Vicarious Futurity in Autism and Childhood Dementia

Wong, Michelle; Heriot, Sandra

doi:10.1007/s10803-006-0317-5

Cited by 17 publications

(8 citation statements)

References 41 publications

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“…They felt that their child would make progress, but would always have some limitations. Wong & Heriot (2007) examined the outlook parents of children with autism have for their children's future through the lens of vicarious futurity. Vicarious futurity is the hope and despair one has for another's future.…”

Section: Parental Beliefs About the Course Of Autismmentioning

confidence: 99%

Parental Beliefs About Cause and Course of their Child's Autism and Outcomes of their Beliefs: A Review of the Literature

Hebert

Koulouglioti

2010

Issues in Comprehensive Pediatric Nursing

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Section: Parental Beliefs About the Course Of Autismmentioning

confidence: 99%

Parental Beliefs About Cause and Course of their Child's Autism and Outcomes of their Beliefs: A Review of the Literature

Hebert

Koulouglioti

2010

Issues in Comprehensive Pediatric Nursing

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“…Anak dengan autisme membuat orang tua mengkhawatirkan masa depan anak, serta membuat orang tua memiliki harapan yang rendah dan keputusasaan yang lebih tinggi untuk anak mereka (Wong & Heriot, 2006;Neff & Faso, 2015). Fernandez dan Arcia (2004) mengatakan bahwa orang tua juga secara tidak rasional menyalahkan diri sendiri karena menyebabkan anak mendapat autisme.…”

Section: Pendahuluan Latar Belakangunclassified

“…Hal ini bertolak belakang dengan penelitian Wong & Heriot (2006) yang menunjukkan bahwa adanya korelasi negatif yang kuat antara vicarious hope dan vicarious despair dengan nilai r = -.84. Hasil korelasi yang didapatkan oleh Wong & Heriot (2006) menggunakan sampel orang tua yang memiliki anak dengan autisme, anak dengan demensia (childhood dementia), dan pemilihan acak dari sampel normatif.…”

Section: Tabel 2 Uji Korelasi Harapan Dan Stres Orang Tuaunclassified

“…Pada saat orang tua menerima diagnosis terhadap anak, mereka berharap memiliki anak yang normal. Orang tua yang memiliki anak dengan autisme juga merasa tidak pasti terhadap prognosis dan ketepatan diagnosis (Wong & Heriot, 2006). Wong dan Heriot (2006) mengatakan beberapa orang tua berharap dengan positif akan masa depan anaknya, meskipun masih memegang keraguan akan kemampuan anak dalam mencapainya.…”

Section: Kesimpulan Dan Saranunclassified

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Hubungan Antara Harapan Dan Stres Orang Tua Yang Memiliki Anak Dengan Autisme

2019

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Autisme merupakan gangguan perkembangan yang ditandai dengan gangguan sosial perilaku dan minat yang terbatas. Setiap orang tua yang mempunyai anak, memiliki harapan yang indah dan baik untuk anaknya. Diagnosis autisme akan kondisi anak menyebabkan stres pada orang tua. Stres ini menyebabkan harapan orang tua berubah. Penelitian ini bertujuan untuk mencari korelasi antara harapan dan stres orang tua yang memiliki anak dengan autisme. Karakteristik partisipan ini adalah orang tua yang memiliki anak berusia 3-16 tahun. Anak sudah didiagnosa autisme oleh dokter atau psikolog ataupun psikiater. Partisipan yang mengisi alat ukur penelitian ini sebanyak 69 orang. Alat ukur yang digunakan untuk mengukur harapan adalah adult dispotitional hope scale (ADHS), sementara alat ukur yang digunakan untuk mengukur stres orang tua adalah parental stress scale (PSS). Metode penelitian yang digunakan adalah metode penelitian kuantitatif korelasional dengan teknik pengambilan sampel yaitu purposive sampling. Analisis data menggunakan uji korelasi dengan perangkat lunak SPSS versi ke 23. Uji korelasi yang dilakukan menunjukkan korelasi negatif yang lemah antara harapan dan stres orang tua (r = -.244, n = 69, p = .043). Hal ini menunjukkan jika stres orang tua tinggi, maka harapan itu rendah. Sebaliknya jika harapan tinggi, stres orang tua rendah. Orang tua diharapkan untuk membuat harapan yang realistis serta mengelola stres yang dapat memengaruhi kondisi psikologisnya. Autism is a developmental disorder characterized by impaired social behavior and limited interests. Every parent with children, hopes for the best for their children. If their children are diagnosed with autism, this will cause stress in parents. This stress causes the hope of parents to change. This study aims to find a correlation between hope and stress of parents who have children with autism. The characteristics of the participants are parents who have children aged 3-16 years. The child has been diagnosed with autism by a doctor, or psychologist, or psychiatrist. Participants who filled out the measurement tools of this study were 69 people. The measuring instrument used to measure expectations is the adult dispotitional hope scale (ADHS), while the measuring instrument used to measure parental stress is the parental stress scale (PSS). The research method used is quantitative correlational research method with purposive sampling technique. Data analysis was a correlation test using SPSS software version 23. The correlation test conducted showed a weak negative correlation between expectations and stress of parents (r = -.244, n = 69, p = .043). This shows that if parental stress is high, then hope is low. Conversely, if hope is high, parental stress is low. Parents are expected to have realistic hope and manage stress that can affect their psychological condition.

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“…Empirical research shows how other-oriented hope may have a beneficial outcome for both the person who has hope and the targets of that hope, and it may also have positive consequences for their relationships. Parents of children with autism showed a positive correlation between the other-oriented hope they had for their children, and their personal parental hope [4]. Moreover, they also experienced greater life satisfaction, less parenting stress and less depression [5].…”

Section: Introductionmentioning

confidence: 99%

Hope and Technology: Other-Oriented Hope Related to Eye Gaze Technology for Children with Severe Disabilities

Rytterström

Borgestig

Hemmingsson

2019

IJERPH

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Introducing advanced assistive technology such as eye gaze controlled computers can improve a person’s quality of life and awaken hope for a child’s future inclusion and opportunities in society. This article explores the meanings of parents’ and teachers’ other-oriented hope related to eye gaze technology for children with severe disabilities. A secondary analysis of six parents’ and five teachers’ interview transcripts was conducted in accordance with a phenomenological-hermeneutic research method. The eye gaze controlled computer creates new imaginations of a brighter future for the child, but also becomes a source for motivation and action in the present. The other-oriented hope occurs not just in the future; it is already there in the present and opens up new alternatives and possibilities to overcome the difficulties the child is encountering today. Both the present situation and the hope for the future influence each other, and both affect the motivation for using the technology. This emphasises the importance of clinicians giving people opportunities to express how they see the future and how technology could realise this hope.

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Vicarious Futurity in Autism and Childhood Dementia

Cited by 17 publications

References 41 publications

Parental Beliefs About Cause and Course of their Child's Autism and Outcomes of their Beliefs: A Review of the Literature

Parental Beliefs About Cause and Course of their Child's Autism and Outcomes of their Beliefs: A Review of the Literature

Hubungan Antara Harapan Dan Stres Orang Tua Yang Memiliki Anak Dengan Autisme

Hope and Technology: Other-Oriented Hope Related to Eye Gaze Technology for Children with Severe Disabilities

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