Using Technology to Improve Data Capture and Integration of Patient-Reported Outcomes Into Clinical Care: Pilot Results in a Busy Colorectal Unit

Gurland, Brooke; Alves-Ferreira, Patricia C.; Sobol, Timothy; Kiran, Ravi P.

doi:10.1007/dcr.0b013e3181d87468

Cited by 27 publications

(19 citation statements)

References 13 publications

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“…Kolb’s model has been successfully applied to develop a number of patient, medical, and nursing education materials (13–20). PCOR can be improved by mobile health technology (MHT), which has been shown to lower health-care costs and improve patient’s health (21, 22). MHT has been used extensively in studies of diabetes and other chronic diseases (23–31).…”

Section: Introductionmentioning

confidence: 99%

Patient-Centered Tablet Application for Improving Medication Adherence after a Drug-Eluting Stent

Shah

Dileep

Dickens

et al. 2016

Front. Public Health

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Background/aimsThis study’s objective was to evaluate a patient-centered educational electronic tablet application, “My Interventional Drug-Eluting Stent Educational App” (MyIDEA) to see if there was an increase in patient knowledge about dual antiplatelet therapy (DAPT) and medication possession ratio (MPR) compared to treatment as usual.MethodsIn a pilot project, 24 elderly (≥50 years old) research participants were recruited after a drug-eluting stent. Eleven were randomized to the control arm and 13 to the interventional arm. All the participants completed psychological and knowledge questionnaires. Adherence was assessed through MPR, which was calculated at 3 months for all participants who were scheduled for second and third follow-up visits.ResultsRelative to control, the interventional group had a 10% average increase in MPR. As compared to the interventional group, more patients in the control group had poor adherence (<80% MPR). The psychological data revealed a single imbalance in anxiety between the control and interventional groups. On average, interventional participants spent 21 min using MyIDEA.DiscussionConsumer health informatics has enabled us to engage patients with their health data using novel methods. Consumer health technology needs to focus more on patient knowledge and engagement to improve long-term health. MyIDEA takes a unique approach in targeting DAPT from the onset.ConclusionMyIDEA leverages patient-centered information with clinical care and the electronic health record highlighting the patients’ role as a team member in their own health care. The patients think critically about adverse events and how to solve issues before leaving the hospital.

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Section: Introductionmentioning

confidence: 99%

Patient-Centered Tablet Application for Improving Medication Adherence after a Drug-Eluting Stent

Shah

Dileep

Dickens

et al. 2016

Front. Public Health

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“…Recent studies have documented both the feasibility and the advantages of incorporating patient reported outcome measures into clinical practice. 14,15 But these studies do not address the need to assess concerns that cannot effectively be evaluated using standardized measures. No self-report measure can gather the detailed and personally relevant information that a skilled clinician can elicit.…”

Section: Discussionmentioning

confidence: 99%

Multiple Sclerosis and Fatigue

Cook

Bamer

Roddey

et al. 2013

Physical Medicine and Rehabilitation Clinics of North America

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“…As a result, patients were more willing to enroll in the research protocol because they knew that their information would be available for physicians and used as part of their care. Previous study showed that patients are more cooperative when they know that data collected for research is also important for their treatment [16]. …”

Section: Discussionmentioning

confidence: 99%

“…In the research setting, the time and motion workflow analysis was used to provide an understanding of research workflow and identify areas where informatics-based interventions could be used to support clinical research workflow [14]. Previous studies have shown that the integration of registries into clinical workflow are vital for successful registry data collection [15], and that workflow modifications can lead to increased data collection [16]. …”

Section: Introductionmentioning

confidence: 99%

Detecting Dissonance in Clinical and Research Workflow for Translational Psychiatric Registries

et al. 2013

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BackgroundThe interplay between the workflow for clinical tasks and research data collection is often overlooked, ultimately making it ineffective.Questions/purposesTo the best of our knowledge, no previous studies have developed standards that allow for the comparison of workflow models derived from clinical and research tasks toward the improvement of data collection processesMethodsIn this study we used the term dissonance for the occurrences where there was a discord between clinical and research workflows. We developed workflow models for a translational research study in psychiatry and the clinic where its data collection was carried out. After identifying points of dissonance between clinical and research models we derived a corresponding classification system that ultimately enabled us to re-engineer the data collection workflow. We considered (1) the number of patients approached for enrollment and (2) the number of patients enrolled in the study as indicators of efficiency in research workflow. We also recorded the number of dissonances before and after the workflow modification.ResultsWe identified 22 episodes of dissonance across 6 dissonance categories: actor, communication, information, artifact, time, and space. We were able to eliminate 18 episodes of dissonance and increase the number of patients approached and enrolled in research study trough workflow modification.ConclusionThe classification developed in this study is useful for guiding the identification of dissonances and reveal modifications required to align the workflow of data collection and the clinical setting. The methodology described in this study can be used by researchers to standardize data collection process.

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Using Technology to Improve Data Capture and Integration of Patient-Reported Outcomes Into Clinical Care: Pilot Results in a Busy Colorectal Unit

Abstract: Collection of patient-reported outcomes by use of tablet technology and automatic transmission into the electronic chart with data storage for later use is feasible. This process can overcome many of the inefficiencies associated with paper questionnaires.

Cited by 27 publications

References 13 publications

Patient-Centered Tablet Application for Improving Medication Adherence after a Drug-Eluting Stent

Patient-Centered Tablet Application for Improving Medication Adherence after a Drug-Eluting Stent

Multiple Sclerosis and Fatigue

Detecting Dissonance in Clinical and Research Workflow for Translational Psychiatric Registries

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