Validation of the Portuguese Severe Respiratory Insufficiency Questionnaire for home mechanically ventilated patients

Abstract

The aim of this study was to develop and validate the professional translation and cultural adaptation of the Portuguese Severe Respiratory Insufficiency (SRI) Questionnaire. The sample was composed of 93 patients (50 male patients, 53.8%) with a mean age of 66.3 years. The most frequent diagnostic groups were chronic obstructive pulmonary disease, obesity hypoventilation syndrome and restrictive chest wall disorders. The patients were asked to fill in both the SRI and SF-36 questionnaires. Factor analysis of the SRI questionnaire was performed leading to an explained variance of 73%, and resulted in 13 components. When analyzing the reliability, we obtained values for Cronbach's alpha above 0.70 for most subscales with the reliability of the summary scale being even higher (0.84). This professional translation and cultural adaptation of the Portuguese SRI Questionnaire has good psychometric properties which are similar, not only to the original, but also to other translations. These characteristics make this questionnaire applicable to the Portuguese population receiving home mechanical ventilation for severe respiratory insufficiency.

Validation of the Hungarian version of the SRI Questionnaire

“…Regarding validity, factor analysis explained 73.8% of the variation of the questionnaire, but it resulted in 13 scales, contributing in uneven fashion as verfified by scree plot. This is similar to results published by the Spanish and Portuguese validation of the SRI Questionnaire [7,13] and has been explained by the initial methodology of creating the questionnaire scales, which was done by an expert panel rather than factor analysis [3]. Scale incongruencies have been described before with the SRI Questionnaire used in validation studies and are thought to be a result of limited study population numbers and differing patient composition compared to the original study [20,21].…”

“…It has been validated in patients treated with home mechanical ventilation both through noninvasive and invasive modes of ventilation and has been found to correlate with long-term outcome [4][5][6]. It has been translated to several languages and validated using the translation-back translation method [7][8][9][10][11][12][13].…”

Chinese version of the severe respiratory insufficiency questionnaire for patients with COPD receiving long-term oxygen therapy

“…Therefore, different domains that focused on different aspects were not significantly correlated, consistent with previous studies. 9 , 12 – 14 , 16 , 17 We also observed that the correlations between each SRI domain and CRQ-Dyspnea were not high when compared with other domains. This may be because the SRI was originally designed for patients with chronic respiratory failure, whereas the CRQ was designed for general use in patients with COPD.…”

Factors associated with change in health‐related quality of life among individuals treated with long‐term mechanical ventilation, a 6‐year follow‐up study

“…Validity and reliability in quality of life research has been discussed (Macduff, 2000;Moons et al, 2006). Good validity and international relevance of this study is provided by using the SRI questionnaire, that has shown very good psychometric qualities and has been professionally adapted and translated into several languages (Duiverman, Wempe, Bladder, Kerstjens, & Wijkstra, 2008;Ghosh, Rzehak, Elliott, Windisch, 2012;Huttmann et al, 2015, p. 280;L opez-Campos et al, 2008;MacIntyre et al, 2016;Markussen et al, 2015;Oga et al, 2017;Ribeiro, Ferreira, Conde, Oliveira, & Windisch, 2017;Struik et al, 2013;Windisch, 2008;Windisch et al, 2003). Reliability and rigour are provided through high-quality clinical data from the LTMV registry.…”