Wellbeing and quality of life of family caregivers: influence of sleep quality

Al‐Rawashdeh, Sami; Alshraifeen, Ali; Al-Hawamdih, Sajidah; Ashour, Ala

doi:10.12968/bjcn.2020.25.2.70

Cited by 5 publications

(16 citation statements)

References 22 publications

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“…The majority of them were cross‐sectional studies and used various tools. Notably, the research studies were conducted in 14 countries, Iran (Mashayekhi et al, 2015; Rafati et al, 2020), Pakistan (Anees et al, 2011; Saeed et al, 2012; Shah et al, 2017), Jordan (Alnazly, 2016; Al‐Rawashdeh et al, 2020; Shdaifat & Abdul Manaf, 2012), Turkey (Bardak et al, 2019; Cagan et al, 2018; Çelik et al, 2012), Greece (Antonaki et al, 2018; Paschou et al, 2018), India (Gill et al, 2011; Khaira et al, 2012), Brazil (Pereira et al, 2017; Santos et al, 2017), Singapore (Griva et al, 2016; Kang et al, 2019), UK (Moore et al, 2020), Canada (Rioux et al, 2012), America (Suri et al, 2011), Australia (Morton et al, 2011), Saudi Arabia (Bayoumi, 2014) and Hong Kong (Chan et al, 2016).…”

Section: Resultsmentioning

confidence: 99%

“…The majority of them were cross-sectional studies and used various tools. Notably, the research studies were conducted in 14 countries, Iran (Mashayekhi et al, 2015;Rafati et al, 2020), Pakistan (Anees et al, 2011;Saeed et al, 2012;Shah et al, 2017), Jordan (Alnazly, 2016;Al-Rawashdeh et al, 2020; the dialysis dependence patients (Anees et al, 2011;Rioux et al, 2012;Saeed et al, 2012). Furthermore, Pereira et al (2017) noticed that the impact of caregiving on HD patients is similar to that of PD patients, and their caregivers revealed lower QOL especially in the domains of vitality and emotional health.…”

Section: Characteristics Of Included Studiesmentioning

confidence: 99%

“…Depression is correlated with fatigue (Al-Rawashdeh et al, 2020;Saeed et al, 2012). Caregiver's burden is directly related to depression (Bardak et al, 2019;Paschou et al, 2018;Suri et al, 2011).…”

Section: Characteristics Of Included Studiesmentioning

confidence: 99%

“…Thus, initially low levels of physical QOL are likely related to poor sleep quality (Al-Rawashdeh et al, 2020;Çelik et al, 2012;Rafati et al, 2020). According to Çelik et al (2012) -Rawashdeh et al, 2020). Depression and unbearable burden of caregivers is associated with continuous and demanding care and emergency events (Pereira et al, 2017).…”

Section: Caregivers' Sleepmentioning

confidence: 99%

“…Perceived burden was evaluated from the majority of researchers with ZBI(Antonaki et al, 2018;Bardak et al, 2019;Cagan et al, 2018;Chan et al, 2016;Gill et al, 2011;Griva et al, 2016;Kang et al, 2019;Paschou et al, 2018;Shah et al, 2017), whileSuri et al (2011) used Cousineau Perceived Burden and two other studies(Bayoumi, 2014;Rioux et al, 2012) used Caregiver Burden Interview (CBI). To sum up, the variety of the used tools to evaluate the different results makes it difficult to show a clear correlation among the included studies.Caregivers' quality of lifeCaregivers' QOL was worse comparable with general population(Al-Rawashdeh et al, 2020;Gill et al, 2011;Shdaifat & Abdul Manaf, 2012). Most caregivers of renal patients have poorer QOL than caregivers of patients with other chronic diseases and usually the latter have better experiences than caregivers of HD patients(Anees et al, 2011;Gill et al, 2011;Suri et al, 2011).…”

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confidence: 96%

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Quality of life of caregivers of end‐stage kidney disease patients: Caregivers or care recipients?

Vovlianou

Koutlas

Ikonomou

et al. 2021

Journal of Renal Care

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Background End‐stage kidney disease (ESKD) patients require specific and continuous care, which affects caregivers' quality of life (QOL). It is necessary to define the basic problems and restrictions upon family caregivers of renal patients affecting their physical and psychological status. Objectives The main objectives of this narrative review were to examine the literature over the past 10 years, to describe factors associated with QOL of caregivers of patients with ESKD, and to identify the level of subjective burden reported by caregivers. Methods A literature search was carried out using the following electronic databases: PubMed, Medscape, Science Direct, Scopus, PsychINFO and other scientific sources. Keywords included 'quality of life', 'caregivers', 'end stage kidney or renal disease patients', 'burden' and a combination of these terms. Only studies from January 2010 to December 2020 were included in this study. Results The results found that there was significant burden and distress experienced by caregivers that affected their QOL. Patients' QOL is associated with caregivers' QOL. The hours of caring per day and the long‐term replacement therapy are associated with great burden. Conclusions More awareness to caregivers' QOL is required to meet their needs, reduce anxiety and to improve patients' QOL. Caregiver support could empower and prepare them for initiation of replacement therapy. This can potentially enhance their diseased family members' QOL and could also restrict the use of health care system resources. Given how difficult it is to conceptualize QOL, a holistic approach to patients and caregivers require QOL assessment in each stage of the kidney disease.

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Section: Resultsmentioning

confidence: 99%

Section: Characteristics Of Included Studiesmentioning

confidence: 99%

Section: Characteristics Of Included Studiesmentioning

confidence: 99%

Section: Caregivers' Sleepmentioning

confidence: 99%

mentioning

confidence: 96%

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Quality of life of caregivers of end‐stage kidney disease patients: Caregivers or care recipients?

Vovlianou

Koutlas

Ikonomou

et al. 2021

Journal of Renal Care

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Interventions to improve sleep in caregivers: A systematic review and meta-analysis

Cooper

Owen²,

Sprajcer³

et al. 2022

Sleep Medicine Reviews

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Non-psychotic depression and the social burden of illness

Петрова

Николаевна²,

Shatil³

et al. 2021

Neurology bulletin

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The burden of depression is increasing worldwide, caregivers are seen as a psychologically vulnerable group, and the social burden of non-psychotic depression remains unexplored. The aim of the study was to examine the clinical and functional characteristics of non-psychotic depression and the burden of family members of patients most involved in the interaction with patients. The study objectives included analysis of quality of life and co-occurring behavior of patients relatives as characteristics of their psychosocial adaptation. Methods. We used clinical and scales assessment of depression level, quality of life, subjective distress level, and coping behavior features. Results. Nonpsychotic depression was detected approximately half a year after the onset of symptoms, and in more than 40% of cases not by psychiatrists, self-treatment was typical. Impairments in social functioning in non-psychotic depression patients affected more in the areas of socially useful activities and social relationships, predominantly in non-working patients. 62.96% of patients rated relationships with loved ones as good, and 82.6% rated support from relatives in connection with the illness as adequate. In 60.87% of cases, there were psycho-traumatic microsocial factors. Spouses (45.5%) prevailed among supportive relatives, of whom 60% were employed, and limitation of labor activity due to the relatives illness was not characteristic, and material losses were insignificant. Supportive relatives more often than their sick relatives assessed the relationship with the sick as good (81.8%). In about 91% of cases, the attitude toward the mental illness of the relative was adequate, which exceeds the subjective assessment of patients with non-psychotic depression. The close relatives of the patients had decreased quality of life, which was mediated by severity of depression, higher than average level of distress related to mental disorder of the loved one (64,59,34 VAS scores). The structure of coping in supportive relatives is characterized on the whole by prevalence of constructive and relatively constructive coping-strategies, the most problematic being the emotional sphere of coping behavior. Conclusion. Even mild to moderate non-psychotic depression is associated with the presence of social burden of illness, covering not only the patients themselves, but also their family members, which necessitates psychologically corrective work with supportive relatives.

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Wellbeing and quality of life of family caregivers: influence of sleep quality

Cited by 5 publications

References 22 publications

Quality of life of caregivers of end‐stage kidney disease patients: Caregivers or care recipients?

Quality of life of caregivers of end‐stage kidney disease patients: Caregivers or care recipients?

Interventions to improve sleep in caregivers: A systematic review and meta-analysis

Non-psychotic depression and the social burden of illness

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