Variables associated with patient activation in persons with multiple sclerosis

Goodworth, Marie-Christine Rutter; Stepleman, Lara M.; Hibbard, Judith H.; Johns, Lisa; Wright, Dustin E.; Hughes, Mary D.; Williams, Mitzi J.

doi:10.1177/1359105314522085

Cited by 34 publications

(32 citation statements)

References 55 publications

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“…Patients working status in this study, more than one third were not working. This is consistent with [25] who stated that the majority of MS patients were unemployed, while other studies [27,28] revealed that (53-55%) of MS patients were unemployed.…”

Section: Discussionsupporting

confidence: 90%

Fatigue and Self-management among Multiple Sclerosis Patients

Shawli¹,

Abdulmutalib²,

Nagshabandi³

2019

AJNR

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Fatigue is considered as the most revealed symptoms in multiple sclerosis patients, reported by 88% of patients and has significant impact on all stages of life such as altering in daily living activity or psychosocial/mental functions. The pathogenesis of fatigue remain poorly understood and how its impact on self-management. The aim of study was to assess fatigue and self management among multiple sclerosis patients. A quantitative descriptive correlational design was used in this study. The study was conducted at both King Abdulaziz University Hospital and King Fahad Armed Forces Hospitals in Jeddah City from January till March 2018, data collected from outpatients' clinic and Inpatients' medical-wards. A convenience sample of 50 Multiple Sclerosis patients. Data was collected through the main one tool, it consists of three parts; Part I, Socio-demographic and clinical data constructed by the researchers. Part П, Modified Fatigue Impact scale; to assess the Impact of fatigue on physical, cognitive, and psychosocial functioning in patient with Multiple Sclerosis.. Part ПІ, Multiple Sclerosis Self Management Scale Revised; to provide a multidimensional and psychometrically assessment of self-management knowledge and behavior among Multiple Sclerosis patients. The study results showed there was a statistically significant negative correlations between fatigue subscales and overall self-management among Multiple Sclerosis patients with p-value (.019). Also, there was a statistically significant negative correlations between self-management factor scales and overall fatigue among Multiple Sclerosis patients with p-value (.019). It was concluded that there was a negative correlations between overall fatigue and overall self-management among Multiple Sclerosis patients, whenever fatigue severity increases, self-management decreases. It was a recommendation to encourage governmental policy and other decision makers in the Saudi community to develop periodically structure health education training program regarding self-management in MS and provide appropriate environments or facilities to conduct such programs, where nurses play a key role through health education and cooperate with other health care system.

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Section: Discussionsupporting

confidence: 90%

Fatigue and Self-management among Multiple Sclerosis Patients

Shawli¹,

Abdulmutalib²,

Nagshabandi³

2019

AJNR

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“…One cross-sectional survey of 199 MS patients in Southeast USA, identified that MS-related QoL and MSrelated self-efficacy correlated significantly with patient activation in MS patients (r = 0.42, Po0.01 and r = 0.50, Po0.01, respectively). Depression had an inverse correlation (r = À 0.43; Po0.01) (Goodworth et al, 2014). Studies in other disease areas have demonstrated further elements that may play a role.…”

Section: What Influences Patient Engagement?mentioning

confidence: 93%

Achieving patient engagement in multiple sclerosis: A perspective from the multiple sclerosis in the 21st Century Steering Group

Rieckmann

Boyko

Centonze

et al. 2015

Multiple Sclerosis and Related Disorders

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While advances in medicine, technology and healthcare services offer promises of longevity and improved quality of life (QoL), there is also increasing reliance on a patient׳s skills and motivation to optimize all the benefits available. Patient engagement in their own healthcare has been described as the 'blockbuster drug of the century'. In multiple sclerosis (MS), patient engagement is vital if outcomes for the patient, society and healthcare systems are to be optimized. The MS in the 21st Century Steering Group devised a set of themes that require action with regard to patient engagement in MS, namely: 1) setting and facilitating engagement by education and confidence-building; 2) increasing the importance placed on QoL and patient concerns through patient-reported outcomes (PROs); 3) providing credible sources of accurate information; 4) encouraging treatment adherence through engagement; and 5) empowering through a sense of responsibility. Group members independently researched and contributed examples of patient engagement strategies from several countries and examined interventions that have worked well in areas of patient engagement in MS, and other chronic illnesses. The group presents their perspective on these programs, discusses the barriers to achieving patient engagement, and suggests practical strategies for overcoming these barriers. With an understanding of the issues that influence patient engagement in MS, we can start to investigate ways to enhance engagement and subsequent health outcomes. Engaging patients involves a broad, multidisciplinary approach.

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“…Only few studies have sought to assess the role of psychological factors in influencing patient activation[24,35,39,40], although the level of patient activation may not be ascribable solely to external, contextual causes. In this regard, some studies have verified that patients’ health locus of control[41,42]–defined as the individual’s set of beliefs and motivation concerning self-determination of his/her health–is associated with patients’ level of activation.…”

Section: Introductionmentioning

confidence: 99%

“…However, only few of the studies currently available in the scientific arena have explored the causal relationship between these different factors and patient activation. [39,45,46] A more systematic modeling of the psychosocial factors causing patient activation is therefore needed. Furthermore, the concept of patient activation often overlaps with the one of patient engagement.…”

Section: Introductionmentioning

confidence: 99%

The role of Patient Health Engagement Model (PHE-model) in affecting patient activation and medication adherence: A structural equation model

2017

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BackgroundIncreasing bodies of scientific research today examines the factors and interventions affecting patients’ ability to self-manage and adhere to treatment. Patient activation is considered the most reliable indicator of patients’ ability to manage health autonomously. Only a few studies have tried to assess the role of psychosocial factors in promoting patient activation. A more systematic modeling of the psychosocial factors explaining the variance of patient activation is needed.ObjectiveTo test the hypothesized effect of patient activation on medication adherence; to test the the hypothesized effects of positive emotions and of the quality of the patient/doctor relationship on patient activation; and to test the hypothesized mediating effect of Patient Health Engagement (PHE-model) in this pathway.Material and methodsThis cross-sectional study involved 352 Italian-speaking adult chronic patients. The survey included measures of i) patient activation (Patient Activation Measure 13 –short form); ii) Patient Health Engagement model (Patient Health Engagement Scale); iii) patient adherence (4 item-Morinsky Medication Adherence Scale); iv) the quality of the patients’ emotional feelings (Manikin Self Assessment Scale); v) the quality of the patient/doctor relationship (Health Care Climate Questionnaire). Structural equation modeling was used to test the hypotheses proposed.ResultsAccording to the theoretical model we hypothesized, research results confirmed that patients’ activation significantly affects their reported medication adherence. Moreover, psychosocial factors, such as the patients’ quality of the emotional feelings and the quality of the patient/doctor relationship were demonstrated to be factors affecting the level of patient activation. Finally, the mediation effect of the Patient Health Engagement model was confirmed by the analysis.ConclusionsConsistently with the results of previous studies, these findings demonstrate that the Patient Health Engagement Model is a critical factor in enhancing the quality of care. The Patient Health Engagement Model might acts as a mechanism to increase patient activation and adherence.

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Variables associated with patient activation in persons with multiple sclerosis

Cited by 34 publications

References 55 publications

Fatigue and Self-management among Multiple Sclerosis Patients

Fatigue and Self-management among Multiple Sclerosis Patients

Achieving patient engagement in multiple sclerosis: A perspective from the multiple sclerosis in the 21st Century Steering Group

The role of Patient Health Engagement Model (PHE-model) in affecting patient activation and medication adherence: A structural equation model

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