the acute phase, the symptoms could no longer be ignored and the interviewees sought healthcare. The remaining residual symptom after discharge from hospital caused a great deal of worry because the interviewees feared that they would be permanent and they felt they could not live this way. On the whole, becoming ill and having a large number of symptoms greatly impacted the lives of the interviewees and made them re-evaluate how they had been living. Furthermore, they reported feeling alone and lost regarding their symptom burden, especially in relation to their residual symptoms, which affected their health and ability to return to daily life.ConclusionsAcute symptoms, and symptoms before and after the acute ones, are a major part of the illness experience for patients with takotsubo syndrome and affect their health and well-being. Assessment of symptoms should be an integrated part of care to promote health. One way of achieving this is through the patients’ own narratives of their experiences, which are an important component in person-centred care.

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Section: Discussionmentioning

confidence: 57%

Symptoms in patients with takotsubo syndrome: a qualitative interview study

et al. 2016

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“…There is one study of interviews in 14 TS female patients at day one and 9 months after hospitalization pointing out the importance of early diagnosis to increase well-being. Initially patients struggled with confusion and insecurity concerning their diagnosis, future expectations, prevention, medical treatment and follow-up 110 . When the diagnosis of ACS was disapproved, a response of relief was expressed based on TS being a more favourable diagnosis, restoring certainty.…”

Section: Quality-of-life In Patients With Heart Diseasementioning

confidence: 99%

Prevalence of Anxiety and Depression Symptoms in Patients with Myocardial Infarction with Non-Obstructive Coronary Arteries

Daniel

Agewall

Berglund

et al. 2018

The American Journal of Medicine

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“…Little is known about information and support offered to women following an episode of TS, but it appears that there is very little is available (Dahlviken et al 2015). There is good evidence that CR and secondary prevention strategies following a cardiac event decreases morbidity and mortality, and improves QoL for patients with CVD (Dalal, Doherty & Taylor, 2015).…”

Section: Discussionmentioning

confidence: 99%

“…Emerging evidence indicates that Takotsubo is a syndrome with a significant risk of recurrence (Kato, Kitahara & Kobayashi, 2016;Singh et al 2014) and lingering symptoms that can severely impair QoL. As observed by Dahlviken et al (2015), women with TS require education and counselling from healthcare professionals to help them to comprehend and manage having a TS diagnosis. Stress management and counseling may have a role in reducing recurrence triggered by emotional stressors, especially in women with confirmed anxiety disorder (Lyon et al 2016) that appears to be prevalent in women with TS (Goh, Wong, Zaroff, Shafaee & Lundstrom, 2016;Wallström, Ulin, Määttä, Omerovic & Ekman, 2016).…”

Section: Discussionmentioning

confidence: 99%

“…CR has been shown to significantly reduce cardiovascular mortality and hospital admissions and is associated with improved QoL (Anderson et al 2016). Recent evidence suggests that women with TS do have a need for support and education similar to that offered in CR programs, but it appears that this is not routinely available to them (Dahlviken et al 2015).…”

Section: Introductionmentioning

confidence: 99%

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The Gap In Meeting The Educational And Support Needs Of Women With Takotsubo Syndrome Compared To Women With An Acute Coronary Syndrome

Schubert

Kucia

Hofmeyer

2018

CIER

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Background: Takotsubo Syndrome is a condition that causes impairment in cardiac function in the absence of significant causative coronary artery disease. Takotsubo Syndrome is most commonly reported in older women, has identical presenting symptoms to acute coronary syndrome (ACS),but differs in cause, management and outcomes. Ongoing symptoms and recurrence of Takotsubo Syndrome are not uncommon but little support is available for these women. Aims: This study compares (1) educational support and (2) participation rates in outpatient cardiac rehabilitation for women with Takotsubo Syndrome or acute coronary syndrome, and (3) ascertains whether or not they perceived similar benefits from these strategies. Methods: 23 women with Takotsubo Syndrome and 23 age-matched women with acute coronary syndrome were mailed a structured questionnaire based on cardiac rehabilitation (CR) components. Findings: The questionnaire response rate was 48% (n=11) for the Takotsubo Syndrome group and 30% (n=7) for the acute coronary syndrome group. 18% (n=2) of the women with Takotsubo Syndrome and 71% (n=5) of the women with acute coronary syndrome attended cardiac rehabilitation, with all attendees perceiving that it was beneficial in aiding their recovery. Of the nine women with Takotsubo Syndrome that did not attend cardiac rehabilitation, 67% (n=6) perceived that it would have been helpful in aiding their recovery. Women with Takotsubo Syndrome were less likely to receive educational support about their condition, particularly stress management and participate in CR compared with women with ACS, despite perceiving that elements of CR would have been helpful in aiding their recovery. Conclusions: Women with ACS had higher CR participation rates than those with Takotsubo Syndrome, and were more likely to receive educational support, particularly following hospital discharge. The majority of women with Takotsubo Syndrome were not exposed to educational support in their recovery, suggesting a role for CR tailored to the needs of these women. Nurses can take practical steps to address these gaps by providing emotional support and education for women with Takotsubo Syndrome in stress management to enhance their quality of life and reduce potential recurrence.

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Women's experiences of Takotsubo cardiomyopathy in a short‐term perspective – a qualitative content analysis

Cited by 19 publications

References 30 publications

Symptoms in patients with takotsubo syndrome: a qualitative interview study

Symptoms in patients with takotsubo syndrome: a qualitative interview study

Prevalence of Anxiety and Depression Symptoms in Patients with Myocardial Infarction with Non-Obstructive Coronary Arteries

The Gap In Meeting The Educational And Support Needs Of Women With Takotsubo Syndrome Compared To Women With An Acute Coronary Syndrome

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