WITHDRAWN: Consumer Engagement in Health Care Policy, Research and Services: Methods and Effects.

Abstract

BackgroundTo assess the effects of consumer engagement in health care policy, research and services.MethodsWe updated a review published in 2006 and 2009 and revised the previous search strategies for key databases (The Cochrane Central Register of Controlled Trials; MEDLINE; EMBASE; PsycINFO; CINAHL; Web of Science) up to February 2020. Selection criteria included randomised controlled trials assessing consumer engagement in developing health care policy, research, or health services. The International Association for Public Participation, Spectrum of Public Participation was used to identify, describe, compare and analyse consumer engagement. Outcome measures were effects on people; effects on the policy/research/health care services; or process outcomes.ResultsWe included 23 randomised controlled trials with a moderate or high risk of bias, involving 136,265 participants. Most consumer engagement strategies adopted a consultative approach during the development phase of interventions, targeted to health services. Based on four large cluster-randomised controlled trials, there is evidence that consumer engagement in the development and delivery of health services to enhance the care of pregnant women results in a reduction in neonatal, but not maternal, mortality. From other trials, there is evidence that involving consumers in developing patient information material results in material that is more relevant, readable and understandable for patients, and can improve knowledge. Mixed effects are reported of consumer-engagement on the development and/or implementation of health professional training. There is some evidence that using consumer interviewers instead of staff in satisfaction surveys can have a small influence on the results. There is some evidence that consumers may have a role in identifying broader range of health care priorities that are complementary to those from professionals. There is some evidence that consumer engagement in monitoring and evaluating health services may impact perceptions of patient safety or quality of life.ConclusionsThere is growing evidence from randomised controlled trials of the effects of consumer engagement on the relevance and positive outcomes of health policy, research and services. Health care consumers, providers, researchers and funders should continue to employ evidence-informed consumer engagement in their jurisdictions, with embedded evaluation. Systematic review registrationPROSPERO CRD42018102595.

Consumer engagement in health care policy, research and services: A systematic review and meta-analysis of methods and effects

“…Further details of the stakeholder group members and the engagement process are included in S1 Appendix. Given the significant developments since the last review, the author team as advised by the stakeholder group, deemed the publication of a new review protocol and results to be relevant and necessary [ 31 ]. At key stages of the systematic review process, stakeholders were invited to provide perspectives and feedback which were used to: craft and refine the research question(s) and definitions for the population, intervention, comparator/control, outcome [PICO] criteria; contextualize initial analyses of results from included studies; and ensure the appropriateness of interpretations from the study findings in the draft final review report.…”

“…Our review protocol was published a priori in PROSPERO [ 31 ]; for further details of our methods please refer to this listing. For our working definitions of consumer engagement, health care consumer, health care professional/researcher/policy-maker, health care policy, health care services, health care research and further descriptors of potential outcomes, S2 Appendix.…”

PROLIFERATE: An adaptable framework to evaluate participatory research products

“…This type of impact and effectiveness assessment could help to ascertain ways in which PR methods are positively in uencing health-related outcomes [7]. This lack of empirical evaluation procedures represents a gap between research and practice, which is constantly manifested in calls for evaluation frameworks and impact metrics connected to PR [1,2,3,4,5,6,7,8,9,10,11,12].…”

PROLIFERATE: An Adaptable Framework to Evaluate Participatory Research Products

“…This type of impact and effectiveness assessment could help to ascertain ways in which PR methods are positively in uencing health-related outcomes [7]. This lack of empirical evaluation procedures represents a gap between research and practice, which is constantly manifested in calls for evaluation frameworks and impact metrics connected to PR [1,2,3,4,5,6,7,8,9,10,11,12]. Thus, bridging this gap through the evaluation of PR products is necessary because billions of dollars are lost yearly in health research that fails to create a signi cant impact [7].…”