Vitality, mental health, and satisfaction with information after breast cancer

Griggs, Jennifer J.; Sorbero, Melony E.; Mallinger, Julie B.; Quinn, Megan; Waterman, Margaret; Brooks, Beverly; Yirinec, Brian; Shields, Cleveland G.

doi:10.1016/j.pec.2006.10.008

Cited by 50 publications

(54 citation statements)

References 54 publications

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“…Fear of recurrence is a consistent theme for women who have had a breast cancer (Cimprich et al, 2005;Cappiello et al, 2007;Griggs et al, 2007) and our findings support this. In addition, active information seeking has been found to improve physical quality of life (Ransom, Jacobsen, Schmidt, & Andrykowski, 2005) and as survival issues continue to be a problem for women after breast cancer treatment the need for on-going formalised information and support services to assist in their transition and promote active coping is important.…”

Section: Discussionsupporting

confidence: 83%

“…This period is particularly important as it is a time when regular interaction with healthcare professionals diminishes and individuals may feel 'abandoned' by the healthcare system (Cimprich et al, 2005;Allen, Savadatti, & Levy, 2009;Devane, 2009). A small number of studies have explored the transition period or 're-entry' phase from end of active treatment for breast cancer to life post-treatment (Cimprich et al, 2005;Mallinger, Griggs, & Shields, 2006;Cappiello et al, 2007;Griggs et al, 2007;Meneses et al, 2007;Oxlad, Wade, Hallsworth, & Koczwara, 2008;Allen et al, 2009;Kantsiper et al, 2009). Cimprich et al (2005) suggest that whilst much research has focused on diagnosis, treatment and five-year survivorship (long-term), little attention has been paid to the period immediately following treatment completion.…”

Section: Introductionmentioning

confidence: 99%

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Moving Forward: A Qualitative Research Inquiry to Inform the Development of a Resource Pack for Women Following Primary Breast Cancer Treatment

Fenlon

Reed

Blows

et al. 2015

Journal of Psychosocial Oncology

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Disclaimer: This is a version of an unedited manuscript that has been accepted for publication. As a service to authors and researchers we are providing this version of the accepted manuscript (AM). Copyediting, typesetting, and review of the resulting proof will be undertaken on this manuscript before final publication of the Version of Record (VoR). During production and pre-press, errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal relate to this version also. PLEASE SCROLL DOWN FOR ARTICLETaylor & Francis makes every effort to ensure the accuracy of all the information (the "Content") contained in the publications on our platform. However, Taylor & Francis, our agents, and our licensors make no representations or warranties whatsoever as to the accuracy, completeness, or suitability for any purpose of the Content. Any opinions and views expressed in this publication are the opinions and views of the authors, and are not the views of or endorsed by Taylor & Francis. The accuracy of the Content should not be relied upon and should be independently verified with primary sources of information. Taylor and Francis shall not be liable for any losses, actions, claims, proceedings, demands, costs, expenses, damages, and other liabilities whatsoever or howsoever caused arising directly or indirectly in connection with, in relation to or arising out of the use of the Content. This article may be used for research, teaching, and private study purposes. Any substantial or systematic reproduction, redistribution, reselling, loan, sub-licensing, systematic supply, or distribution in any form to anyone is expressly forbidden. AbstractWhile the UK charity Breast Cancer Care has extensive resources for women with breast cancer, this research partnership developed the first resource driven and informed by primary research with these women; exploring their needs and developing the resource according to need. Data were collected from focus groups with breast cancer survivors and telephone interviews with health professionals and experts, which explored the needs of women after primary cancer treatment and were analysed using thematic analysis. As well as information, these women needed resources to help them regain control over life, adapt to a changed body and restore lost confidence.

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Section: Discussionsupporting

confidence: 83%

Section: Introductionmentioning

confidence: 99%

Moving Forward: A Qualitative Research Inquiry to Inform the Development of a Resource Pack for Women Following Primary Breast Cancer Treatment

Fenlon

Reed

Blows

et al. 2015

Journal of Psychosocial Oncology

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“…30 The association between satisfaction with the information provided and satisfaction with Breast Cancer treatment in general and preoperative information in particular has been documented. 28,31,32 The results obtained here confirm that satisfaction with Breast Reconstruction does not depend directly on women's age or educational level. 29 Nearly half of young Breast Cancer survivors expressed some regret five years after their treatment; 33 regret about Breast Reconstruction was also observed here in about half of the sample, in line with other studies.…”

Section: Iv-logisticsupporting

confidence: 77%

“…29 Nearly half of young Breast Cancer survivors expressed some regret five years after their treatment; 33 regret about Breast Reconstruction was also observed here in about half of the sample, in line with other studies. 31,32 Post-decisional regrets were observed more frequently in our study when the decision-making was not felt to be sufficiently proactive and in those who were less satisfied with their Breast Reconstruction. The impact of shared decision-making is certainly worth investigating in this context 34,35 with facilitating interventions.…”

Section: Iv-logisticmentioning

confidence: 61%

Impact of the Poly Implant Prosthesis Breast Implants Recall in Women With Breast Reconstruction: A South-Eastern French Cross-Sectional Survey Nested in a Prospective Cohort

Julian‐Reynier¹,

Bouhnik²,

Reynier³

et al. 2016

Women Health Open J

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The Poly Implant Prosthesis (PIP) Breast Implants crisis involved thousands of women in the countries concerned, women with breast cancer in particular. It was proposed here to investigate the impact of the PIP Breast Implants recall on women who had undergone Breast Reconstruction at the time of the recall and to analyze the determinants of their Breast Reconstruction decisional outcomes. A cross-sectional telephone survey was performed nested in prospective geographically based cohorts, which consisted of women from the southeastern France with breast cancer. Women were selected who had Breast Reconstructive surgery just before the PIP recall occurred. Dependent variables were the Psychological Impact of the event, Decisional Regret, and Satisfaction with Breast Reconstruction. Determinants of regret and satisfaction were analyzed using simultaneous equations. Among the 148 eligible women, 113(76%) participated. At the initial reconstruction, 90% (n=102) had a Breast Implant, 10% (n=11) had an autologous reconstruction. The PIP recall induced less intrusive thoughts, measured with the Impact of the Event Scale, in the non-PIP groups compared to the PIP one (p=0.025). Regrets about Breast Reconstruction were expressed by 57%; they occurred more frequently when the decision-making was not felt to be sufficiently proactive (adjusted Odds Ratio (ORadj) 5.1; 95% Confidence Interval (CI) (1.2-20.9)) and in those who were dissatisfied with their Breast Reconstruction (ORadj 0.7(95% CI (0.5-0.9))). Satisfaction was significantly lower in women with a Breast Implant, those whose trust in doctors had decreased, in the information-seekers and in less health-literate women. The PIP recall was not found to affect intrusive ideas or denial in women who did not have a PIP Breast Reconstruction. The high frequency of regrets could be reduced by involving women more strongly in the initial decision-making process. Using existing data-bases to assess the impact of new devices on patients' health is an option which organization deserves to be discussed.

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“…O otimismo -tendência relativamente estável para a criação de expectativas (Blackwell et al, 2013), a vitalidade -nível de vigor físico, mental e estado de alerta do indivíduo (Gouveia et al, 2012) e o funcionamento laboral são conceitos que, embora distintos, surgem muitas vezes associados entre si. Diversos estudos sugerem que a presença de vitalidade/otimismo promove, não só estados de saúde física e psicológica (Boehm, Peterson, Kivimaki, & Kubzansky, 2011;Clanton et al, 2011;Griggs et al, 2007;van Fenema et al, 2012), mas também níveis superiores de funcionamento laboral (Patel et al, 2010). No seu estudo, SalamaYounes e colaboradores (2009) encontraram uma correlação forte negativa significativa entre vitalidade e sintomas de distress psicológico, sugerindo que os constructos possuem determinantes físicas e psicológicas (eg, auto-estima e depressão) que se relacionam inversamente (SalamaYounes, Montazeri, Ismail, & Roncin, 2009).…”

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Psychological Distress: Contributes for the Portuguese Adaption of the Sq-48

Varela

Pereira

et al. 2017

Psic., Saúde & Doenças

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______________________________________________________________________ RESUMO: Recentemente, tem sido realçada a importância do distress psicológico (DP) no impacto na saúde, qualidade de vida e psicopatologia dos indivíduos. A presente investigação tem como principal objetivo contribuir para a adaptação do Symptom Questionnaire (SQ-48) para a população portuguesa, um questionário de avaliação do DP que inclui constructos psicológicos negativos e positivos avaliados segundo nove subescalas: Humor, Ansiedade, Somatização, Agorafobia, Agressão, Problemas Cognitivos, Fobia Social, Funcionamento no Trabalho e Vitalidade/Otimismo. Foi utilizada uma amostra de 758 estudantes académicos de enfermagem (81,7% do sexo feminino) com idades compreendidas entre os 17 e os 43 anos (M=20,7; DP=2,8). Foram conduzidas Análises Fatoriais Confirmatórias (AFC) para a análise da estrutura fatorial do SQ-48 e procedeu-se ao estudo da consistência interna e das validades. Os resultados da AFC evidenciam índices de ajustamento satisfatórios. A consistência interna foi avaliada através do alfa de Cronbach e foram obtidos resultados satisfatórios para as nove subescalas do SQ-48, com oscilações entre os 0,626 e os 0,870 valores. No geral, as subescalas do SQ-48 associaram-se significativamente entre si e os resultados sustentam boa validade convergente. O instrumento final e as suas características psicométricas apresentam algumas diferenças com o instrumento do estudo original e os resultados obtidos levantam algumas questões que são discutidas de forma sustentada. Os resultados validam o SQ-48 como um instrumento de avaliação consistente e multidimensional do distress psicológico, com itens devidamente adequados à medição dos constructos subjacentes. São avançadas considerações para investigações futuras. Palavras-chave: distress psicológico, avaliação psicológica, questionário de sintomas, adaptação de instrumentos, análise fatorial confirmatória ______________________________________________________________________ PSYCHOLOGICAL DISTRESS: CONTRIBUTES FOR THE PORTUGUESE ADAPTION OF THE SQ-48ABSTRACT: Recently, it has been emphasized the importance of psychological distress in the impact of an individual's health, quality of life and psychopathology. The present research's main goal is to contribute for its study by adapting the SymptomQuestionnaire (SQ-48) to the Portuguese population, a questionnaire for the evaluation of psychological distress which includes both negative and positive constructs assessed by nine subscales:

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Vitality, mental health, and satisfaction with information after breast cancer

Cited by 50 publications

References 54 publications

Moving Forward: A Qualitative Research Inquiry to Inform the Development of a Resource Pack for Women Following Primary Breast Cancer Treatment

Moving Forward: A Qualitative Research Inquiry to Inform the Development of a Resource Pack for Women Following Primary Breast Cancer Treatment

Impact of the Poly Implant Prosthesis Breast Implants Recall in Women With Breast Reconstruction: A South-Eastern French Cross-Sectional Survey Nested in a Prospective Cohort

Psychological Distress: Contributes for the Portuguese Adaption of the Sq-48

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