Using family and staff experiences of a botulinum toxin‐A service to improve service quality

Abstract

Areas of importance identified by families relating to BoNT-A treatment included acknowledgement of individual needs, care coordination, empowerment of families and patients, consistency in service delivery, and the distressing nature of appointment and decision-making. Comparison of the data from the staff patient journey mapping and family interviews suggested that staff have a good but incomplete understanding of the factors important to families, highlighting the need for consumer engagement in establishing family-centred care. The themes identified can guide the provision of family-centred BoNT-A injection clinics.

Framework for patient, family-centred care within an Australian Community Hospital: development and description

“…46 A communication approach which acknowledges the patients personal journey, their individual personality, preferences, current abilities and ongoing need for support, is recommended to support individualised care and the patient's sense of autonomy and control with their healthcare journey. 10 47 48 Studies in paediatrics, 49 adult diabetes, 16 internal medicine and primary care 50 have also reported similar results in relation to consumer preferences on individualised engagement and a neutral communication style. 51 52 In our organisation, mandatory training is provided to all staff to ensure meaningful interactions and professional communication styles.…”

Biofeedback assisted relaxation training and distraction therapy for pain in children undergoing botulinum neurotoxin A injections: A crossover randomized controlled trial

“…These may reduce distress or anxiety related to sedation (e.g. face mask), avoid side‐effects of sedation and fasting required for sedation, and reduce recovery time 2,6 . Young people may explore using non‐pharmacological strategies in preparation for their transition to adult BoNT‐A services, where access to sedation may be limited 7 …”

“…Non-pharmacological strategies are also important to support children during painful procedures including BoNT-A injections. [5][6][7] These may reduce distress or anxiety related to sedation (e.g. face mask), avoid side-effects of sedation and fasting required for sedation, and reduce recovery time.…”

“…face mask), avoid side-effects of sedation and fasting required for sedation, and reduce recovery time. 2,6 Young people may explore using non-pharmacological strategies in preparation for their transition to adult BoNT-A services, where access to sedation may be limited. 7 In the general paediatric population, there is evidence to support the use of behavioural interventions for pain during needle-related procedures, including distraction therapy (e.g.…”

“…Non‐pharmacological strategies are also important to support children during painful procedures including BoNT‐A injections 5–7 . These may reduce distress or anxiety related to sedation (e.g.…”