‘We don't have anyone with dementia here’: A case for better intersectoral collaboration for remote Indigenous clients with dementia

Lindeman, Melissa; Taylor, Kerry; Kuipers, Pim; Stothers, Kylie; Piper, Karen

doi:10.1111/j.1440-1584.2012.01284.x

Cited by 13 publications

(44 citation statements)

References 13 publications

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“…It is now widely accepted that standard cognitive assessment tools, such as the MMSE, which are based on the English language and western education systems may not be appropriate for use in all populations (Hatfield et al, 2009;LoGiudice et al, 2011). A large number of culturally appropriate cognitive assessment tools have been developed for use in a variety of ethnic groups (Hendrie et al, 1988;Chen et al, 2002;Koski, 2013). To date, the Kimberley Indigenous Cognitive Assessment Tool (KICA-cog) is the only validated cognitive assessment tool specific to indigenous populations (LoGiudice et al, 2011).…”

Section: Discussionmentioning

confidence: 99%

Prevalence and incidence of dementia among indigenous populations: a systematic review

Warren

Shi

Young

et al. 2015

Int. Psychogeriatr.

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Background:Indigenous populations may be at increased risk, compared with majority populations, for the development of dementia due to lower education levels and socio-economic status, higher rates of diabetes, hypertension, cardiovascular disease and alcohol abuse, an aging population structure, and poorer overall health. This is the first systematic review investigating the prevalence and incidence of dementia in indigenous populations worldwide.Methods:This systematic review was conducted in accordance with PRISMA guidelines. We searched MEDLINE, Embase, and PsycInfo for relevant papers published up to April 2015. Studies were included if they reported prevalence or incidence, the disease typically occurred after the age of 45, the study population included indigenous people, and the study was conducted in the general population.Results:Fifteen studies representing five countries (Canada, Australia, the USA, Guam, Brazil) met the inclusion criteria. Dementia prevalence ranged from 0.5% to 20%. Retrospective studies relying on medical records for diagnoses had much lower prevalence rates and a higher risk of bias than population-based prospective studies performing their own diagnoses with culturally appropriate cognitive assessment methods.Conclusions:The prevalence of dementia among indigenous populations appears to be higher than it is for non-indigenous populations. Despite a building body of evidence supporting the need for dementia research among indigenous populations, there is a paucity of epidemiological research, none of which is of high quality.

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Section: Discussionmentioning

confidence: 99%

Prevalence and incidence of dementia among indigenous populations: a systematic review

Warren

Shi

Young

et al. 2015

Int. Psychogeriatr.

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“…However, these studies also illustrate Indigenous peoples' limited understanding of how such behaviours and symptoms relate to dementia, the causes of dementia, and how dementia differs from depression, delirium and other neurological diseases. 7,[23][24][25] The studies confirm the importance of community-based education and care provided by trusted, accepted and qualified Indigenous staff. 21,22 To date, there are no systematic data from Indigenous communities in Tasmania regarding their understanding of dementia and needs for education, care and risk modification.…”

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confidence: 90%

“…As an initial step to address concerns raised by CHAC leaders about the growing impact of dementia on community members -both young and older -and their family carers, 50 volunteer members met in a series of listening and yarning sessions based on communityled approaches to data collection. 5,[18][19][20]24,25 These sessions gathered information to guide future community-based training and education. The 38 women and 12 men who participated ranged in age from 22 to 85 years (M = 46.4 ± 16).…”

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confidence: 99%

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Addressing dementia with Indigenous peoples: a contributing initiative from the Circular Head Aboriginal community

Goldberg

Cox

Hoang

et al. 2018

Australian and New Zealand Journal of Public Health

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“…A primary healthcare approach is considered the most appropriate service model for health and aged care in all remote communities [21] and must include intersectoral collaboration or even a 'whole of community' approach to be effective [23]. While art centres can be a valuable collaborative partner in health [17], new conceptual understandings may assist to enhance such collaborative possibilities.…”

Section: Remote Contextmentioning

confidence: 99%

Role of art centres for Aboriginal Australians living with dementia in remote communities

et al. 2017

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Objective: To explore the role art centres in remote communities play for Aboriginal and Torres Strait Islander Australians living with dementia. Methods: A comprehensive literature search was undertaken, with no restrictions on articles regarding year of publication. Results: Art programmes have been found to be of benefit to both people living with dementia and their carers, particularly when programmes are administered in environments that are culturally revered. Findings indicate remote art centres play a key role in maintaining traditions, culture and practices unique to Aboriginal and Torres Strait Islanders, but there is a gap in knowledge regarding how they cater for the needs of people with dementia. Conclusion: Addressing this gap will be helpful in remote areas where prevalence of dementia is up to five times that of non-Aboriginal people, and there are limited health and support services. Further research is required to explore strengths and gaps of current practices.Policy Impact: Innovative policy and practice approaches are needed to address the high prevalence of dementia in remote Aboriginal communities. Art centres have the potential to play a formal and collaborative role in supporting people living with dementia and their carers maintain social participation and access health and aged care services in a timely manner.

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‘We don't have anyone with dementia here’: A case for better intersectoral collaboration for remote Indigenous clients with dementia

Abstract: Dementia awareness in remote communities needs to be tackled from a 'whole system' perspective and not be the exclusive domain of the aged care services. Strategies that increase the critical mass of informed caregivers as well as health professionals will contribute to better services.

Cited by 13 publications

References 13 publications

Prevalence and incidence of dementia among indigenous populations: a systematic review

Prevalence and incidence of dementia among indigenous populations: a systematic review

Addressing dementia with Indigenous peoples: a contributing initiative from the Circular Head Aboriginal community

Role of art centres for Aboriginal Australians living with dementia in remote communities

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