Using World Cafés to engage an Australian culturally and linguistically diverse community around human papillomavirus vaccination

Prokopovich, Kathleen; Phillipson, Lyn; Pitts, Leissa; Stanoevska, Biljana; Street, Jackie; Braunack-Mayer, Annette

doi:10.1111/hex.13703

Cited by 3 publications

(1 citation statement)

References 39 publications

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“…The fourth step would be to identify the factors that patients think are important for making public funding decisions on high upfront cost therapies affected by deep uncertainty. This could be achieved through deliberative World Cafés [ 26 , 27 ]. World Café methodology has increasingly been adopted as an exploratory step in a mixed methods approach [ 28 ].…”

Section: Proposed Methodologymentioning

confidence: 99%

Challenges in the Evaluation of Emerging Highly Specialised Technologies: Is There a Role for Living HTA?

Merlin,

Street,

Carter

et al. 2023

Appl Health Econ Health Policy

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There is currently deep uncertainty about the clinical benefits and cost effectiveness of highly specialised technologies (HSTs), like gene and cell therapies. These treatments are novel, typically have high upfront costs, the patient populations are small and heterogenous, there is minimal information on their long-term safety and effectiveness, and data are limited and often of poor quality. With the increasing number of these technologies and their high cost burden on governments and health care providers, policy makers are currently walking a decision tightrope. On the one hand, an unfavourable funding decision could potentially limit patient access to life-saving treatments, while on the other, a favourable decision could result in unsustainable budget impacts and perhaps poorer patient health outcomes. Health technology assessment (HTA) is meant to determine the value of a health technology in order to promote an equitable, efficient, and high-quality health system. However, standard HTA processes have failed to mitigate the deep uncertainties associated with these technologies. In this paper, we propose a Living HTA framework to address these challenges. This framework includes a one-off process for making explicit the societal values associated with HSTs. These would inform the decision-making approach, data collection and the development of disease-specific reference models to be used by industry sponsors as the basis for their submissions for public funding. Coverage with an evidence development mechanism is also proposed by which data can be collected in real time to update the reference model on a rolling basis, thereby allowing re-assessment of the clinical and cost effectiveness of individual HSTs. The HTA would be ‘live’ until the results indicate there is sufficient certainty for the funding decision to be confirmed, the price changed or the funding removed.

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Section: Proposed Methodologymentioning

confidence: 99%

Challenges in the Evaluation of Emerging Highly Specialised Technologies: Is There a Role for Living HTA?

Merlin,

Street,

Carter

et al. 2023

Appl Health Econ Health Policy

Self Cite

View full text Add to dashboard Cite

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Using World Cafés to engage an Australian culturally and linguistically diverse community around human papillomavirus vaccination

Prokopovich

Phillipson

Pitts

et al. 2023

Health Expectations

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Introduction Internationally, cultural factors are associated with vaccine uptake and completion in ethnic minority communities. Whilst Australia has achieved high human papillomavirus (HPV) vaccination, little is known about how culture or ethnicity influences HPV vaccination engagement. To address these gaps, we partnered with our Local Health District to explore how one culturally and linguistically diverse (CALD) community engages with school and HPV vaccination. Methods We adapted a participatory research method (the World Café) to engage one local CALD community—the Macedonian community (Our bi‐cultural researcher and participants preferred the term ‘Macedonia’ rather than The Republic of North Macedonia as outlined in the 2018 Prespa agreement) in New South Wales (Australia)—to discuss HPV and school vaccination. Our qualitative analysis combined deductive codes taken from the Tailoring Immunization Programme framework, inductive codes guided by narrative inquiry (temporality, sociality and place) and previously known vaccination ‘trust’ frameworks. Results In late 2019, 31 local Macedonian community members were purposely recruited for two World Cafés ( n = 15 mothers/grandmothers and n = 16 young adults). Our themes reveal a community narrative grounded in historical vaccine experiences, family views on vaccination and a general trust in schools. Participants collectively discussed how ‘increasing knowledge’ and ‘tailoring health communications’ could strengthen community vaccine decision‐making. Conclusion This study demonstrates how research partnerships and participatory methods can be applied in CALD community settings to research engagement with school and HPV vaccination. Our World Café dialogues highlight a positive narrative about vaccines, where community vaccination behaviours were built on multilayer trust relationships despite low vaccine knowledge. Our findings further knowledge around ‘public trust’ in school vaccination, highlighting the importance of existing (or missing) trust relationships when tailoring vaccine communication to local CALD communities. Patient or Public Contribution Participants who took part in the World Cafes were all local Macedonian community parents or young adults who have been or will be exposed to the health services offered by school‐based HPV vaccination. Thus, all the data collected came from their personal experiences with the school vaccination programme, or how they expect to participate in the programme. To ensure our study design was culturally appropriate and tailored to the Macedonian community, we engaged with the relevant local health stakeholders (the bi‐cultural Multicultural Health Officer and Multicultural Health Service Manager Programme Director) to adapt and refine the World Café method for this context and setting. Our local health stakeho...

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Characteristics of Sexual Health Programs for Migrants, Refugees, and Asylum Seekers: A Scoping Review

Inthavong,

Pourmarzi

2024

IJERPH

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Background: Social, cultural, and structural determinants of health for migrants, refugees, and asylum seekers can contribute towards poorer sexual health outcomes. People from migrant, refugee, and asylum seeker backgrounds usually use less mainstream sexual healthcare services and have lower levels of sexual health literacy compared with the destination countries’ general population. However, there is little collated knowledge about sexual health programs that have been implemented to improve sexual health among these groups. This study aimed to describe the characteristics of programs for improving sexual health among migrants, refugees, and asylum seekers. Methods: This study was a scoping review in which Scopus and PubMed were searched for peer-reviewed articles published in English since 2010 from countries similar to and including Australia such as New Zealand, the United States of America, Canada, the United Kingdom, and European Union countries). The final search of databases was performed on 26 June 2023, and resultant studies were inputted into Endnote and Covidence systematic review software to remove duplicates before screening. The study utilised a qualitative approach using inductive thematic analysis of the content of the studies to extract and categorise the characteristics of the program. Results: A total of 3044 articles were screened and 20 were included for data extraction. The included studies were conducted in six countries (the United States of America, Australia, France, Italy, Denmark, and Belgium). The key characteristics of sexual health programs identified included consumer consultation and engagement, cultural appropriateness, language support, peer education, self-directed learning, group learning, financial support, and outreach services. the programs had a combination of these characteristics to ensure that they can improve target population engagement with educational materials and decrease barriers to accessing sexual healthcare. Conclusion: Consideration of migrants, refugees, and asylum seekers’ culture, language, socioeconomic characteristics, and access to information and services in the design of the sexual health programs may improve sexual health outcomes among these groups. However, further research is needed to assess the importance and implementation feasibility of the identified characteristics for sexual health programs in specific context.

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Using World Cafés to engage an Australian culturally and linguistically diverse community around human papillomavirus vaccination

Cited by 3 publications

References 39 publications

Challenges in the Evaluation of Emerging Highly Specialised Technologies: Is There a Role for Living HTA?

Challenges in the Evaluation of Emerging Highly Specialised Technologies: Is There a Role for Living HTA?

Using World Cafés to engage an Australian culturally and linguistically diverse community around human papillomavirus vaccination

Characteristics of Sexual Health Programs for Migrants, Refugees, and Asylum Seekers: A Scoping Review

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